Mar 28, 2013 - 2:07 am
I am starting a new forum with hopes for some advice and some stories of strength! My husband has been battling stage four colon cancer since July 2012. He was only 39 at the time - collapsed due to abdominal pain. They did an emergenct hemicolectomy - and found that the cancer has spread thru the colon wall and into the abdomen and small intestine area. There was evidence on the perineal lining as well. The prognosis was bleak - nothing they could do but try to extend his life with chemotherapy. He did eight months - with avaston....every two weeks. He is suffering from severe neuropathy...so bad that he cringes with pain. He sufferes thru it because his CEA levels went from 37 to under 4 over the eight months. On jan 18th they stopped chemo in order to prep him for HIPEC surgery in Buffalo NY. We felt blessed, and thrilled, to have this opportunity. They told him he needed to be off chemo for 6-8 weeks and do a laperoscopy first. The laperoscopy was done on Feb 19th - and it looked good. They confirmed HIPEC for March 21st. We went to Buffalo for a pre-op on March 12th and they cancelled the surgery. The past scan showed that the cancer had spread - and in a two week time frame CEA was back up to 13. Devstated - we left and went home. They told us to go back on chemo immediately - try another 4 or five rounds and see if the cancer stops growing...and if the tumors shrink. Perhaps they will re-visit the idea of the HIPEC then??? I dont know how to help him get through this ....his hope is gone. I need something to spark him again. We have four children...13,11, 7, and 6 years of age. I am so scared for them and for what comes next.