Mar 31, 2013 - 2:31 pm
I am joining you ladies after discovering that I have cervical cancer which was originally misdiagnosed as a rare, aggressive uterine cancer (UPSC). After surgery, the pathology report came back with 1B1 Mucinous Adenocarcinoma of the cervix with lymph node involvement. This is quite annoying since I have researched UPSC and now must start researching a new disiease at the same time my doctor is pushing for a treatment decision. Ugghh!!!
This is where I need help. There does not see to be much information on endocervical mucinous adenocarcinoma. Can anyone point me in the right direction?
My doctor says that it is not as aggressive as UPSC, but recurrence in 2-3 years is a concern. However, some of the previous posts suggest otherwise. My doctor is not very forthcoming with information unless I ask specific questions, so I am very unsure of what I am facing and don't know what questions to ask before making a decision.
At this point, since she is giving 2-3 years possible recurrence as a reference point, I am leaning towards alternative treatment for nine months and then re-evaluate after testing. She has not given a compelling reason, other than preventive measures, to subject my body to such drastic treatment (13 wks chemo/5 wks rad) when there is no noticeable disease. All reproductive organs, omentum and affected lymph nodes were removed. Also, there is no way of knowing whether the treatments are successful since my pre-op CT scan was clear for metastasis.
Since this is a new diagnosis, and there is very little info available, I am looking to this board for help.