Apr 02, 2013 - 12:36 pm
hi. We get our first post tx scan tomorrow. Anxiety is high. Hubby has been having this cramp on left side....like runners cramp and it usually starts when he begins his long drive to work. So, he is worried that will show as something bad on the PET. He is so frustrated by the fatigue! That bothers him the most. His taste is still screwy.....he can kind of taste that savory taste. Sweet is totally gone.....waiting for it to swing back around. He was supposed to get PEG....but in surgery they aborted that plan....position was problematic. So....he has been eating the whole time....or more like swallowing. He ate really mushy Mac and cheese and cheesy scalloped potatoes and squash the other night.....that was a big accomplishment. I can't wait for him to be able to bite into something.
Can we be in pockets for a while. Tests tomorrow. Results on the 9th. Any good prayers, positive thoughts are appreciated.
And any advice on the fatigue is welcome.