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Game on!

CypressCynthia's picture
CypressCynthia
Posts: 4015
Joined: Oct 2009

Spoke with oncologist today. We are changing to aromasin and afinitor immediately. Liver biopsy is ordered. I see onc on Tuesday. Putting on my boxing gloves and preparing to fight!!!  Will let everyone know what onc says Tuesday. I'm at work tonight and typing on my phone. Big pain... Lol. 

New Flower
Posts: 4099
Joined: Aug 2009

I am glad to see you in a good spirit. Target therapy like Afinitor sounds very promissing .  Good luck with discussion on Tuesday. Please keep an open mind if your oncologist will propose a cytotoxic chemo. because I failed on anti-estrogen therapy and my progression was very agressive like explosion, my oncologist decided to put me cytotoxic chemo (Xeloda) as a first line of treatment.   It did work for me.

As far as biopcy, please make sure it will be tested for Her2 positive mutation. I think for Afinitor they recommend to do base line Glucose (blood and urine) and enzymes.

Good luck and please know that we are here for you and with you athrough all the steps in this fight. Your journey complete victory has been started!!!!

New Flower 

CypressCynthia's picture
CypressCynthia
Posts: 4015
Joined: Oct 2009

Thanks New Flower.  It has not escaped my attention that you have a wealth of knowledge!  And thank you so much for saying something positive about chemo as I have been absolutely dreading it.  It is too early to say if he will recommend chemo, but I have had a feeling that he might.  It is as if you read my mind and gave me kind words to hold on to.  Bless you!

camul's picture
camul
Posts: 2121
Joined: Dec 2010

or still.  Just saw the first post.  Your onco is on top of it all.  Will wait patiently with you til Tuesday.  Always wishing you the best.

Hugs and prayers,

Carol

CypressCynthia's picture
CypressCynthia
Posts: 4015
Joined: Oct 2009

Thanks Carol.  I gave myself a night of bawling like a baby, but now I am po'd and ready to fight.  I so hate this disease.

camul's picture
camul
Posts: 2121
Joined: Dec 2010

I became complacent for a while when I was just trucking along, then everything changed and the beast was staring me down again.  It brought the reality and the severity of this disease home again.   I was so angry that none of the chemos put me to ned or even stable, then, knowing herceptin was what we all believe has worked the best at slowing the progression was no longer an option because my 'insurance said so', was a huge blow that I cried for 2 days, then had a puffy face and headache from crying.  So enough of that, now it is listening to my body, sleeping when I need to, eating healthier and live, live, live.... (as soon as I get the energy to get up!  Chemo is kicking my but!) lol

Josie21
Posts: 359
Joined: Nov 2012

I just wanted to let you know that I am so amazed by your strength.  I have no  doubt that you are going to fight.  If I were any one of those 231 I would be scared already!!   You can do this!!!

disneyfan2008
Posts: 5490
Joined: Oct 2010

Thinking of you..

 

Denise

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

coming your way, Eileen.  Let's hope whatever this new treatment is, it kicks the butt of that cancer right back into submission and stability.  We're with you all the way.  Keep those gloves on.

 

Hugs, Renee

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

You are one tough cookie, CC. xoxoxo Lynn

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

That Affinitor did a real good job for me! I hope it does for you as well! I had been on Faslodex and had a rapid progression but the Afiinitor/Exemestane combo put a halt to that!

It did spike my blood sugar and that was a mess but my CA15-3 numbers went from doubling every month to almost stable.

 

VickiSam's picture
VickiSam
Posts: 8421
Joined: Aug 2009

I so admire your Strength, and Attitude - Continue the fight, dear Sister.

 

Vicki Sam

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