Mar 23, 2013 - 2:24 am
I am going to lay it out here and you tell me your honest thoughts because I feel like I am going crazy... I am a 33 yr old mom of 4 kids, my health has deteriorated over the last few years with wierd issues lol. And I can not find a smart dr in the town I am in :( issues below.
1999- .05 progestrone levels (said I didn't make progestrone on my own)
several miscarriages along the way, polycystic ovarian syndrome, endometriosis and hypoglycemia
2001-2006 seriously jacked up cycles: a month long or miss a month entirely or two, painful cycles all the time
2000, 01 & 03- Csections, underarm lympnodes swell all the time and frequent cysts or tumors in r. breast
2007- partial hysterectomy left ovaries & tubes (even though my ovaries are cystic all the time)
2010-reoccuring infection w/o ulcers of H. Pylori, pain in pelvic area, gallbladder removed due to large polyp, liver swelling (especially if I have alcohol), breast pain, leaking nipples mamograms ect, to be told its fibrocystic breast disease and not to worry about it.
2011-pain persistant still in pelvic area, bloating, dumping syndrome sporadically, painful sex, weight gain *not the healthiest of eaters and love soda*, more breast pain and negative tests, had a pelvic ultr. that showed r ovary to be larger and cystic. laproscopic procedure to remove adhesions and noted r solid mass on ovary & l ovary stapled to the wall. Dr still felt need to leave them said not to worry as I wasn't a smoker or drinker just overweight. :( Anemic not iron defficient *whole red blood cells only *
2012- pain more frequent in pelvic area, painful sex, very dry vagina, hot flashes (menopause?) breast pain and lymph glands still swelling, now swelling in feet and legs very bad pitting edema, random pain behind r. knee with a little knot, achey body ie: joints bones everything lol. 08/26 went to er for Heart Attack long story but suggest congestive heart failure because there was a High D dimer test and Ischemia. TIRED ALL THE DANG TIME, itchy skin.. Anemia. And random masses on rib cage and a spot that is very tender feels like it could be a cyst on liver maybe.
2013-Dry vagina, painful swelling of vulva, itchy, bleeding from urethra upon wiping if we have sex it hurts and or I am raw for days even w/ lube. TIREDDDDDDDD, sit down fall asleep. Sick to stomach full even when I don't eat alot, peeing all the time(thought uti, bladder or kidney, yeast or vaginosis but neg tests) and the craziest issue is my bm when I eat I have a sudden pain like my stomach might explode from pressure. Pain doubles me over and when I go to the bathroom it hurts in my pelvic area especially on the right side. But weight gain even though I can't hold alot down. Pain and tenderness in bladder upon pelvic exam, bruising and leg pain in right leg only like it goes to sleep or just hurts like hell....
Now... I have been tested for everything from : lupus, RA to Thyroid to ulcers and gerd & fibromyalgia, breast cancer in '12 only by ultrasound & mammogram.... everythings negative.
tests: alkaline phosphatase is high a few others show up from time to time. Just recently had a UA for the pain in bladder and it was neg. My CA 125 was 7.7 and the dr said "all your blood work looks fine" but my BODY SAYS OTHER WISE!!! :( Please help me