Mar 08, 2013 - 10:22 pm
Recap... Chuck has Stage 4 Renal Cell Carcinoma with Rhabdoid features(They removed his right Kidney in July).. that matastisized to his Liver and Lungs.. the lungs were just assumed to be cancer no Biopsy was done on them...In November they scanned him and found the Liver Tumor and did a biopsy... In Jan he started HD IL2 treatments and his second round happened at the Beginning of Feb..March 5th he was rescanned and we were given the results
The Liver Tumor responded to IL2 and it appears to have been killed.. there is a spot there that is dead cells they say his body will absorb those...and the liver should heal in the affected area... the spots in his lungs continued to grow..so they call that a mixed result.. not NEW spots developed during treatment which was positive news.. but they do not want to continue with IL2 because they are not sure why the spots in his lungs were still active with the drug... so now we are looking into getting involved in a Phase One trial of a new combo of drugs.. we will find out next Thursday if he qualifies for the trial...they think he will..our other options are drugs to try and supress the growth..the trial does not prohibit him from receieving drugs like Sunitinib(Sutent) after it is over..It took a few days for us to rap our head around the news... we really felt the IL2 was working and we were paritally right.. we were not sure how to take such mixed news.. Since HD IL2 is one of the only known things to put Kidney Cancer into remission we are scared...But after some rest and talking we are Hopeful :D and he still has a good positive attitude... it was a little supressed for a few days but bounced back full force today!! Optimism gets tough sometimes but we are optimistic people.. and like he tells people... we burried a Daughter(she died in a car accident) we had no control over that(it was devastating) and could not fight it.. but this we can fight!! And I always tell people its like Dori in Finding Nemo says.."Just Keep Swimming" that's all any of us can do!