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reverse tram flap

classicpat
Posts: 21
Joined: Oct 2011

ok i know i cant get my tram flap reversed but i wanted to put this out there to so many ladies that have experienced breast cancer and let me know what you think. i had breast cancer in 1996 then i had a lot of crazy things happening to me the last couple of years so i oped to have both my breast removed. i was tired of being scared as i am 57 yrs old and have 13 yr old daughter living with me at home. so my general surgeon said he thought it was best if i had reconstruction done at the same time. i wasnt really looking to do that i just wanted the problem gone. anyways i took his advise and spoke to this plastic surgeon. he promised me the moon and the stars. he said i would have high and tight little boobies and a flat stomach again. so yes my vanity won. i did it. well i had complications. part of the radiated breast started to die. he graphed some skin and patched me and i was on a wound vac for a week. things did heal but my stomach was not flat and i have bulges under my breast and i asked to have small breast he did not give me small ones (to me small ones are a b cup) so i asked what was he going to do. first he told me that he would go back and fix the breast as they have a indention on the side that looks like a butt crack and give me nipples. well i asked him to do something about the muscle under my breast too. now he says he cant do anything about the bulges and they are not that bad and if he reduces my breast they will droop. they arent high and tight as it is. the stomach he says i should be happy most women my age are a lot bigger. so i went to duke and saw another dr and he said he would remove the muscle under the breast but not til the end of the year and he would re-shape my breast but there was nothing he could do for my stomach. ok i went back to the first plastic surgeon and he said the dr at duke was just putting me off and he didnt want to do it either as i had a 10 percent chance of losing one of the breast. i am not happy. i am considering having both breast and the muscle removed. it looks like i will have a hard time finding someone that will do this because i mentioned it to the dr at duke and he just said he didnt want to do that. and my doctor will not do that. so what i want is you guys to give me some in put on am i going to far with what i want or am i right. o and i didnt mention that the muscles under breast contract and agravate me every minute of everyday. my daughter says i am not the same person i was before the surgery. she says i'm always unhappy or hurt or dont feel good and just plain gruppy.  its not pain you need meds for or anything just always uncomfortable. nothing seems to fit the boobs due to the lumps under my breast and they are really ugly to me also.

 

so ladies do you think i'm nuts

am i right

should i just grin and bare it

or should i take action

 

classicpat
Posts: 21
Joined: Oct 2011

its been a year since i had the surgery. and i also had to have a biopsy in october as i had hard knots in my breast but it turned out to be fat stuff.

ideclare
Posts: 6
Joined: Mar 2013

I can't begin to tell you all the terrible experiences I've had thanks to Robert A Davoudi - so called surgeon who basically talked me into this during a time when I was my most vulnerable. What a terrible man. After the surgery and the very last time I saw that brute, after months of my telling him he's lost his mind if he sees me as fine - nothing he said happened. The stupid tramflap procedure is the bane of my existence - not a day goes by that I don't think of the brute and all of my problems since. How he's still practicing is beyond me...He was "tired" of my shouting about how he left me a mess that he ACTUALLY pinched me underneath my left breast that left a pain for 3-4 days. I was in a different dimension in my reaction, in retrospect, I'm glad as God knows what I wanted to do to him. Since then I had so many surgeries to fix my breast and had to have an implant which I didn't want in the first place. I certainly wouldn't recommend a tramflap after this - the loss of muscle is awful in itself - bowel movements, exercise, simple stretching, and yes getting up from a flat position is a pain in the arse -- I'm grateful the SOB didn't kill me on the table. Flat belly - NOT, left stitches open and the scarring was thick and long and left with dog ears on left & right sides. Belly button off-center; boobs NOT same size and nipple so off the one breast it was staring at me. I still get upset but can't stop thinking about it all. Wish I never laid eyes on this guy. I've since had to have 3-4 procedures on the boobs alone and still don't have nipple on one - gave up. Hernia ops, 2, appendicitis, cyst on ovary, then total hyster...down to knee surgeries - you can't tell me all in one year right after this tramflap it's not related. and yes he was reported and nothing happened! ugh I know about forgiving it ain't easy

classicpat
Posts: 21
Joined: Oct 2011

wow u have really been thru it. i didnt realize there was anyone out there that was as un happy with this tram flap mess as me. i am sorry for what you have gone thru but i feel i'm on my way. i am truely thinking of removing both breast and the muscle as i am so tired of all of it. the pain, the uglys, the just plain i hate them now. they are not what he promised me. by no means. and no they have you sign your life away before the surgery so you cant file any charges. i am messed up for life. i am single and i will never let anyone see this ugly mess. even if i get them removed i still will not let anyone see. but at least i wont hurt or be so uncomfortable. thank you for let me know i'm not alone. also i have been having some strange stabbing pains in my right side of my stomach. i asked him about it and he said there was nothing there to hurt. i thought that was strange but o well. i have a feeling its not over. i really wish i had stayed with my own instincts and just removed the breast. o well hind sight is 20 20.  what do you think about removing both breast and the muscle.

