CSN Login
Members Online: 6

Enlarged Lymph Nodes have a surgical biopsy in 2 weeks!!!

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

I havent been diagnosed yet with cancer but they found two enlarged lymph nodes on my left side groin. I have to get surgery on the 21 of March and all im doing is worrying cause of what the docs have been telling me that im borderline cause my lymph nodes are 2.3 cm big. Im scared and terrifed cause i dont know what is gonna happen and that my life can change in the next few weeks. I have had cancer before i found out 8 years ago i had chondrosarcoma grade 1 in my left shoulder. I was told over and over again i was fine and that more than likely it was benign and that the docs would just keep a eye on it. Well they were wrong i got a second opinion from a doctor in a different city and he wanted to do surgery that following week. So that thursday i had surgery and i remember waking up in so much pain and had to stay a few days in the hospital cause it was a big surgery. the doc came in the next day and said that the results came back and that it was cancerous grade 1 chondrosarcoma i was pretty shocked. I was never given treatment for it cause they took it out in time but i was told it could come back again. And now Im goin through it again with a lump being found but this time on my groin and its a enlarged lymph node. So yes im frigtened and the docs have concern to cause of my past. Im scared to get my surgery done to i hate surgery but hopefully we will find out soon whats going on. I have been making myself go crazy with reading about enlarged lymph nodes and lymphoma and the possibilites of it being cancer and what the docs have told me and the ultrasound. Its scary stuff and i hate playing the waiting game i just want to find out and whatever it is get it treated as soon as possible. Im glad i have my family and my fiance to support me they live far away but im able to talk to them whenever i need to and they know everything goin on. I just pray everyday its not cancer but if it is i will be strong to get through whatever is thrown my way. Anyone that has been through what im goin through right now it would be great to hear your stories and see what to expect and whats gonna go on. Your all in my thoughts and prayers <3 xxxxxxxx

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

jceleste,

  I think we have all kind of been there in one way or the other. Especially the waiting game. I was diagnosed in May 2010 with Follicular stage 4,grade1 with no symtoms such as night sweats or weight loss. I am now in remission.  What the Drs. are doing is removing the lymph node to check it for lymphoma. They could do a fine needle biopsy, but with you having a previous diagnosis I am sure they want to check all possibilities and cells. Hate you have to be here, but there are some very informative people on here and they will jump in soon. Just keep in mind that there are always treatments for Lymphoma if that is what they find. You will know the answer in about 2 weeks as to what is going on. I have heard that if we must have cancer that Lymphoma is the one to have. I know that does not make a lot of sense. Just try to hold it all together and one day at a time. It's hard I know. John (fnhl-4A-1grade-5/10) 

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

yeah they were gonna do a fine needle biopsy but they canceled it and want to do it surgically so they can get a better result. Im scared cause

i dont know what is gonna happen in next few weeks but thank you for giving me heads up with everything and my thoughts and prayers are

with you.

jimwins's picture
jimwins
Posts: 1984
Joined: Aug 2011

Hi Celeste and welcome to the site.  Sorry you have to be here but you'll find wonderful and supportive folks here.  John is right about lymphoma - it is generally very treatable and even curable.  I've been in remission now for a year and a half - only 3 1/2 years to "cured" :).  Hopefully the biopsy will show no cancer - never is enough for everybody let alone, once.  My story is in the "about me" section (you can click on the picture).

Please know you are not alone and feel free to come here anytime for any reason.

Hugs and positive thoughts,

Jim

 

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

thank you so much Jim for replying back and sharing you story with me im sorry to hear that you been going through a hard time and wish

to you that you will get better soon. Im terrified and playing the waiting game its scary and i really hope its not cancer but if it is at least i have the support from all of you wonderful ppl thank you.

allmost60's picture
allmost60
Posts: 3155
Joined: Jul 2010

Hi Celeste,

 My Lymphoma was diagnosed after surgical removal of a large swollen node in my groin. The node removal was fairly painless...it's waiting for the resutls that drive you crazy! I have Follicular NHL-stage3(no bone involvement)-grade2-typeA-Dx June 2010 and I'm 62 years old. As John and Jim have already said, Lymphoma is totally treatable. Try to stay as peaceful as possible while waiting for all of the testing to be completed...I know, easier said than done, but looking back with my own situation, all the worrying and stress I created for myself was such a waste of time! We are here for you and understand 100% what you are going through, so please keep coming back for support. Others will join in shortly, I'm sure. Best wishes...Sue

