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"T" Day

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Well this is it kids!

The bags are packed and in about hour we'll be on our way. Simulation today, 1st RT tomorrow and Friday then home for the weekend. Chemo starts Monday.

I just want to say thank you for all the encouragement, positive vibes and prayers. The knowledge I've gained will help me immensely as I begin this new part of the journey. I'm as prepared as I'm going to be and I'm ready to step onto the battlefield. This first skirmish will be easy, just two days, but I'm well aware that I will suffer some wounds in the upcoming battles. I have full confidence in my Team and know they will look after me as the war becomes more intense. 

Thanks again for everything. 

"T"

Skiffin16's picture
Skiffin16
Posts: 8185
Joined: Sep 2009

Will take you far, I don't see it lessening....that's a good thing.

I'm sure you'll be ready for the week-end even though it's just a few short days look in to your future to come.

Onward and upward soldier...

JG

Ladylacy
Posts: 553
Joined: Apr 2012

Just remember everyone reacts differently to their treatment.  Keep up the good spirits because that really helps in the long run. 

 

Sharon

Duggie88's picture
Duggie88
Posts: 625
Joined: Feb 2010

T

The end result makes it all worthwhile. A year from now you can joke about it. A prayer for you as we all ride the storm with you.

A round of smoothies for everyone!!! A toast for "T"

      Jeff

Jennfer39's picture
Jennfer39
Posts: 22
Joined: Nov 2011

Fish,

I remember the first day of treatment. It took the longest month of my life,  to get prepared, and to get surgically equipped to fight.  Every day waiting was one too many, yet so necessary.

Watching the chemo drip into my body for the first time was nothing but pure optimism and joy for me.....the war had finally begun, and I was able to finally FIGHT.  I can so relate to your approach and mantra.

My thoughts are with you and those in the fight with you. 

One day at a time, one step at a time, one treatment at a time.

Can't wait to hear that another soldier has made it to the other side of treatment...and NED...>BELIEVING IT!

 

Jen

Jennfer39's picture
Jennfer39
Posts: 22
Joined: Nov 2011

 

 

 

Jennfer39's picture
Jennfer39
Posts: 22
Joined: Nov 2011

 

 

jcortney's picture
jcortney
Posts: 433
Joined: Sep 2012

Ok Brother, here you go.  You've heard all the horror stories but I'm here to tell you that it's not going to be that bad.  And, you'll be amazed at how fast it goes by.  These first couple of days will be nothing at all, excepting for just getting used to the routine.  Next week, adding the Chemo will give you something different but just remember the rules.  Stay hydrated, find out what thrush is and be medically prepared for it, take in enough calories and, most important, let the nurses know what you are feeling.  Notice I said the nurses.  The Doc's are great on how to treat you and get you cured, the nurses are great on how to get you over the humps.  Cultivate them as they are your ticket to an easier ride.

You are in my thoughts and prayers, live long and prosper :)

Joe

phrannie51's picture
phrannie51
Posts: 4004
Joined: Mar 2012

Your attitude and your preparations are going to make this an easier journey.....You've done your homework on what to expect during treatment, so nothing out there is going to take you by surprise.....

.....and yeah, we're going to ride this train with you....beginning to end....we'll be here.

p

rachel12yrsuv's picture
rachel12yrsuv
Posts: 435
Joined: Feb 2013

T,

God Bless and aslways keep that amazing spirit you have. Just fight onward through what ever hurdle treatment throughs at you. We all believe in you, Marsha believes in you and God believes in you!

Keep us informed, I will pray for your strength everyday, your one of the Good Ones, you'll do awesome!

All my best to you ad Marsha,

Rachel

CivilMatt's picture
CivilMatt
Posts: 3265
Joined: May 2012

T,

 

Your turn is here, I wish you the best of luck!

 

Stay positive, stay in the game, and prepare to meet Jack’s nemesis (radiation &chemo). 

 

You are ready!

 

Matt

ToBeGolden's picture
ToBeGolden
Posts: 696
Joined: Aug 2010

I found that the simulation takes much longer than the treatments. So once you get thru the simulation, the treatments will  be a breeze. Rick.

denistd's picture
denistd
Posts: 532
Joined: Apr 2009

Get that axe tuned up, turn the amp on full blast and get everybody listening. Hope everything goes harmoniously. Good luck Mark, Denis

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

What a day! I had left messages for the head of housing at JH on Monday and Tuesday to confirm everything as she said she would call us Monday to go over everything. She had talked to Marcia last week and it was all set for Hope Lodge. Well, I didn't get a call back which is unusual considering everything thus far at Johns Hopkins. I called around last night and was discouraged to find out nothing was available and I wasn't even in the database? Ok... no biggie, I'll talk to someone when I get there. So I figured worse case scenario we'd stay in a motel for a couple of nights, no biggie. About an hour out, I got a call from the hospitals' lodging and the girl says. "We have a suite reserved for you for the next 7 weeks at $60 a night" :-O   I was like WHAT??  Are you kidding? What happened to Hope Lodge? She didn't know anything about it. So I told her we were only staying two nights and $60 wasn't bad so let's do that until we figure out what's going on. No go... minimum 3 night stay... nevermind. 