:)

pat

ideclare
Posts: 6
Joined: Mar 2013

Hi Pat, the pain in right side I had turned into numerous problems starting with my first hernia,then a second. I had to have left removed and the right reconstructed, fromt he inside (part of tramflap) to make it same size as left because he said "they'll pay for both" - my left was the one that had to go. Find another doctor - I sure did. No, I'm afraid you're not alone. I know someone who had them both removed and chose not to have them reconstructed-she was the only one I know. She wears those padded bras - she showed me. Docs and other women I've talked to said "we" feel better to have our breasts back and that it was "best" to have them removed and reconstructed at same time - which is what I did. There are other women who did this - no tramflap but implants - and they're not complaining. But, we are all different aren't we. Do more research as I haven't heard of your particular situation and am trying to invision it. A lot of women remove both afraid bad stuff will move to right or left. I chose to keep my right.

You say the muscle under your breast? If you don't have to have muscle removed, I'm just thinking, I wouldn't remove it. Can you explain further? The tramflap since 2005 has left me still numb in the middle. I found a female plastic surgeon who when she saw me did say ' why did he do this, and he left you with dog ears, and I can fix this and I can fix that - but she wouldn't say anything against him thru a lawyer - go figure. She said she'd wished I'd gone to her first - I suppose me too  cause she did fix them to where they are the same size. This meant I had to have a right b implant - which I didn't want in the first place as I didn't want to have to deal with them popping or having to change them out in 10 years - ya know. ugh. But, when she reconstructed the left areole and the nipple - the darn thing shrunk to nothing. I asked her what happened and she said well it does shrink after surgery - so I said so why didn't you make it bigger so that when it shrinks I'd have a nipple. ugh - I went to another surgeon after her - my third. The third one I had move my right nipple to a more centered position as the first SOB placed it so high and to the left it was staring at me. There wasn't much he could do but move it slightly to the right. I gave up on the left and have no nipple there so wearing blouses and stuff was a pain. I wear padded bras to keep them both NOT showing nipples - ya know. The first SOB also moved my kidney slightly higher, on my right side. The pains I kept having on my right side, again, were two hearnias. Pain came back, then it was a painful appendicitis - thank God I finally complained to my hubby who got me to hospital in time. Then after I healed from that, again, pain in right side was a cyst on my ovary. Had it removed.Pain came back - then had a full hysterectomy. Then pain on left side - GYN had to go back in (one of the best OBGYNs around mind you) cause he had sewn a nerve. That pain was excruciating! and an overnight stay in hospital showed nothing. I finally went back to OB and he went in and fixed it. ugh...We have to love ourselves first. Once we get there then we can heal per se cause I still get so mad at first SOB who started this all. Again, I'm thankful he didin't kill me on the table. It's hard fer sure but know you're not alone and with prayer, faith in trust in God it'll get us through. 

FYI On my next mammo after the surgergies I had to fight to get a mamo on both breast. The woman at the hospital said, "Oh, you don't need a mammo on the removed breast. I said DO IT - by this time I became straight forward with docs and nurses. I had the mammo done on BOTH and thank God that I did cause the crap came back. You've heard when they remove the tissue some of it falls back in right. Well, here we go again. I had to have nodes removed, more surgeries on the left side (the one they didn't feel the need to check right). Now my left has a concaved section and my arm hurts all the time. Can you believe that crap. I have to say part of my recovery was showing anyone who wanted to see them - yep, I became a flasher - well, to my female family members and any close friend who wanted to touch the fake boobs - those who always wondered what implants etc felt like. They are soft and firm - :-)  I showed my son too. I don't care... I would love to stay in touch with you via email outside of here - don't want to post my email here though..mmm will check in again tomorrow to see if you are here -- research and research some more. Unfortunately for me, each time I tried to get them fixed it just made matters worse. The current pain in my right side I'm thinking is gall bladder? but I also KNOW that my bowel movements are a mess and probably sitting up there - and let's not talk about gas - I feel them and they can cause the pain too -- the loss of muscle causes such a slow movement of it all...yep, can be something as simplel as gas - painful yes, but...there you go...crazy man

