Mar 15, 2013 - 5:16 pm
Im staying, some people and their comments/emails/messages have convinced me to stay, but there is another reason, I really believe I have brought some info. here that will help people with CRC I can think of at least 3 posts that should have got far more attention than they did.
Also my mother did die from bowel cancer, she went from constipation to coma in 24 hours, I was devestated by her death, even suicidal, my wife saw how hurt I was and thought having a child would bring me back, she was right but now that child has brain cancer. My mother was only 59.
My son is the reason why Im here, this board has some great researchers, maybe Im grasping at rainbows but when you run out of options rainbows seem attractive. Our brain tumour board is a very different place, maybe it's the most depressing place on the internet, seriously...
Pete's crazy experiment with Gc-maf brought me here and I got stuck. I actually do care about people here and really want to help. I don't ever go looking for stuff on CRC, anything I find is because of brain cancer and sometimes there is a connection.
Recently Pete has said some things that I and others find offensive, the 'sheep' comment in particular, Im not going to defend Pete or the threads he starts he's an adult and can do as he chooses. I do think Pete feels a bit 'sheepish' about the things he said. Maybe...
Now at the minute there are a few threads up that read like train wrecks and Im embarrased that Im on them, I really didn't come here to offend anyone, but people have been offended, apollogies to those concerned.
Now about me, Im researching now pretty much full time, I have a small internet business that generates a small income that allows me to read and read and read.
I sometimes do 18 hours a day depending how 'interesting' the find is. Yes Im obsessed.
There is so much information that everytime I think it's exausted some new doorway opens, some of those doors I have found here.
Also when I post something here I don't do it lightly, everthing I have posted has been checked to the best of my ability which brings me to the "ketogenic diet" post which kind of started the recent animosity.
I believe Im the only one here that's done it, I did it to support my son, I wished we hadn't, I think it grew his tumour.
This diet is a treatment for epilepsy and has cured some kids that were not responding to meds. it was tried with kids who had terminal brain tumours, one of them is still alive and on it 12 years later.
We had the FULL backing of our hospital and their nutrition team, it's NOT a lifestyle diet, it has since been tried on advanced cancer patients with some success but nothing amazing.
This diet targets the glucose metabolic path, it also sounds really unhealthy, BUT I felt VERY good on it.
Before I started I found Innuit people used to have a very high fat/low carb diet which is very similar. They lived like that for thousands of years.
I also believe if you do a diet like this and mentally suffer from missing all the sweet stuff it probably will do you more harm than good.
Afterwards I discovered the diabetic drug Metformin was a better option to target the same thing.
I hope I have cleared some misconceptions up about this 'diet' if you disagree with any part of it that is your opinion but there is a lot of peer reviewed evidence behind it.
Now at the moment my son is doing a very experimental DC vaccine treatment using immune cells from me injected back into him with his tumour cells. It's so new it made the TV news here, I will try to get some subtitles on it and upload for you to see. (if I can figure out how)
Israel does have some cutting edge scientists and doctors and in a way it's 'lucky' we are here.
We live on the border with Syria and we do hear the war there occasionally, stray shells have landed not far from us but cancer worries me far more than war.
Israel is one of the craziest places on the planet, and it's another (sad) story how we left our farm in Andalucia and ended up here.
Today has been an emotional day, some things people have said brought me to tears, Im on the edge like a lot of you are too.
Lets try not to fight, life's too short, a cliche but sadly true.