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Speech Therapy UPDATE!

rachel12yrsuv's picture
rachel12yrsuv
Posts: 429
Joined: Feb 2013

Hello my friends,

I am so excited to tell you all that at me swallow study today, I DID NOT ASPIRIATE anything! I closed my wind pupe, my muscles all worked and moved up. I still have a very slow swallow, so still keeping peg and no food or liquids yet, more therapy and exercising needed to strengthen my swallow. But there is a very bright light now at the end of my tunnel and irs FOOD AND WATER! So that steep mountain wanted to keep this Irish girl down, but by the Grace of God I am sitting pretty at the 3rd rest station!

Thank you everyone for believing in me and praying for me, keep it up its working!

Love to alll,

Rachel

Ingrid K's picture
Ingrid K
Posts: 810
Joined: Mar 2011

good news for sure.

Did you actually swallow water ?  if so, that's great as water is the hardest liquid to swallow.

So keep up the good work....do all your exercises..... and you will be graduating to liquids and soft foods before you know it.

rachel12yrsuv's picture
rachel12yrsuv
Posts: 429
Joined: Feb 2013

Ingrid,

NO, they wouldn't let me, only let me gargle with water and spit out. Maybe next time, I think they want to do Vitalstem therapy to stregthen, we'll see when she calls.

So happy!

Rachel

longtermsurvivor's picture
longtermsurvivor
Posts: 1755
Joined: Mar 2010

hard to, er, swallowLaughing

 

best to you

 

Pat

lorig01
Posts: 66
Joined: Jul 2012

HI. I have been following your trials and have been praying for you.  This is wonderful news.  Keep up the great work!

fishmanpa's picture
fishmanpa
Posts: 1098
Joined: Jan 2013

Well check that out!

That mountain seems to have moved a bit! That's great news Rachel. Keep up the good work and God will do the rest :)

"T"

 

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

It's so funny that only your friends on here can fully appreciate this!
I'm happy for you, it really is a huge step. I'm just slightly ahead of you in this swallowing process. Most things are easier for me than directly after treatment but some things are still a bit tough. Saw my ENT/surgeon yesterday and we are possibly looking at dilation if I can't get over this hump with the exercises alone.
Keep on sea ling my friend......
Billie

debbiejeanne's picture
debbiejeanne
Posts: 2230
Joined: Jan 2010

Rachel, so glad to hear your good news.  it will continue to get better.  i've had my throat dilated several times and it does help.  keep up the good work.

God bless,

deb

rachel12yrsuv's picture
rachel12yrsuv
Posts: 429
Joined: Feb 2013

Thanks Pat, Lori, T,Billie, and Deb,

When I found out I wanted to tell those close to me of course, then I couldn't wait to tell me family on CSN, I knew you were all praying, I knew others where in my boat and wanted to give them hope. I also wanted a little feel good for my buddies going through tx now, T! So many positive caring people on here, you don't have to be battle the beast directly, you could be like me and battling the aftermath, it doesn't matter we are here because we fight to survive and help each other out.

You are all the best people I never met!

Love to all my brothers and sisters,

Rachel
Praise God!

hwt's picture
hwt
Posts: 1824
Joined: Jun 2012

Pleased to hear your progress...that is a huge step! Keep the good news coming.

Candi

rachel12yrsuv's picture
rachel12yrsuv
Posts: 429
Joined: Feb 2013

Candi,

Trust me rather share good than bad, so anytime I can I will! I don't want another survivor to get to this point,
EXERCISE, EXERCISE, DRINK FLUIDS, DRINK FLUIDS AND EXERCISE SOME MORE....AND MOST IMPORTANTLY THANK GOD FOR BEING A SURVIVOR!

Your Friend,

Rachel

fisrpotpe's picture
fisrpotpe
Posts: 1317
Joined: Aug 2010

lots of baby steps and your doing so good with them! such great news

keep up the hard work

john 

Grandmax4's picture
Grandmax4
Posts: 577
Joined: Dec 2011

I also had asperation pneumonia after having my epiglottis removed..I was so scared I never was going to learn to swallow correctly. The exercises and the fact that I don't have to tuck my chin have brought me to the point I no longer even have to concentrate on what I'm doing, it's just become a part of the "new me". I do the exercises still and probably always will...Blessings to you...mmmmmmmmeeeeeeeeeeeeeeeee! 

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

YAY !!!!!!!!!!!!!!!!  I am so happy for you !That is wonderful news ! I was feeling so bad for you . I was thinking you would never be able to eat again and know how I would hate that !!! Keep up the good work!

Peggy

peggylulu's picture
peggylulu
Posts: 367
Joined: Dec 2012

YAY !!!!!!!!!!!!!!!!  I am so happy for you !That is wonderful news ! I was feeling so bad for you . I was thinking you would never be able to eat again and know how I would hate that !!! Keep up the good work!

Peggy

Guess I got to excited and posted twice Lol

George_Baltimore's picture
George_Baltimore
Posts: 303
Joined: Jun 2009

It's news like that that keep me from giving up.

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

It's amazing how many things we take for granted. But each little victory is MAJOR. Your success boosts all of our spirits. Rick.

patricke's picture
patricke
Posts: 422
Joined: Aug 2006

Congratulations Rachel, that's great news!  Pretty soon you'll be measuring your progress one sip at a time.  Keep it movin forward!

PATRICK

rachel12yrsuv's picture
rachel12yrsuv
Posts: 429
Joined: Feb 2013

John,Peggy,George,Grandma, tobegolden and Patrick Thank you so much. Thanks for praying, still need them. All the encouragement I get here I couldn't express with words! I will keep fighting, sooooo looking forward to those sips, the no fluids NO salvia(mine didn't come back like a lot of you, what did come back is very thick and not at all refreshing so I would give anything for a drink! Soon, soon! Love, Rachel

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