 

classicpat
Posts: 21
Joined: Oct 2011

 the muscle i was referring too is the ab muscle. mine is so big bras slide up and onto my boob. being i dont feel alot there it make take a min for me to realize it. and the muscle get sore and swollen due to trying to wear a bra. for a long time i couldnt wear anything with nylon in it so i use an old cotton bra. just made be look smushed kind of like the genie bra does for me now. i saw the 1st plastic surgeon tuesday and he said in front of some dr in training o i will send u a bra i will order for you in the mail free. like i believe him and it would be much better as he doesnt really know what i'm talking about and he had told me he was going to size me for some garmet for my stomach after the surgery but when it didnt happen i asked him about it and he seemed not to remember anything about that. didnt matter i had already for a little girdle to wear. it helps me from feeling like my guts are going to fall out and if i dont wear it i am exhausted by lunch. i have to watch what i eat. cant get full or i feel out of breathe. cant eat the spicey foods i also ate and loved or that three letter word GAS happens and that can make u feel like you want to explose. this pain i asked him about in my side stomach. the man said there was nothing there have u ever heard such a thing. there is nothing in my front side of stomach area. also he told me there was no reason for my problem with digestion and such as he didnt touch any of that but that is not what he said to me several months ago. one of my breast has an indention in it that looks like a butt crack and the other one is beginning to do it. i asked about that and he said he didnt reacommend anything. that if i wanted nipples he would give them to me. i asked about reduction in size and removal of the ab muscle and he said there was a 5 to 10 % chance i could lose the radiated breast if he removed the ab muscle and if he done a reduction they would droop. i am willing to take the chance because if something is not done i am seriously considering removal of both boobs and the muscle so where have i lost if he tried. if he had listened to me in the beginning we wouldnt be near what we are now. he knew it was dangerous to use skin sparing on the radiated breast but at the last minute he decided to use it so i ended up with a skin graph and a wound vac. along with an extra ugly boob. i have to take fiber pills dailey to keep my bowels moving and if they didnt i would loose it. i know i would due to the pain when its slow. i was told that when i did this i didnt have to worry about breast cancer anymore. well they have already done a biopsy... it turned out to be fat but dang what am i surpose to do .. i dont know what may be something to check as they dont do mamo's on me anymore. i wish i had went with my first plan... remove the boobs. then if i had a problem without them i could go back for reconstruction. i'm such a dummy. thanks for listening and understanding and responding.

pat

McMarty's picture
McMarty
Posts: 187
Joined: Nov 2012

WOW!! You have really been through it  huh?    If only plastic surgeons told us as much about what it would FEEL like rather than what it would LOOK like!  I know it's uncomfortable and different from the way you looked and felt all your life but that is a BIG surgery and even though a year seems like a very long time, it is not enough to heal and settle in to the new normal. 

I would say, don't do anything as enourmous as TRAM Reversal until you are 5 years out.  I'm thinking it took me about 2 1/2 - 3 years to really 'feel' normal again with regard to strange nerve sensations and being uncomfortable with different touches and the way clothes and seat belts felt.  I'm not talking about mentally, I saying the strange physical feelings of all the nerve damage and changes from the surgery (I had a DIEP Flap) 

You are no doubt in shock, feeling like you didn't get what was promised and I think you need more time.  You need to settle down and make peace with where you are now and give those muscles and nerves more time to settle down too.  Try not to make frantic decisions for sure.  MORE SURGERY could make things way worse or at best there you would be starting recovery again. 

Maybe find a plastic surgeon you really like and work through this over time for the best and safest solution.

Please keep us posted, I'm sure sorry for all you are going through.  I really think it will get better

Marty

ideclare
Posts: 6
Joined: Mar 2013

It's been since 2005 and I still can't find peace. Throughout the surgeries which followed I told all nurses and docs about what he did and they were astonished. Some nurses mentioned hearing his name from other women - so I reported him and nothing happened. My left arm from all the nodes which were removed has been acting up now - talk about painful just to lift a loaf of bread - seriously. My middle is still asleep as is my right leg...a constant reminder. Most days I keep it at bay else I can't function,but it all catches up, like now, venting is needed - again...I liked him too, in the beginnining, after the surgery everything went south

jamiegww's picture
jamiegww
Posts: 384
Joined: Dec 2009

Classicpat & ideclare:

I really appreciate you sharing your stories with us.  We are all different and there are probably plenty of success stories out there but for someone considering these procedures I believe it's important to know that this could (but might not) happen to them.  I have never seriously considered reconstruction of any kind because I am too much a believer in "Murphy's Law" and I know I would be one of those horror stories.  I pray that you both get some help in fixing the problems so you can feel good about yourselves because you have been through so much and deserve to be happy.

HUGS!!!

