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Started Taxol

Snowkitty's picture
Snowkitty
Posts: 295
Joined: Jun 2010

This past Tuesday, I started the first of 4 taxols.  Was tired after, but couldn't sleep even with sleeping pills.  But yesterday, I started to feel like I was hit by a Mac truck.  It's hard to take a deep breath in. I'm trying the tylenol first, if that doesn't work, will do Ibprophen.  Then on to Vicodin.

Are these side effects cumultive?

Thanks, Cindy

 

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Cindy, I wish I could give you some advice, but, I didn't have chemo as part of my treatment.  I know the pinks sisters that have had taxol as part of theirs will respond to you.

I hope that you start to feel better very soon.

Gentle hugs,

Noel

jamiegww's picture
jamiegww
Posts: 384
Joined: Dec 2009

.......because we are all different.  I don't remember having too much trouble with Taxol other than really bad bone pain.  I suggest you contact your onc and let them know what is going on.  They probably know exactly how to help you and that's what they are there for.  I hope you get some relief soon.

HUGS!!!

Jamie

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Please let your onco know any and all side effects that you have.  There are so many drugs out there to help you.  You shouldn't have to suffer at all Cindy.

Keep posting so we know how you are.

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

You feeling any better?  Thinking of you!

Snowkitty's picture
Snowkitty
Posts: 295
Joined: Jun 2010

Ibprophen seemed to work.  Legs still hurt this morning, but can breath without hurting. It's gonna be a great day.

Take care, Cindy

SK12
Posts: 14
Joined: Mar 2013

Hey Cindy.  Finished three rounds Last month. Still waiting for the pains to go away, sometimes praying. It started with slight discomfort, what I call "itchy restless bones", to "I don't want to get out of bed" pain. You know what I am talking about. Still, dealing with multiple pains, but it is getting better. I dreaded the last visit. we are still trying to determine if it is all chemo related, tomixafen related, or a combination.  As bad as I felt, I realized that there was another older lady getting double the dosage I was receiving and every week. I went every three weeks. I kept reminding myself, my cancer cells are dying and if she could do the therapy with a smile, I needed to suck it up and get over it. 

What helped me: Tylenol, leg elevation, gentle massages by my partner, knowing that it would soon be over. Having a partner that is patient and adoring was crucial for me. Cuddling was just as important as being left alone. ;)

good luck. Hope this helps

SK

VickiSam's picture
VickiSam
Posts: 8255
Joined: Aug 2009

This is what helped me .... with my Taxotere/Taxol, Carboplatin and Herceptin --

Please don't allow this anxiety to get the best of you. ** Remember to alert your Onco RN of any unusual
feelings etc .. a list of possible side efforts, which should be presented to
you before your first chemo infusion.
 
It is so important to remain and continue hydration, water - water, and more
water.  Splash in a little lemonade, cranberry juice -- or prepackaged crystal
light, or Lipton Tea.  Herbal Tea's also work for a change of pace.

If you are getting the neulasta shot -- Please ask your Oncologist about taking
a benadryl -- or claritin -- which many of us === swear by -- as they help alleviate that
'just run over by a truck' aches and pains - some of us experience from the
neulasta shot.

Ask for prescriptions for nausea and vomiting -- as well as diarrhea.  Ginger is very good for settling the stomach.

Plastic silverware is a must ---

biotin toothpaste and mouthwash is a daily essential
(available at most Target's or Wall-Mart's)

Food is subjective -- depending on your personal needs and taste buds .. What
taste good or was tolerable 1 week -- changed for me, the very next. I could not
tolerate any foods with sugar, i.e. ketchup, or cola's.

To help prevent mouth sores -- suck on ice chips during all chemo treatments.

Rest when you can, as some chemo queens have bouts of insomnia ---

Take goodies to entertain yourself during your infusions -- games, books,
friend, a snack, IPOD, laptop ...

Strength, Courage and Hope.

Vicki Sam 

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I'm so sorry that you're suffering with chemo.  I never had it, so, I can't even begin to understand how awful it must be.

Looks like the ones that have, are helping you out.

Try, if you can, to focus on the end.  You will get there and then we'll all party with you!

survivorbc09
Posts: 4378
Joined: Jun 2009

Vicki Sam gave really good tips to you.  Feel really bad that you are suffering like this.  Just wish you were already done, but, soon you will be and then you'll be feeling much better.

Very gentle hugs,

jan

SIROD's picture
SIROD
Posts: 2131
Joined: Jun 2010

Hi Cindy,

I began Taxol on 2/27 and will have #4 on Wednesday.  I don't have pain but big time Fatigue and have been running a temperature.  I also take Methotrexate (chemo drug) for an eye condition so that is probably why my blood values are low.

I can see it hits us all different.  This is my first chemo in 18 years.  I ended the first chemo on March 17th, 1995.  It's all new again.   I did call my oncologist nurse when my temperature was rising.  Call your oncologist nurse about your leg pain.  

They gave me a prescription for Lorazeparm and that usually knocks me out, it is for nausea.  Acts like a sleeping pill for me.