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

thank you so much Sue for replying back and sharing your story with me. Thats what im pretty much going through is the waiting game

and im worried sick about it all i just want to get the surgery done and find out u know. Glad to know theres ppl out there like you guys to

be there for support and help me through this journey. thank you Sue

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1022
Joined: May 2012

Celeste,

As Tom Petty notes in his old hit, "The waiting is the hardest part." I hope all comes back negative, but as you can read in many places here, lymphoma is one of, if not THE, most successfully fought of all cancer types.  You will encounter a lot of supportive survivors here, whith a lot of both emotional-spiritual, and technical insight.

Bless your results,

max

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

Thank you for replying back and taking the time to help me feel better i appreciate that.

thank you for your thoughts Max take care and your in my thoughts and prayers xxxx

bamalady1's picture
bamalady1
Posts: 3
Joined: Jan 2013

I'm new to the site too. I wrote a brief history of my diagnosis/history in the about me section too. I was diagnosed in July 2011 with Nodular Sclerosing Hodgkins Lymphoma stage 3 A  finally after about a month after getting to an Onc they did all the tests including the bone marrow biopsy and ran out of tissue and ended up taking a golf ball sized lymphnode out of my neck to get the staging. My grade of Lymphoma was 1 step away from being in my bone marrow and organs. Every lymphnode just about in my body were big the largest were under my breasts and near my heart. I know exactly how you feel. My world came to a screeching halt but my husband was amazing and he told me to start a journal so I wouldn't go nuts or anymore than I already am.Laughing

I know that with my type of cancer they said was "curable" but it is totally different having it versus someone who hasn't telling you its gunna be alright. Any how I'm gunna be praying for you and crossing my fingers Innocent. Keep your chin up and keep going. That's all any of us can do.  We are all here for ya.

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

i appreciate you replying back and sharing what ur going through and i will go read about you here in a bout a min after i write u back.

Im so sorry to hear your going through a hard time and my prayers and thoughts are with you. Yeah im worrying a lot and it sucks

having to wait till the 21 for surgery and then another week after the surgery to find out if i have cancer. Its very scary to not

knowing if my life is gonna change and how it will. Thank u for your support and for taking your time to care about me and i will let you all know

as soon as i find out. Thanks for all your support my prayers are with you xxxxxx

Cole74
Posts: 23
Joined: Feb 2013

Hi Celeste,

 

I hate the waiting game for me that is the hardest part. No matter what it is all you want is to know what it is and get it treated as soon as possiable to get on with your life. I hope your surgery goes well and that you have results very soon. 

 

I had stage IIIA lymphoma back in 1987, and follicular carcinoma of the thyroid gland in 1999. I just had a CT and see the surgon on the 15th to determine what and if we will remove some new lumps that we have found. So I am with you one harded percent in the waiting game. I am raising my 5 year old granddaughter, I have 2 biological children one 18 the other 21 that both have severe mental health issues. I also raised two step-children from the time they where 5 and 6 and now they are 22 and 23 and they have issues of there own. My granddaughter is my step-grandaughter and she will be 6 in June. I worry what will happen to my kids if I am sick I have always been the constant they can rely on. 

 

Oh sorry I am ranting about myself. I just wanted to share that their are many of us that get what you are going through. I am fairly new to this group and glad that there is so much support here. Please let us know when you know.

 

Praying for you that you have answers soon, and that it is simply a reactive gland. Meaning no cancer just reacting to an infection and has not gone back to normal yet.