Jamie

classicpat
Posts: 21
Joined: Oct 2011

thank you jamie for responding. i really trusted him. he made so many promises i didnt even ask for. i did research and would come back ask him if these things could happen to me and he said he was coming to my house and take my computer away from me. to stop it cuz i was going to be perfect. o well. now he makes me think i've lost my mind and i should appreciate what i have as my stomach and boobs are age appropriate. what woman wants to hear that. i thought women went to plastic surgeons to not be age appropriate anymore. but i'm surpose to be happy and the pain and discomfort is all in my mind. he even offered antidepressants. but i didnt go there. but anyways thank you for caring. all of you ... thank you so much......... it really does feel better to vent a little. lol

pat

ideclare
Posts: 6
Joined: Mar 2013

the first SOB told me the pain and my problems were in my mind too -- he was so wrong. You now your body don't let anyone tell you differently

ideclare
Posts: 6
Joined: Mar 2013

Hi, I see you've been here since 09 - I just received an inbox mssg which is so loaded with crap about how she's dying and needs someone to handle her $3.8mm estate and to use the money to help others. I mean really...spam mail here? Can I report this does anyone know? 

Thanks

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Ideclare, we just recently got our messages back from CSN.  If you do have spam, just go to the top of the page where it says Contact CSN and report it. 

We all need to remember that this is an open website to anyone that has a computer, so, just be careful.

 

ideclare
Posts: 6
Joined: Mar 2013

thanks for the hug!

classicpat
Posts: 21
Joined: Oct 2011

you are a very level headed person and i thank you for your advise but i'm not sure i can. i really trusted and beleived in this dummy. but thank you so much for your response.

 

McMarty's picture
McMarty
Posts: 187
Joined: Nov 2012

Classicpat,

You are too kind! I hate what that dummy did to you and I was thinking as I read your story, we are a lot alike. I want people to do what's right and I don't like to be treated like I'm the crazy one BY the crazy one!  But I tell you the truth when I say don't start rebuilding the house while the twister is still in sight! 

There is someone out there who will listen and help you.  Just don't give up til you find them! And don't waste a lot of energy trying to get a dummy to do something smart.  They just can't.

 

BIG HUGS to you girl!  It's been nice to meet you and I hope I hear from you a lot more :)

 

TeriW
Posts: 4
Joined: Feb 2013

I am beginning to think that I was lucky.  When I asked for reconstruction at the same time, my doctor refused.  She thought that because I was overwieght that I would have too high a risk for infection and the kinds of things you all are talking about.  I had an emergency bowel resection 5 weeks before the mastectomy, due to an AVM.  I had no complications and thought I would do alright.  The breast surgeon thought it was too risky.  I was very disappointed and felt that my options were too limited.  I had muscle spasms in my chest wall after surgery, until the drains were removed, but it is sore still after 5 months. I got a prosthesis in January and I am happy with it.  My original plan was to have an implant started in October, but the more I read about the issues around it, I think I am going to stay with the prosthesis.

classicpat
Posts: 21
Joined: Oct 2011

if i had it all to do over i would have prosthesis. but of course i would have always wondered if i should have. but orginially i had planned on just getting them removed. i listened to two doctors instead of myself. so i blame myself alot. but my plastic surgeon is a hiney head. and a liar. and doesnt know as much as he thinks he knows. but you my dear did the right thing. you may have a wonder doctor. a lot of these surgerys go very good. i'm just not the product of one.

 

helen e's picture
helen e
Posts: 222
Joined: Sep 2009

Hi,

I has my tram flap in 2009 along with my mastectomy. I had only one side done. I am not the dame at all. I have this bulging muscle underneath my breast. I feel like a lollipop with my muscle being the stick. I was told that they would flip the muscle and there would be a lump there, however, they did not stress enough about it. It was kind of mentioned in passing and then never again. When I spoke to my Dr. about reducing the size of the muscle he said that he could do it but seemed very hesitant. I got the feeling that he didn't want to ruin his work. My breast turned out great and I haven't had any problems but I do have to admit that I feel like a freak with two different breasts and this muscle sticking out. Definitely makes me wish I had found someone who would have done a DIEP instead. My stomach isn't the same either, very tender and still numb in a lot of places - but I know that can happen in any surgery so I deal with it. I decided not to go back and have the muscle reduced right now, too many surgeries and too many Dr.'s. I'm taking a break for a few years, maybe down the road, who knows?

So know that you are not alone. I do think that I had a much better surgeon but I just got lucky there.

Hugs,

Helen

classicpat
Posts: 21
Joined: Oct 2011

thank you for responding. its good it doesnt bother you, meaning contractions and swelling and general pain. i understand waiting a while. but i'm the impatient type and hate the feeling so i'm going to make another appt. with a dr. in chapel hill. they do the diep which i should have done in the first place. mabe they can help me. if not well we will see. thanks to every one who commented on this post. it does help a lot.

pat

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Good luck with your appointment with your new doctor Pat.  I hope that they can help you and keep us updated.

Just wish I could help you out more..

 

Hugs, Megan

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