Doris

SK12
Posts: 14
Joined: Mar 2013

Doris, your fever concerns me. Have you called your doc?  I am going through hot flashes. 

Vicky, thanks for your post. Just started laughing. Yes, I am the insomniac. Used to be able to sleep 7-8 hrs a night without even movin the sheets. Take the benydrl at night to sleep. Puts me out about four hours. If I drink any more water, I will float away. Lived on tofu and ginger tea during chemo, on and off.  You know, when I could tolerate it. Just read some research about not having ginger or any soy products during radiation. I am also baffled by the milk controversy. Whole, fat free, lactose free. Suppose to drink whole milk for protein, but like soy promotes estrogen levels. care to share your wisdom?  

BTW happy st. Patty's day. First alcohol free St Patty day ever...

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

I am so glad you're feeling better Cindy.  How many more treatments do you have?

Hugs, Debby

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

How you doing Cindy?  You haven't posted in a few days.

Lex

dthompson's picture
dthompson
Posts: 149
Joined: Nov 2012

Hi Cindy,

My wife did 4 treatments of taxol and had extream pain in her bones and muscles, one thing that really seemed to help her was to take a 24hr Claritin tablet the day before, the day of and for the  two days after taxol. She forgot totake her claritin one time and said the pain was much worse than when she did take it. Unfortunatily the pain did get worse with each treatment. Have you considered taking the lower doses of taxol over a longer time? My wife's Onc offered her 12 rounds of taxol, one a week at a much lower dose and said the pain would be much less. She decided not to do this as she just wanted to get the treatments over with. Hang in there we will all be thinking and praying for you.

 

Dennis 

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Hoping that the weekend was better for you Cindy!

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Gentle hugs and positive thoughts!

Snowkitty's picture
Snowkitty
Posts: 295
Joined: Jun 2010

I also want to get this crap over with. Thanks for the advise on Claritin.  I will try that.

 

Cindy

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

I hope the Claritin helps you Cindy.  Let us know!

Gentle hugs, Debby

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Thinking of you Cindy!

McMarty's picture
McMarty
Posts: 200
Joined: Nov 2012

For me the first round went EXACTLY as you described and NO it was not cumulative!  I just hand my 9th Taxol and it was NEVER like the first time again.

It was SUPER hard to drag myself in for the second round but after the second round - nothing happened. 

 

Pink Rose
Posts: 495
Joined: Nov 2012

Hope you're better!

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

You're in my prayers Cindy!

survivorbc09
Posts: 4378
Joined: Jun 2009

Check in with us again Cindy when  you're feeling like it.  You're having such a hard time that it is worrying us.

Jan

Snowkitty's picture
Snowkitty
Posts: 295
Joined: Jun 2010

I am going to try this once more.  If it is too bad, I can do the rest in 6 weekly doses.

Onc gave me vicodin and said if pain gets really intollerable (where it hurts too much hard to take a full breath, again) to go to the ER and ask for morphine.  I said they're going to think I'm a druggie.  She said not to worry about that & put that note in my medical records.

Thanks for all your good wishes.

Cindy

 

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

So sorry Cindy.  Please do go to the ER and get the morphine if it gets too bad.  And, keep posting to let us know how you are feeling.

Hugs to you today,

Diane

survivorbc09
Posts: 4378
Joined: Jun 2009

Thinking of you and wondering how you are now.  Post an update Cindy when you can.

Hugs, Jan

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

How are you Cindy?  I keep looking for an update. 

 

Lex

Snowkitty's picture
Snowkitty
Posts: 295
Joined: Jun 2010

So, I was thinking of giving up on the 4 rounds of taxol, opting for the 12 once-a-week treatments instead.  The last chemo nurse talked me into trying it once more.  She said to try for 2-3 liters of liquid a day.  I always thought I drank alot, but never that much.  That's what I did, and it worked!  My legs ached a bit, but not nearly as bad as last time.

The onco people always said to drink alot, but no one ever gave me a target.  So, I know I can handle this now.

Thanks for all your support.

Cindy

 

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Cindy, I am glad you found that by drinking more water that it helped you to get thru your chemo.  You can handle it!  You're a fighter, a survivor and you've got everyone cheering you on! 

Thanks for updating us!

Hugs, Lex

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I am glad the nurse talked you into continuing Cindy and that it worked out for you.  You have 2 more to go? 

Hugs, Noel

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

I know I've always read on here about how important it is to drink LOTS of water during chemo.  I didn't realize myself that you should drink as much as you were told.  Glad you found that out and that it is helping.

Soon we will be celebrating the end of chemo for you.

 

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Great news Cindy that you're feeling better! 

Hugs, Leeza

dthompson's picture
dthompson
Posts: 149
Joined: Nov 2012

Make sure to drink soemthing that has nutrition in it as well (gatoraide, O.J. apple juice etc) as drinking too much water can flush too many electrolytes out of your system and increase the effects of chemo. Our Onc recommended for every two glasses of water drink one glass of a sports drink or 100% fruit juice. God Bless.

