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How to access Facebook Group

betsi7
Posts: 22
Joined: Jun 2012

I was wondering if anyone could tell me how to join the EC Facebook Group.  Also wondering if anyone had heard an update on Dave (BermudaGirl was Discusssion Board Name) who had a difficult post esophagectomy.  I often think about them and wonder if he has fully recovered. Betsy

paul61's picture
paul61
Posts: 1105
Joined: Apr 2010

You can be added to the CSN esophageal cancer Facebook group by anyone who is currently in the group. If you send me your Facebook profile name I will send you a friend request and once accepted I can add you. Of, you can send me a friend request at Paul D. Adams and ask to be added.

Dave had some real challenges after his surgery and as a result he was in the hospital for many weeks. His surgery was not completed because they had to give him time to recover from the last surgery. He is currently recovering and is scheduled for surgery on April 1st hopefully to use a portion of his colon to complete the esophagectomy this time. The good news is his current scans show him as NED at this time so he has had an excellent response to chemotherapy and radiation therapy. We are all praying this surgery will work better than the last.

Best Regards,

Paul Adams

McCormick, South Carolina

DX 10/2009 T2N1M0  Stage IIB - Ivor Lewis Surgery  12/3/2009 - Post Surgery Chemotherapy 2/2009 – 6/2009

Cisplatin, Epirubicin, 5 FU - Three Year Survivor

Theresa4Dad's picture
Theresa4Dad
Posts: 20
Joined: Mar 2013

Hi Paul,

First, I would like to thank you for all the information you provide. I have read many of your posts prior to joining and they have giving me great insight aobut my dad's situation. I would like to also say I am encouraged by your support and your survivorship. Keep on truckin! Smile

Secondly, I would also like to join the Facebook group. Could you tell me the name of it so I can search for it? I tried myself to no avail. 

Thank you!

Theresa

paul61's picture
paul61
Posts: 1105
Joined: Apr 2010

Theresa,

Here is the web address for the CSN Esophageal Cancer Facegroup group:

https://www.facebook.com/groups/140991832678744/

 

The group is listed as CSN Esophageal Cancer Group.

 

If you send a “friend” request to any member of the group we will add you.

Best Regards,

Paul Adams

McCormick, South Carolina

DX 10/2009 T2N1M0  Stage IIB - Ivor Lewis Surgery  12/3/2009 - Post Surgery Chemotherapy 2/2009 – 6/2009

Cisplatin, Epirubicin, 5 FU - Three Year Survivor

 

Theresa4Dad's picture
Theresa4Dad
Posts: 20
Joined: Mar 2013

Thank you so much Paul! I will head there now before I sign off for the night.

queen3rjd's picture
queen3rjd
Posts: 5
Joined: Apr 2012

Hi Paul,

i just sent you a friend request on FB so that I can join the csn FB page.

Thank you,

Jana Queen

WifeOfSurvivor2Be
Posts: 23
Joined: Aug 2012

Thank you for asking about Dave.  I also check on here often to see how he is doing.  My husband has also had a rough time after surgery.  He had his esophagectomy Dec 11 and has had many complications since.  He had respiratory failure 3 times which resulted in a traechetomy (hopefully temporary), he had a leak which took 3 procedures to fix, pnuemonia 3 times and the flu.  He just started eating a week ago and has also had significant weight loss.  Thankfully, he did respond well to chemo and radiation and there was no spread.  He was T3N0M0 prior to the surgery and after T2N0M0.....I am not clear if the tumor was just not as large as they thought or the chemo reduced the size.  Either way, the Dr. was pleased.  

I think I will try to join the group.  I don't love this site as much since they kicked off so many of the prior members. 

Amy

mruble's picture
mruble
Posts: 179
Joined: Jun 2011

If you'd like to send a friend request to Mary Lewis Ruble (St cloud, mn), I can get you added. Or, if you are already friends with Paul or someone else from here, they can add you, too.

 

Theresa4Dad's picture
Theresa4Dad
Posts: 20
Joined: Mar 2013

Hi Mary,

Thank you, I think I will do that!

tclem
Posts: 22
Joined: Nov 2011

Thank you.   I will do that now.

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