Mar 23, 2013 - 12:39 am
We saw the Surgical Onc today so stitches at the G-tube could be removed. I brought up the subject of "swallowing" exercises to determine when he felt the appropriate time for starting these would be. He asked if we had seen the Speech Therapist yet. No, not yet. So an appt. will be scheduled with her. I guess she is also the "swallowing technician" whom I remember meeting about 3 months ago during the first visit to the Surgical Onc. She felt his throat and said he had good swallowing and that was it.
That's not what I'm confused about. I also asked if the tentative plan of chemo, radiation, and possible surgery was still in place. The onc said probably no surgery because with throat cancer, they have discovered chemo and radiation only is better option, but with H&N, surgery is the better option. Evidently during subsequent scan, it has been determined that his primary is throat cancer, not BOT. The BOT is evidently a met as is the nasopharyngeal and lymph nodes. This scan was done back in January and this is the first we have heard of throat cancer. I would have appreciated being told about it. This does not sound good. Or am I misunderstanding?
Hubby is depressed enough and sick most of the time, especially with all the krap he's been through. He is more upset with me, than appreciative, when I try to get info. from the docs. I'm sorry, but someone has to ask these questions. I'm thinking of talking to the Clinical Navigator and perhaps she can help me with a better understanding of where all this is going exactly.
If anybody has any thoughts on this "new" diagnosis, I would love to hear them.