 

Dennis

burcu123
Posts: 70
Joined: Jan 2013

One of the most common and annoying side effects of Taxol is neuropathy. trought other breast cancer survivors I learned a medication called MetaNX. I took it while I am taking Taxol and Ihave not had the slightest of neuropathy. It is a strengthenned form of folic acid , b6 and B12 vitamins, you take 1 tablet twice a day. I started one week before starting tAxol and continued one month after I stopped.

It has no side effects it is active form of above mentioned vitamins. Most insurance companies will not pay for it as it is vitamin supplement. Approximately costs $50/month. It prevents neuropathy. All other medications they may give you after you develop neuropathy just numbs the nerves so you do not feel pain. Also tehy have many side effects.

 

I will highly recommend you talk with your oncologist and ask for a prescribtion for MetaNX.

It worked for me and several others , not a hint of neuropathy which is rare with Taxol

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Checking in on you Cindy.  How are you feeling?

Leeza

Pink Rose
Posts: 495
Joined: Nov 2012

Starting to worry some.  You ok Cindy?  

 

Hugs, Rose

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

One to go!  You've had such a terrible time with chemo, but, now it will soon end.  Want to thank you for keeping us informed Cindy and will be so happy for you when you have the final chemo.

Lots of hugs and prayers,

Debby

desertgirl947's picture
desertgirl947
Posts: 423
Joined: Oct 2012

I did four rounds of taxol last June/July.  The thing I had the most problem with was taking deep breaths.  After the second and third rounds I had short bouts of challenges for two days or so a few days before the next round.  I would get to coughing, which was challenging because of my breathing issues.  (I had clear lungs.)

My onc had me take an OTC allergy pill , and that helped within less than 24 hours.  The second time I had problems, he had me switch to a different allergy pill plus take musinex and one benadryl (nightly -- to be sure I got to sleep, I think).  Again, I was feeling much better within about 24 hours.  The next time this could have happened, it didn't.  I had decided to be pro-active with the allergy pills because my husband and I were out of town on a mini-vacation.  [I had finished chemo about 10 days earlier.]  I had no more problems with nasty coughing.

The pesky cough I had all the while I was doing taxol disappeared within two weeks or so of my finishing the taxol.

Although I had discomfort in my hips/legs for a few days the same week I'd have the chemo, my med people thought it had more to do with my shot (Neulasta).  Interestingly, I did not have to take the shot the day after chemo the last time I did chemo.  I did not have that discomfort that week.  So, I don't know quite what to say about the bone pain.

I did have a reaction to my taxol treatments the final two rounds.  But both times we were able to resume the taxol the same day and I did not have to delay or change my treatment.  I had really wanted to finish on schedule -- I did.

As others have said, we can share our experiences; but we are individuals who may have the same disease and treatment yet react differently.  I found that I rarely matched up with anyone else I knew (pre-boards), but I was glad to have the input to give me some idea of what I might be able to expect.

Best wishes for you.

e

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I'm thinking of you and sending more hugs and prayers.

Lex

Snowkitty's picture
Snowkitty
Posts: 295
Joined: Jun 2010

Have some leg pain, but nothing that a couple vicodin can't take care of. For neuropathy, I'm taking Vit B-6 & neurontin, which hasn't helped yet.  Does neuropathy go away, or have any of you had it stay well past chemo.

As far as hydration goes, can't yet do water.  Pineapple juice, fruit punch, gatoraide, flavored ice tea and lemonaide.

Onco nurse told me 2-3 liters a day; that's the ticket.  Think I'm gonna start wearing a diaper, though (jk).

Thanks for your good thoughts,

Cindy

kmenurse's picture
kmenurse
Posts: 223
Joined: Apr 2013

I'm not much for plain water either... I like the Crystal Light flavors though... maybe you could try those.  Hang in there, stay strong... God Bless!... Kathy

 

Photo: I love this!!!!!<br />
http://tinyurl.com/a775x2s

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Cindy, I can't wait for you to come on and say that you have had your last chemo.  We can all celebrate with you!

I didn't take chemo, so, I don't know anything about neuropathy.  I sure hope it goes away for you when you're done.

Thanks for the update!

Hugs, Diane

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Hi Cindy!  Just adding more hugs and support for you!

Leeza

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

You're always in my thoughts and prayers.  Thanks for updating us and please keep them coming. 

Gentle hugs to you,

Lex

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Praying and supporting you always Cindy!

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I have always drank a lot of water, but, I am not sure I even drink that much.  It's good that even if you can't drink water, you can drink something else.

I always check on here for an update from you.  Just want you to know that we are always concerned about you.

Hugs, Angie

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Good thoughts for you today and lots of cyber hugs!  When is your last chemo Cindy?

 

Snowkitty's picture
Snowkitty
Posts: 295
Joined: Jun 2010

Supposed to see the surgeon tomorrow.  I will see if his plan agrees with my plan.  

Drinking like a fish as the side effects from Taxol are cumultive.  But no more of that crap.  Happy Days.

Cindy

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Congrats Cindy on finishing taxol!  Good luck at the surgeon's.  Post to update us about that appointment.

Congrats again,

Angie

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