Mar 31, 2013 - 9:50 pm
My wife had a "probable" low grade glioma which was never biopsied due to its hazardous location in the medial left temporal lobe. She rcv'd radiation in Nov 2009 and the lesion shrank 50% (26 to 13mm) and stabilized. Had MRI every 4 months ever since and last one was Nov 2012 with no noticable change in size or enhancement.
On Fri she awoke in an incoherent but consious state. After ER, MRI showed multiple lesions in brain stem, left temporal lobe and 4 or 5 other areas with many smaller pockets of enhancements throughout center of brain. Based on history and significant rate of change, oncologist and neurosurgeon believe 99 percent confidence of high grade glioma but can't/won't make diagnosis/prognosis without a proper biopsy.
Radiation is no longer an option. Already had it.
Surgery is not an option. Location too vital.
Chemo might have 10% chance of briefly slowing.
Doing nothing could mean 8 to 10 months left (if lucky)
Has anyone ever heard of a patient receiving ONLY chemo to retard growth of an agressive tumor? My oncologist cannot build a plan without a proper biopsy and diagnosis.
Hope is very dim and there no plans to survive this. What limited quality of life she has left could be significantly affected by chemo so why even bother with a risky biopsy?
In the end nothing changes.
Why not enjoy what's left?