Mar 10, 2013 - 3:09 pm
I have severe post mastectomy pain syndrome and LE. I have been getting Lidocaine IV infusions since 2011 for the pain. Since I finally got my official LE diagnoses all IVS need to be in the foot.
I get Lidocaine IV infusions about every 2-3 months. My pain doctor is HORRIBLE at starting IVS. He constantly has to do 2-4 tries before he gets one to work. (He sucked when I let him do it in the left hand as well). I know that he is terrible because the anesthesiologist can start an IV in my foot with one try while I am dehydrated.
He is pushing me to get "Neurostimulation Therapy for Chronic Pain." It is basically wires that are inserted into my spine with a little box outside on the skin. I carry a remote control that turns the stimulation on or off, and controls the degree. Basically, it sends out tingles that are supposed to mask my pain.
The trial lasts 3-7 days,then if it I say it works, a permanent one is placed.
I am NOT crazy about another surgery and wires inserted in my spinal cord, tingles, and a box on my back, as well as having to keep track of a remote control. I am certainly not ok with people messing with my spine. I have horrible luck with medical procedures, esp. surgeries, so I am very weary.
I was thinking of a port instead. I don't know much about them, but have heard some women keep them for long times, right? I would like to suggest this to the pain doctor, but he is such a jerk that doesn't listen, is way to hyper, and is set in his ways.
Thank you so much for any help. I will try researching information as well, because I don't have an oncologist I can ask.