We met with our social worker upon arriving and she tried to help. We left it at "Let me look into it and I'll call yu as soon as I know something or something opens up." It looked like the soonest we'd get in would be early next week. Anyway, I went to the simulation (You're right Rick, it took longer than the treatments will take.) I met my nurse and tech and I have a schedule... 12:20pm M-F except Mondays will be later after chemo. I met with the Resident Doc and he was great, answering questions I had. 

So we left in search of a motel. We were about 30 minutes from the hospital and reaching the preferred distance limit. It was going on 4pm. My phone rang and it was the coordinator of Hope Lodge asking if we had gotten a room yet. We hadn't. Unbelieveably, a room opened up! 

We're here! It's quite an impressive place. We have a "home away from home" for the next 7 weeks (free I might add!)  :)

"T"

jcortney's picture
jcortney
Posts: 433
Joined: Sep 2012

"We're here! It's quite an impressive place. We have a "home away from home" for the next 7 weeks (free I might add!)  :)"

You going to go home on weekends?  What a great deal and place, it'll sure take some of the anxiety out of treatment.  Somebody's looking out for you.

Keep the faith.

J.

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Yep... home for the weekends :) We were lucky enough to get someone to house/cat sit for Socrates Mon.-Thurs. She'll vacate on Friday and we'll be home by 4pm or so. 

It really is a nice place. Large, roomy, clean. There's a "den" with TV/Direct TV. A Great room with a HUGE flat screen (shame it's not football season), a huge 4 station kitchen, fridge and pantry space for everyone and a large dining area. A computer/library room, laundry facilities..everything. 

It's about a mile from the hospital so we'll be coming back down Sunday evening so we can relax and be close in the am. The great thing is we're close in case of any complications with side effects. 

It's funny you mention somebody looking out for us. I was told I would get a call around 2:30-3 about what they could do/expectations for an opening etc. It was close to 4 and the phone hadn't rang and I was a bit discouraged. Marcia, who is the ultimate optimist and full of faith was all over me for being negative. I explained I was being a realist not negatve. Let's expect they won't have a room, get a motel room and if something opens up, great! Well sure enough the phone rang a little after 4 and here we are. Yeah Joe... there are no coincidences, just His miracles without an autograph :)

"T"

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

T,

Dan and I stayed at Hope Lodge in Philly for 3 weeks in December, until the flu outbreak, then we had no choice but to go private and get a room as to not catch the flu. But it was great. You will find meeting others and hearing their stories and getting advice is great. And our rooms were big and it was in the burbs which was nice and being able to cook! We were able to save a lot of money.

Sorry you got re-routed - but nice that it all worked out.

Kari

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Kari,

You know then :) This place is definitely not in the burbs. We're in downtown Baltimore. It's a "questionable" area but we're not going to be walking the streets at night so no worries ;) They have masks all over the place just in case someone has the sniffles or worse. There are a couple folks staying here that have bone cancer so their immune systems are compromised. We were told to very careful about disinfecting and cleaning behind us as a precaution for them, ourselves and others. They're making dinner for everyone tomorrow night so it will be a good opportunity to meet others.

"T" 

Skiffin16's picture
Skiffin16
Posts: 8185
Joined: Sep 2009

That was just a drill....

They wanted to check your stress level right up front... You know, just in case you're an a-hole, LOL...

Since you didn't get phased, they said hmmmm, this guy is OK... We're gonna have to boot that other guy that's been a PITA for the last two days...

Ring, Ring, Wink, Wink, Nudge, Nudge.... "T, we have a room that just opened up...., are you available"?, LOL

Kick butt, but be cool..., or your room will suddenly become unavailable, LOL...

Best,

John

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

~LOL~ John,

Honestly, it was close. When that girl called about the 45 night reservation at $60 a night I nearly lost it! Fortunately, I know about using "softening" statements like... "Please excuse me if I sound a little stressed but..." and "I apologize if I'm a little upset but I hope you can understand under the circumstances...." Or... "Let me say that everyone and everything I've experienced thus far  at Johns Hopkins has been above and beyond superior but....." ;) 

I have to say, our social worker is awesome! She was so cool and down to earth. She was all over this. Unfortunately the housing coordinator will probably get an earful from the director for not documenting things in a way that others could figure it out. Our social worker was looking through her notes and couldn't make heads or tails of them. (She was out Monday back Tuesday and didn't return my calls and was out today as well). 

Anyway... it's all cool. Ready and rarin' to go!

