Apr 01, 2013 - 9:28 am
Well Nick had his first post-Sutent scan 2 weeks ago and we got the results on Thursday.
The bone lesions showed no signs of growth and were as the consultant said 'stable'. He has lesions on his right pelvis and left collarbone. Don't know how large they are. The consultant told us that these would not shrink ever, but she hoped that they would remain stable. She said it was incredibly hard to target bones once it's there - does anyone else have any other info on this please?
The lung met has shrunk (again). It had shrunk at the scan in January 2013 and that was after the kidney was removed but no drug treatment started. Now it has shrunk again after 2 cyles of Sutent. And the 1st cycle was interrupted becuase of high blood pressure and he missed a whole week of the sutent. Don't know by how much is has shrunk. I will ask those questions after the next scan whenever that is.
Nick is in a Europe-wide study to find out if it is best to have the nephrectomy first and sutent second or whether 3 cycles of sutent before the nephrectomy work better. He was in the randomised surgery first group. He had his kidney removed 7 December and started Sutent on 14 Jan 2013.
We are so grateful that it has stablised/shrunk. The main side effects seem are high blood pressure which they are still trying to sort out; taste changes (any ideas how to combat or lessen that would be wonderful ??); hair colour changes, nose bleeds, rash on his foreskin (ouch) but on the whole we are very lucky that the side effects aren't as bad as others seem to get.
Anyway I just wanted to share the great news with you all. Have a lovely Easter