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Questions about Tonsil Biopsy

robswife87's picture
robswife87
Posts: 175
Joined: Mar 2013

Rob had a tonsil biopsy on Thursday and today has been his worst pain. We thought it would have started to get better by now.

When do you think his pain from the biopsies will end? And befroe this he had no visual sign of cancer inside his mouth like the pics we have seen and now it looks just like them. Very swollen, white patches and red. Is this normal after the biopsy?

He says it even feels like he is swallowing pieces now? Like maybe is is sloughing off

Sandy

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Tonsils coming out was more intense than treatment itself (radiation)... So I'm presuming even if it were only biopsy, if they cut the tonsil tissue, three days or so was when the pain started, and lasted about a week or so...

JG

fishmanpa's picture
fishmanpa
Posts: 1105
Joined: Jan 2013

Hi Sandy,

Did they remove both or just one tonsil? Either way, it's very painful. My real pain started 3 days out. I had my tonsils out on a Friday and by Monday I was hurtin' bad. It was really rough for the next week. Ice pops were good but you had to be careful as extreme cold hurt. No hot foods either. Room temp worked the best. As far as swallowing pieces? Might be clots/scabs but it's a little early for that. 

The patches and red areas are normal. Expect some ear pain too. Just make sure he's getting his pain meds on time. A humidifier next to him will help. And as always... hydrate, hydrate, hydrate. 

"T"

HelenBack
Posts: 62
Joined: Jan 2013

My husband was in some serious pain from his tongue/tonsil biopsy. The first couple of days were okay and then starting on day four till about two-three weeks later he was in pain. He really didn't eat much solid food during that time and lost a bit of weight, which was not cool since he really should be bulking up before chemoradiation. He breath was really awful after about a week as well. So get ready for that. The white spots are normal and part of the healing. I believe cancer of the oral tongue often presents as white spots, but I don't think SCC of the base of tongue/tonsil presents that way. If you see it at all, it's usually a lump. At least that's what I understand. 

Make sure he takes the pain meds on a schedule rather than waiting for the pain and then treating it. It works better to stay ahead of it.  

My husband was totally surprised by how long the pain lasted, and then I looked into it, and it's totally normal.

Take Care,

Helen

robswife87's picture
robswife87
Posts: 175
Joined: Mar 2013

He still has his tonsils. Just snippets removed for biopsy to confirm primary. He will be checking with the nurse today about it. He goes for Rad Simulation and mask fitting today.

Before they started poking around you never would have know there was cancer in his mouth. Now, the tonsils have eruptions and white patches that he says are sloughing off and he is swallowing pieces when he drinks. I will assume this to be normal unless thenurse today says different.

They have really pissed off the cancer and now we wait 3 more weeks for treatment because of tooth extraction in a week. 

Sandy

phrannie51's picture
phrannie51
Posts: 3624
Joined: Mar 2012

was done on the node in my neck, I was saying the same thing as you....."the Dr. really pissed off the cancer". Smile....I went in with a relatively small and painless lump on my neck....after the biopsy, it took off......growing at a rapid rate, and hurting the whole time....boy was the cancer pissed, it knew we were after it. This went on for 6 weeks while they made their treatment plan.  T and John have had the biopsies of tonsils.... they'll lead you two thru this part.

fishmanpa's picture
fishmanpa
Posts: 1105
Joined: Jan 2013

It's funny you mentioned this. It seems as if the same thing happened after the first surgery. In November of last year you could feel the lump in my neck but you couldn't see it unless I tilted my head back and to the side. By February it looked like I had a case of the mumps! My surgeon said that the tumors were "aggressive" 

"T"

fishmanpa's picture
fishmanpa
Posts: 1105
Joined: Jan 2013

Hi Sandy,

I thought they removed the tonsils. Nonetheless, the biopsies are very painful as well. I had biopsies done of my BOT and nasopharynx along with tonsil removal and a laryngoscopy (twice!). They're basically taking chunks of tissue out and it's gonna hurt! Just stay on top of the pain meds. 

