CSN Login
Members Online: 10

Pain and binding in side after lung removed

KSGRL66's picture
KSGRL66
Posts: 5
Joined: Apr 2011

I had my lung removed 11-11-2010 due to carcinoid cancer. Now I have pain in my right side that feels like someone twisting my insides. I have to lay down and rub it out before I can even stand up. My doctor did an MRI and didn't find anything wrong. He has me taking Flexarill to help the muscle relax. Has anyone experienced this same pain?

Tammy 

beatlemike
Posts: 54
Joined: Jul 2005

I had my right lung removed in 2005 and had many differant aches and pains for the first year. I was on hydrocodone for that year and finely weaned myself off of it. The pain seemed to just gradually dissapear altho not completely until anout 2 years. I slept on my back for about 4 months and then finaly got comfortable enough to sleep on my side again. Wishing and praying the very best for you!

KSGRL66's picture
KSGRL66
Posts: 5
Joined: Apr 2011

beatlemike,

 

Thank you for sharing your story. I too am on lortabs, only 5 mg daily though unless needed. My doctor gave me some Flexarill but I only take them at night if I have had a really painfull day as they make me really tired. I am going to keep searching for more answers. 

 

 

mind boggling
Posts: 16
Joined: Mar 2013

I just had my right lung removed due to a neuroendocrine tumor. I feel all sorts of pains/aches.....but it is still new. I do try to move as much as possible.....I am tired of wearing sweatpants and shirts.........but I am happy the tumor is removed/gone. I go back in a week to check on all this and see where I stand and what more treatment is needed. my Dad lived with one lung.....TB. I would have never known if he didn't tell me. is there anyway that what your doing  to make it go away a daily streching exercise......so it is gone before your day gets moving? I hope it goes away permanetly for you. Let me know as I might need your advice sooner, rather than later. 

KSGRL66's picture
KSGRL66
Posts: 5
Joined: Apr 2011

I have tried different stretch excercises but they tend to make it worse. Over use of that side are very painfull, such as swinging my arm as I walk, bending or stretching that side. I had two surgery in the same area within 2 months. My first one was a thoracotomy which they cut from the center of my rib cage, just below my breast area, to the center of my back. Then about 2 months later I had a pnemenectomy and cut open on the same side and same incision. I am sure mine is severe scare tissue binding inside. I do hope however it is nothing more. The MRI done a couple weeks ago didn't show anything out of the ordinary. 

mind boggling
Posts: 16
Joined: Mar 2013

Just from reading all the posts from various websites.......seems like the majority are living with pain from this type of surgery. I have read a few that report no pain/complication from nerve regeneration. Although my healing is new.......I  am also starting to wonder if I will ever wear a brassiere again........even a genie bra. Keep working at it and giving it time. Take your tylenols to help manage. I hope it gets better for you ........because now I gauge you to see how my healing is adding up. If I could......I'd wave a wand over the area and puff.......it would disappear. Please keep me posted..........

Jody6251
Posts: 2
Joined: Sep 2013

I had my lower left lobe and a wedge of upper left lobe and lymph nodes removed on 8/5/2013.  It's only 4 weeks but thought pain would be better.   I also had a breast biopsy (it was benign) 2 weeks prior to surgery.    My surgery was VATS.  I am just taking Tylenol now (out of Dilaudid.  I have that binding feeling and having a hard time sleeping and getting comfortable.    I am tired all the time.  I take naps, something I never did.  My prognosis is great (although i have a very small nodule on my right lung which they will be watching carefully).    Thanks for this site, now I can chat with people I can relate to.   

dennycee
Posts: 641
Joined: Mar 2011

hope you have an opportunity to meet others in the chat room.  Are you sleeping propped up a recliner?  My vats was cancelled a after they got in so I only had two of the incisions and had catheters placed.    Frequently there is nerve pain with vats and gabapentin will help relieve it. It is my experience that my internist or primary care dr are better at coping with side effects.  

nottinghillfarm's picture
nottinghillfarm
Posts: 7
Joined: Sep 2013

I had left lower lobectomy done in Feb. 2013.  The cancer was adenocarcinoma Stage 1a.  The pain and numbness persists and is made worse by exercise.  I had one veritcal incision ( S shaped) about 7 inches long and the chest tube hole.  My left breast is either tender or numb.  I am assuming this is all due to nerve damage and will get better over time.  It is discouraging sometimes wanting to get back to normal and not being able to do so.  My first 6 month check up is due this month and I'm a little anxious over that, just want to hear all good news.

dennycee
Posts: 641
Joined: Mar 2011

Also known as neurontin helps that nerve pain    Best wishes for improved health.  

nottinghillfarm's picture
nottinghillfarm
Posts: 7
Joined: Sep 2013

Found this group, Lung Cancer Alliance.  They have sent me information that I found very helpful in understanding lung cancer.  They have a phone buddy system also if anyone is interested.

nottinghillfarm's picture
nottinghillfarm
Posts: 7
Joined: Sep 2013

CT scan was negative!  The gabapentin is working wonders for the nerve pain.  So glad to hear about that. 

Is anyone anxious about the cancer coming back? 

grandma253181
Posts: 1
Joined: Oct 2013

had  that  emoved  in  dec2012     and   nerve endings  still  hurt   some  days  worse  then  others  but  beat  the  cancer  just  need  to    breathe  with  1  lung  and  the  nerve  endings  painEmbarassed

cinnamonsmile
Posts: 1039
Joined: Dec 2010

Hi, I was just browsing the lung cancer boards because I had a thoracotomy for hypersensitivity pneumonitis which formed a mass the size of plum and had 15% of my lung removed and I came across this thread.

If you are continuing to have unbearable pain, see a pain clinic (hopefully a good one).

I am on a number of medications for nerve damage pain from my bilateral mastectomy and node removal(in the armpits) for breast cancer.

I take 2100 mg of gabapentin a day, amitriptyline at night (an antidepressant shown to have pain relief in some patients, unfortunately not all), and a muscle relaxor at night.

For break through pain, I take either Tramadol or Vicodin (5-325).

I also get IV bags of Lidocaine Infusions to the vein every 9-10 weeks.

I also saw a pain psychologist who helped me learn how to live with pain.

If you have severe scar tissue adhesions, try seeing a physical therapist who has experience with what is called Myofascial Release. It helped me immensely after I had my breast cancer surgery. It is not the same as a "massage." It is massage aimed at releasing the scar tissue, and if you find someone good at it, it will work, and you should be given stretching exercises to do at home.

I hope this helps.

 

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network