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Two Steps Forward, Three Back

wolfen's picture
wolfen
Posts: 1209
Joined: Apr 2009

Our week of "rest" to prepare for first chemo is over. Boy, is it over!

Third attempt at first chemo infusion was scheduled for today, preceded by labs. Lab nurse was unable to flush port to hubby's painful dismay. There should have been no pain at all, nor old black blood in the attempted draw.

Chemo doc was unable to do dye study on port, due to severe  dye allergy, so he sent us to chemo for that nurse to access port. Painfully unsuccessful, again. So off we went to x-ray. Were greeted shortly afterward by surgeon's nurse. According to the x-ray, the never used port has migrated and the catheter has become detached. So hubby will again be having surgery to put in a new port on Thursday. Fourth attempt at chemo to follow on Monday. Time will tell if "fourth time's the charm".

Be well, my friends.

Luv,

Wolfen

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

So sorry but I pray they get that port fixed so u guys can start fighting back. Best of luck,all will be well.

thxmiker's picture
thxmiker
Posts: 1278
Joined: Oct 2010

We are sending pur thoughts and prayers for a Great Forth try!

 

Best Always, mike

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

Had several "episodes " since I had my port and had if flushed this summer....created and still get a little anxious when they do draws.

Fourth try has to be a win win for your husband.

Wishing you the best to keep moving forward!

Barb

smokeyjoe
Posts: 1428
Joined: Feb 2011

I know they can move and migrate,  but I'm thinking you're poor hubby hasn't been active enough to do such a thing....when first reading your post I wondered if he was on blood thinners, if not maybe they would help with the blood draws.     Sheesh I've been active, like going on a jet ski all the time in the summer, boating, attempting to waterski, snowmobiling .... just doing tons of stuff,  now I'm concerned I could screw up my port.   Just last week my chemo nurse remarked about how well placed and invisible my port is compared to others .... it's playing nice and I want to keep it that way.      Hope they get your hubbies port situation fixed soon.  

annalexandria's picture
annalexandria
Posts: 2322
Joined: Oct 2011

Your poor DH!  He (and you) must be so sick of all of this.  Big hugs coming your way~AA

janderson1964's picture
janderson1964
Posts: 1828
Joined: Oct 2011

That is terrible. I am so sorry for what you and your husband have been going through lately.

jen2012
Posts: 1252
Joined: Aug 2012

Sorry Wolfen and hubby.  I hope things get easier/better very soon!

wolfen's picture
wolfen
Posts: 1209
Joined: Apr 2009

Heck, probably the most strenous thing he does is take a shower. Even that runs him out of breath.

No blood thinners either. Even though heart doc would like for him to be, rad & chemo docs say "No" for now.

I thought it looked swollen, as does the area where the heart device is implanted(no problem with that one), but I just thought it was because he's lost so much weight and muscle mass. Maybe that migration problem just isn't known until you try to use it.

Oh well, just another boulder in the road.

Luv,

Wolfen

Chelsea71
Posts: 1170
Joined: Sep 2012

Your luck has got to turn around soon. Sorry you're dealing with all these problems. Wish things were easier for you both.

Chelsea

Trubrit's picture
Trubrit
Posts: 1702
Joined: Jan 2013

My goodnesss! You are an inspiration to us all.  I am already sick of Chemo, and this is my first (and hopefully, only) run in, and I can't bare the thoguht of going through it again. 

You deserve a reward. I think that reward should be a long and (fairly) healthy life, your husband by your side. 

Thank you for being an inspiration. 

 

AnnLouise's picture
AnnLouise
Posts: 276
Joined: Mar 2013

I hope everything goes well on Thursday and your hubby can have chemo on Monday. I went through a time when I lost 40lbs. and had no muscle tone. It hit me when you said the most strenuous thing he does is shower.....that was me. I ate everything I wanted, healthy or not, milkshakes, cookies, pasta, bread,etc. also protein shakes and my daughter would juice for me. I also went to physical therapy, started slow, worked my way up slowly, very slowly! It gave me some muscle tone, so I wouldn't fall, or tip. My son was getting married in 7 weeks, and I not only went to the wedding but danced with my son. Gained 20 lbs. in 7 weeks! It is so hard once you get that weak.....I feel so bad that your hubby is having so many problems and only wish him the best. You are such an inspiration to all of us.  Sending positive thoughts...~ Ann

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

to hear about the port. my surg. stitched my port in place to prevent it from dislodging. praying surgery goes good

hugs

judy

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

So sorry to hear this.  Hope his port gets fixed and he can start his chemo soon.  Hugs and prayers to you both.

Cynthia

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