Take a breath and don't worry about the waiting. I know... easier said than done. Between a second opinion, switching treatment centers and everything else, it was over 3 months before the first treatment.

Make sure they get all the dental stuff done now. Your husbands teeth are going to take a beating from the rads. 

I hope all goes well with the sim and mask. The mask is an "interesting" experience. Even now, with 13 sessions under my belt, it still is a very weird experience when they snap that puppy down tight before I go in. 

Positive thoughts and prayers

"T"

 

robswife87's picture
robswife87
Posts: 175
Joined: Mar 2013

Well the sim and mask are rescheduled for Friday. Sent my 19 year old with him as I had to work and didn't think it would be a big deal.

He saw the doc and he said they "beat up his mouth  pretty good" but was healing okay

Went to do the mask and he couldn't lay flat down, the swollen tonsils blocked his mouth breathing and they were pinching on the nose so he couldn't breathe through that.

He was choking on his tonsils. Doc came in and said the swelling was just still to bad to try so we go again Friday.

Rob is feeling down be cuase as he said "he couldn't man up" to get it done.

I told him this hasn't slowed anything up at all and we will get it done on Friday when I can be there to help him through. The Rad doc called dentistry and got his teeth moved to tomorrow, he told them he wasn't waiting he wants radiation started on April 15. Hell he wanted to start yesterday. LOL

He is bummed no work again all week but the faster we get him through this the faster he heals and gets to enjoy summer.

PS Even his Uvula (sp) is bruised up and all purple looking

Sandy

 

debbiejeanne's picture
debbiejeanne
Posts: 2278
Joined: Jan 2010

sandy, sorry to hear the bad news but it has nothing to do with him being a man.  he can't help the swelling.  tell him to hang in there b/c it will get better.

God bless,

debbiejeanne

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

Sandy,

You have to get Rob not to beat himself up of what is easy and what isn't... Everyone reacts to everything differently. Everyone on this board has their own unique story, and Rob will be no different. It's just what happens. He's man enough to say yes to treatment. He's got a tough road in front of him, but you are right, go into it, hit it hard and recover in the sweet warmth of the summer!

Best,

Kari

fishmanpa's picture
fishmanpa
Posts: 1105
Joined: Jan 2013

Hi Sandy,

Let your husband know there is no pride in cancer and he should get used to it! He's going to need help and he's better get that stuff out of his head now. With cancer, it's like you were made King or Queen and if you have the blessing of having a caregiver/helper, you should very well take advantage of it! Marcia is amazing. I admit I tell her to lighten up a little as I want to do as much as I can for myself and do things for her too. 

Glad things are progressing. Have a little patience, the ride will start soon enough. Buckle up, fill the water bottles and you'll be in the thick of it before you know it!

"T"

 

phrannie51's picture
phrannie51
Posts: 3624
Joined: Mar 2012

experience (and I'm one of the older ones here Smile)....I have yet to find any human who can hold their breath for 30 minutes...nobody can "man-up" for that.  I know he's biting at the bit to get going on this....we all were.  A 4 day set back is a small one. 

p

Laralyn's picture
Laralyn
Posts: 436
Joined: Apr 2012

The pain from my tonsil biopsy was almost as bad as the pain from last stage radiation. It actually stopped me from eating going into treatment and about the time it died down, the radiation pain kicked in. Sorry to deliver bad news, but I think it's better to be honest. Talk to your doctor and see if he can prescribe paid meds to help your husband keep eating and to keep the stress down. It helped me to drink really cold water or drink things like milkshakes. I was able to get down cold Boost at that stage, for example, and the combo of cold+thick coated my throat and helped ease the pain. 

This stage will pass, but tell him he's not alone. :-)

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Like mentioned, there is no pride or manning up when it comes to cancer treatment... Pain just plain s.ucks...

No humility either..., I was poked, probed, jabbed, bled, scanned, cut, poisoned, burned, examed inside and out, and most of the time with my azz hangin out the back on some open gown and blowing in the breeze...(different type of blowin T, LOL)...

He'll get through it when the time comes...

Best,

John

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