"T"

donfoo's picture
donfoo
Posts: 1408
Joined: Dec 2012

Private T,

Glad to hear you passed the first skirmish, an easy test up front. Hang in there and as has been said "one foot in front of the other". No need to lose it over something so trivial. You KNOW better days ahead to sort out such miscommunications and trust me this is not the last. Just take each day, each hour and don't take no for an answer. When you hit a pothole, just look for the next step out of it and keep going forward as best you can. Maybe there is detour so take it, it will lead back to the main trail, just be creative and patient; it all works out in the end. Glad you two settled into your new digs, place sounds very livable.

Oh, just another test or two and that sargeant strip will be waiting. :-)

don

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Hey Captain Foo,

I've been through officers training considering my pre-treatment experiences ~lol~ I'm like the Second Lieutenant fresh out of school and thrown onto the front lines with a group of battle hardened soldiers. I'm waiting for the inevitable moment when they all turn to me for orders and I'll have to step up to the plate and lead.... one foot in front of the other.... 

I feel I'm prepared. Each day since the surgery has been a challenge and still is. I spoke with my RO about it yesterday. He was surprised that I was still taking pain meds. Although I'm taking the nuerontin, I started after the surgery and it will only take care of future pain i.e. throat due to rads etc. The discomfort from the surgery has "set in" and it's time that will tell for that. So, I have to get used to it. Pain meds will be a staple in the pill arsenal. 

Well... off to patrol the perimeter and my 2nd treatment.... 

"T"

rachel12yrsuv's picture
rachel12yrsuv
Posts: 435
Joined: Feb 2013

T,

Come on from what I've read about you thus far this is just par for your course. Its simply a Griswald adventure! Lol

So glad it all worked out and so sorry for all the times I called your wife the wrong name. GSorry Marcia!
You fight and we will keep praying, John Hopkins, only the topp of the line for you. If someone is to find a cure for all types of this beast its coming from there! You will definitely, like Katie said, looking in the window. Before you know it!

Stay brave Friend and Pray just as we will!

Rachel

ILMM13
Posts: 28
Joined: Feb 2013

Wishing you nothing but the best as you head into radiation and chemo.  I have to agree with the others, you have an amazing attitude and that will get you through.  Glad to hear you got the free housing.  One less thing to worry about.

staceya's picture
staceya
Posts: 706
Joined: Jan 2010

Cheering you on!

Will keep you and your family in my thoughts and prayers as you begin the journey

Stacey

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Thanks Stacey :)

I was shown yet again today how powerful prayer can be and knowing you and others have us in yours is comforting.

"T"

 

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Hi Ilm...

I appreciate your kind words and well wishes. I fully intend on winning the war :)

"T"

 

CivilMatt's picture
CivilMatt
Posts: 3265
Joined: May 2012

T,

 

I would have to say “your glass is half full”.

 

Best of luck.

 

Matt

katenorwood
Posts: 1890
Joined: May 2012

T,

One foot in front of the other and pretty soon you'll be on the outside looking in !  You have a fantastic attitude and will get through tx's well.  We are all here to hold you and your lady up if needed.  Katie

michdjp's picture
michdjp
Posts: 206
Joined: Sep 2011

Best of luck to you on this journey.  It is good you have your wife with you to lean on and keep you positive.  My dad was 70 years old when he started treatment.  He just celebrated his 71st birthday and ate pizza and any desert you can think of!  stay positive have faith and believe.  Stay connected..it definitely got me through 

all my best, michelle

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Thanks Michelle and Kate :)

I'll be Ok. I have a great team 1st Rad treatment down! I met with my RO, RO resident and Nurse Pratitionaer/manager afterwards, They're all over it and will quell any issues before they arise. 

"T"

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

My Radiology Oncology team's names are Greg and Marsha. I've nicknamed them the "Brady Bunch" ~lol~ 

I just found that struck a funny bone in me... 

"T"

michdjp's picture
michdjp
Posts: 206
Joined: Sep 2011

What chemo are you doing? My dads first was cisplatin but it took a toll on his kidneys.  If you are doing cisplatin on Monday try to hydrate as much as you can 

all my best

michelle

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

Hi Michelle,

Thanks for the post. I'll be getting Cisplatin. 7 weekly sessions. I'm meeting with my MO tomorrow to go over the details as well as as address my concerns about the side effects. I have a chemo class Monday morning and my first session at 10am. I've been drinking a lot of fluids because, well... it's about all I could take in the last month after surgery. And now, since I'm finally eating some solid food, I put down about 20oz of liquid with anything I eat just to wash it down. Even my morning pill ritual empties most of a 20 oz bottle :)

The "hydrate, hydrate, hydrate" message has been drilled into me from day one here ~lol~ 

"T"

 

ditto1
Posts: 646
Joined: Mar 2012

Glad to know everthing worked out for you for your room and board, Just wanted to let you know you are in Diane and my prayers as you continue your journey.

debbiejeanne's picture
debbiejeanne
Posts: 2895
Joined: Jan 2010

t, glad u r starting down the road to recovery.  i'm sure u'll do just fine.  i hope u'll be able to let us know how its going.  my thoughts and prayers r w/u.

God bless,

debbiejeanne

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