I am new to this sort of thing. My husband woke up on June 4 and had to be rushed to the ER. He was given an ultrasound that showed a mass on his right kidney. After more testing, it was determined he would need to have the kidney removed. On the day of the surgery I recieved a phone call from the rehab center my father was at staying at, he was being rushed to the same hospital because of breathing difficulties. The surgery was expected to take 2 to 3 hours. It took 5, the tumor was very large and difficult, they knicked the vascular vein and had to call in another surgeon to repair it.
After getting my "superman" into recovery, I was able to go check on my dad. He was in isolation sue to an colon infection After talking to Dr. and family I was told to limit contact with Dad and concentrate on superman. He lost a lot blood and was very weak. I was able to get a cot put in his room to stay there. I spent 2 days going from room to room. I lost my dad on the 9 of June. The next 5 days are a fog to me. I was busy doing funeral arrangements and trying to keep peace between my sisters [long story] My father had been living with my husband and I for about 8 years because of his health. Needless to say during that time Tom was getting reports back, talking to Dr's. Although he is the smartest person I know, he doesnt handle health issuse good, didnt ask questions. We left hospital without any knowledge of RCC. I didnt know his stage or even if it was cancer.
we were told at the 2 week check up that it was indeed cancer and it was encased to kidney, See you in 6 months. No Onocologist was reccomended. In Dec we went back to surgeon and were told that upon further review it was determined that there were 3 spots in fatty tissue around kidney area. He would need to see an onocolgist. ct scan was scheduled. tom had a severve reaction to the dye and the scan couldnt be totaly completed. the onocolgist then ordered a pt scan and mri. Those results showed a small node in rught lung and the spots in fatty tissue were calcified. Go home and come back in June. I was told that he has stage 3 RCC. I still have so many questions. any answers or advice on what to ask or where to go? We have no insurance and can not get disability or medicade. we own a one man [ supermans} body shop, and our home. As tom puts it " 2 rich to be poor and 2 poor to be rich"