 

Hugs Nicole

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

i appreciate you writing to me and sharing your experience with me and what you have been through. I have a son with aspergers and its been 

a struggle everyday since his diagnosis but im so blessed to have him in my life hes my angel and is keeping me strong through all of 

this i dont think he really understands but he knows mommy is not well right now. I have been through alot in my life but i have to say that is has

to be the hardest thing to go through is waiting to find out if your life is gonna change. I have had multiple tests done for signs of infection and

nothing came back showing infection so thats why their concerned its cancer and want to do a biopsy because my lymph node is large and they said

it shouldnt be that big. It scares me everyday that this could be cancer but its nice to know that its curable its just terrifying. The waiting game is not

easy and everyone keeps telling me im gonna be fine but why woud they find the lump now and not a few months ago when i was in the hopsital i was so happy i went to

england in november and met the love of my life that i have known for 3 years now. I was so happy and doing so much fun things saw london for the first time

and then i come home in january. Then a month later i find out i have lump and it could be cancer. Why now i dont get it. My prayers and thoughts are with you

and thanks again for caring xxxx take care xxxx

Cole74
Posts: 23
Joined: Feb 2013

I compeletly understand the Struggle with you son, and the angel that he is. I am sure I could not continue with the struggles and the tests with out my kids and my granddaughter. They really are the reason for my being. 

 

I am happy that you found a love in England, and hope that you both have many happy years together. 

 

The worry is not helpful I know, I find it fustrating to listen to those who say don't worry it will be ok, especially if they have not been in those shoes. However, I do also understand that people don't even know how to react to you. Have you had the biopsy? Or still waiting?  

 

Thinking of you and wishing you the best. Hugs

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

hi cole no i havent had the biopsy yet i have surgery next thursday and getting scared caused i hate surgery. the waiting really sucks and its very stressful at the same time its hard to sleep lately, but im thankful to have my son with me that helps. my prayers n thoughts are with you to hugsssss

Cole74
Posts: 23
Joined: Feb 2013

I will be thinking of you next when you go for your surgery. Every time they have removed one of my glands they completly knocked me out. I see the surgon Friday and keep thinking 2 more sleeps. I agree waiting sucks and is stressful, yet I am told by my DR's reduce your stress it is not good for you, like I don't know that, really lol. I really hope your gland is just a reactive gland that for some reason remains swollen. I have had a few of those no cancer just a gland that is abnormally large. 

 

When I think I can't do this again, I look at my granddaughter and see her smile, hear her say I love you Mama and then I find the strength to endure whatever may come my way. Your son is you greatest gift that will give you the courage endure whatever comes your way. 

 

Prayers and thoughs and giant <<<<<<<<<hugs>>>>>>> your way.

 

Take care!!

 

Nicole

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

i appreciate your kinds words it really puts a smile on my face and makes me feel much better. I will keep you in my thoughts and prayers always and i will let you know as soon as i find out my results. I really hope i get knocked out i was told its not general but its sedation so hopefully im asleep. take care hun and big huggggs to you thank you for being so caring and your kind words xxxxxxx

Machir
Posts: 32
Joined: Mar 2013

Celeste I'm sorry you are going through this.  I'm on this site today because I'm struggling with the waiting game myself.  Six months ago I found out I had relapsed with Follicular NHL.  This Friday I will be scanned and next week I'll find out if the treatment for this go around is working (I was in remission seven years after the first round of treatments).  I'm scared and I know you are too. I can tell you that the surgury to remove my lymphnode, which was a node in my left groin, wasn't all that troublesome.  Not a lot of pain.  The only issue I struggled with was the swelling at the incision site.  My surgon made it clear that it would swell with lymphatic fluid and when it did I should go back in and have it drained.  (who knew there was such a thing as lymphatic fluid?....wait maybe by making that statement I'm invalidating any claim to knowing something about this stuff!)  I went in once and the draining was painless and took only a couple minutes.  Recovery is fairly easy.  I had the surgery and a week later went on a ten day vacation without any real issues.  Hang in there.  I will say prayers for you.  God bless.

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

thank you for replying back and sharing your story with me i appreciate it. Yea im terrified and worried about the outcome and whats gonna happen in the next few weeks. My lump is on my left side groin to and i have surgery next week. Do they put you to sleep so u dont feel it not all the way asleep but on meds so you dont feel it and are knocked out i hate surgery and im scared to get this done and dont want to feel it. Im worried its cancer but hopefully i can find out soon and get this taken care of soon. Thank you for your support it means alot to have support here and talk to others your in my prayers and thoughts and i hope you the have the best outcome and its negative hang in there to hugsssss xxxxxxxx

Machir
Posts: 32
Joined: Mar 2013

Mine was done outpatient at a surgical clinic using twilight sleep.  It took about an hour from the time they took me into the surgical room until I woke up in recovery.  it was another hour or so before they let me go home.  It was pretty quick and easy.  The 21st is a big day.  Your surgery and my scan results.  I'll be thinking about you.  Hang in there.  Hugs back your way.   

