After almost 3 years of wanting to fill out a Power of Attorney for HealthCare/Advanced Directive, I finally filled out the paperwork. Now I have to find two people that think I am of sound mind to witness me sign it LOL...
I am also working on instructions for if or when I end up in a nursing home. I was a Certified Nursing Assistant, and what goes on behind closed doors or on the unit when no family visit can be horrendous (I did clinicals on the main floor in one , and worked in two different ones in the middle to end stage dementia. and it is the same across the board). There are some wonderful health care workers, but a lot of bad ones. A lot of time, families come on a regular schedule so workers know when to primp and clean patients up better. I am writing stuff that is important to me for my care should I not be able to communicate it to the staff.
Whether we have cancer or not, anyone could end up in a nursing home. I think it is important to make sure we have all our ducks in a row for how we want to be cared for in the nursing home and it isn't always about the medical stuff.
- what do you want to wear? sweats, skirts,jeans.etc
- how do you want your hair? long, short, colored, permed, etc
- what kind of shoes? tennis shoes, dress shoes, slippers
- do you want painted nails or not?
- do you want make up on or not?
- how important is facial hair? (nursing homes do have to shave the women as it is part of our dignity)
- what type of shirts do you want to wear?
- are you a night owl and like to sleep late or all day? are you a morning person? (we had a lady on our unit who worked third shift almost her whole life, so she would be up at night and sleep all day. it took 2 years for manangement to realize this and let us let her sleep during the days.there was another lady who liked to sleep late, so we wouldn't get her up til later. Many nursing homes are now trying to tailor cares more to the patients schedule)
- do you want to wear nice nightgowns to bed? do you just want a hospital gown?
- think about your cares as if you were in a wheel chair, in a wheel chair and can't communicate your needs and desired,and if you are up and about and mobile on your own
- what foods do you like? what DON"T you like. Letting staff know what you don't like will definitely be tremendously helpful if you don't like certain foods and can't communicate it. That way staff isn't trying to convince you to eat what you don't like.
These are just a few things I can think of right now. It is just stuff to think about.