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

Yeah it has written down MAC anethesia so i wasnt sure what that was but it sounds the same im getting mine done at the hospital outpatient surgeical clinic, good luck to you and i will be thinkin of ya to and praying for ya ill let you know how things go hugssss xxxxx

Clairemichelle
Posts: 5
Joined: Mar 2013

Hi there  Im new to this site and wishing the days away at the minute.  I went to the GP approx 4 weeks ago with a lump in the right side of my neck just above the collar bone about 3.5cms.  Gp examined me and referred to a breast clinic as they thought I had a lump on my breast aswell.  2 weeks later I attended for my appointment, had a mamagram, ultrasound, chest x-ray and blood work.  Mamagram showed no lump in my breast, this was confirmed with the ultrasound.  The ultrasound however showed the lump in my neck that i knew about and also a further 4 smaller lumps to the same side and another lump to the left side of my neck.  I was told the only way to diagnose was to have the lump removed.  6 days later i had surgery to remove the lump.  I  now have a 3 inch scar on my neck which i am not bothered about but the waiting for thr results is now getting the better of me.  Was told 7-14 days for the results.  I rang after 7 days and still no results, we are now at day 9 and im so tempted to ring again to see if the results are back but dont want to be a pain....  The only other symptom that I have is very itchy skin which I have had for approx 4 months now.....  The waiting is killing me........

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

hey hun i know the waiting game sucks im still waiting i have surgery next week to get my biopsy done so they can take it out and test it to see if its cancer. i worry everyday whats gonna happen so understand how your feeling with the waiting part. your in my thoughts and prayers hun hang in there i know easier said then done but im goin through the same thing so we will hang in there together. I also have itchy skin and im very fatigue, and not eating much. I m here if you need to talk to someone . Big hugggssss xxxx

allmost60's picture
allmost60
Posts: 3155
Joined: Jul 2010

Hi Clairemichelle, and "Welcome",

 If memory serves me right, I waited approximately 12 days to get the results back on my lump biopsy. It was excrutiating hanging out waiting to hear something, so I know exactly how you are feeling. As much as I'd like to tell you to sit back and be patient, well...thats just not going to happen. I'd call again and see if the results are in...never know, you might just luck out. Hang in there and I'll be thinking good positive thoughts for you. Best wishes...Sue

(Follicular NHL-grd2-stg3-typA-dx 6/10-age62)

Machir
Posts: 32
Joined: Mar 2013

Clairemichelle I'm sorry you are having to deal with this.  When I was diagnosed in 2004 I remember my wife and I commenting on how one doctor visit can transform the world into a totally different place (the good news is it doesn't really in a lot of ways but it sure seems too when you are trying to get your mind wrapped around all the new things you are dealing with).  My advice....call them.  I too used to worry about bothering people and then realized this is one of the most important things you deal with.  You are not ruining their day by calling.  Be polite but call.  After nine years of dealing with this I've only had one doctor out of a handful that really understood what the waiting is like.  He told me when they'd have test results and said if his office hadn't called by the end of that day I should call him directly on his cell phone.  You aren't hurting them or you by calling.  If you do have cancer, and I hope you don't, you will want to be a firm communicator with your new medical providers.  I used to feel like asking for a second opinion was maybe an insult to the doctor that gave me the first opinion.  It took all I had to tell the oncologist I wanted to have a peer of his review my treatment plan.  It turned out I was glad I did.  Be polite but be firm.  You pay them.  They work for you.  You can call.  I'll say some prayers for a good outcome.  Hang in there.  You'll find you can handle this.  God bless.  Mac

Cole74
Posts: 23
Joined: Feb 2013

I know the waiting can be excruciating, sometimes that is harder then anything else. You are not being a pain by calling again, this is your body, your results, and checking to see if their is any results helps even if just a little. I had a CT on thursday, and even though it has only been 8 days and I see the surgon tommorow, the days have been driving me crazy. I come on here read stories and look for support, I also try distracting myself if even just a little at a time by playing a game, or doing a little cleaning if I can find the energy. You are not alone in this! I have found this group amazing people that really understand how you feel and told just say hey it is nothing don't worry, when you know then you can worry. However, for most of us the not knowing is harding then the knowing. So please share your thoughts, wishing you the best, sending you hugs. And grrr the waiting.

 

Nicole

HD 1987

Follicular Carcinoma Thyroid 1999

Currently waiting DX

Clairemichelle
Posts: 5
Joined: Mar 2013

I would like to thank you all for your kind words.  It really does help to be able to share what is happening with others.  My family have been great but they don't really understand how I feel eg, where as you all do.  I did not call yesterday I kept myself busy with other things but I am going to be calling today.  I am returning to work next week and would like some answers for myself mainly but also for work.  Work have been great Smile but I'm sure they need to know whats happening.  When I rang earlier in the week I was told the Haematologist was on holiday until Monday (how dare he) but the  surgeon who carried out my biopsy is in work.  So I will be calling his office again today.  Its just so horrible waiting, one day I feel really positive and think everything will be fine, then another day (like yesterday) I worry that I do have something going on......

Keep smiling everyone x x 

Clairemichelle
Posts: 5
Joined: Mar 2013

Got my results back last week and i have Hodskins Lymphoma and have a date to start chemo next week.....  Been swept along this past week with more tests and scans and now im dreading starting chemo......

Clairemichelle
Posts: 5
Joined: Mar 2013

Got my results back last week and i have Hodskins Lymphoma and have a date to start chemo next week.....  Been swept along this past week with more tests and scans and now im dreading starting chemo......

Clairemichelle
Posts: 5
Joined: Mar 2013

I would like to thank you all for your kind words.  It really does help to be able to share what is happening with others.  My family have been great but they don't really understand how I feel eg, where as you all do.  I did not call yesterday I kept myself busy with other things but I am going to be calling today.  I am returning to work next week and would like some answers for myself mainly but also for work.  Work have been great Smile but I'm sure they need to know whats happening.  When I rang earlier in the week I was told the Haematologist was on holiday until Monday (how dare he) but the  surgeon who carried out my biopsy is in work.  So I will be calling his office again today.  Its just so horrible waiting, one day I feel really positive and think everything will be fine, then another day (like yesterday) I worry that I do have something going on......

Keep smiling everyone x x 

Machir
Posts: 32
Joined: Mar 2013

Clairemichelle everybody has the highs and lows.  It's just part of the process.  When I get started on the low trend I stop and think about what I have that is good today.  We all have things to be grateful for.  I focus on those.  Usually it helps but not always....sometimes it seems I'm determined to allow the worries to have their way even though I know worrying doesn't cure anything.  One thought while reading your last post......even if you do 'have something going on' it is still much more likely than not that everything will be fine.  I'm praying it's nothingbut if it's not you still have a lot of reasons to hope for a good outcome.

Jceleste I haven't forgotten about you either.  Enjoy your weekend.  Focus on what makes you happy.  Next Thursday will get here without us worrying about it today.  Soak up some of what makes the world an awesome place.  Positive thougts and supportive hugs to all.  Mac 

jceleste31's picture
jceleste31
Posts: 36
Joined: Mar 2013

thanks for that i needed to hear that cause im trying my best to focus on the positive things and not worry so much its just gettin to me cause its coming so fast....have a gd weekend and i will talk to you soon hugggggssssss

illead's picture
illead
Posts: 489
Joined: Aug 2012

We are so sorry you are having to deal with this.  It's not the most fun club to belong to.  We know you must be scared and living in a little bit of disbelief.  We have all been there.  One good thing is  Hodgkins is a lot easier than Non-Hodgkins.  Yours is most likely very treatable and curable.  We hope you have a good cancer center.  If so, you will find the nurses very kind, compassionate and caring.  Your first chemo will seem overwhelming but they will go out of their way to make you comfortable and relaxed, so try not to fret too much.  Don't hesitate to share your fears and thoughts here, we have all done it and are here to support you. 

Our thoughts, Bill & Becky 

cathyp's picture
cathyp
Posts: 366
Joined: Dec 2009

All the best as you start your treatments.  I had Hodgkins in 1989 and 1994.  If I can help, I'm here for you.  Cathy

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network