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Hugo Chavez died ~ Colon Cancer?

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
Joined: May 2012

Hugo Chavez, President of Venezuela died today and it appears he had Colon Cancer. Diagnosed in 2011. No one is immune to this. I live in fear every day, wondering about the next CEA, CT scan. I have a CT scan scheduled for March 18th. I'm on the every 3 month schedule. I feel like when I finish one scan I'm already worried about the next. I feel like I'm on a roller coaster and it never stops so I can get off. The only rest I get from thinking about this is when I sleep, then I wake up in the middle of the night. This disease is so hard! Just wanted to vent.
Sandy
Stage IV CRC

ketziah35
Posts: 1154
Joined: Jun 2010

Not crc. It was cancer of pelvic region. That is what I read. 

 

renw's picture
renw
Posts: 282
Joined: Jan 2013

As there is some stigma associated with prostate cancer, calling it a cancer of the pelvic region sounds more like prostate cancer.

YoVita's picture
YoVita
Posts: 562
Joined: Mar 2010

I was thinking he had rectal cancer.  Said the rectal cancer survivor who still tells the outside world she had colorectal cancer.   Cheers y'all!  Vita

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
Joined: May 2012

I read that it was in the pelvic region and they were thinking either prostate or colon and with the radiation and chemo he had they were guessing colon, the articles I read. I don't know why it's so important to me to read what kind of cancer it is, I guess when I find another person dies of colon cancer I feel like I move up in line. Not a good line to move up in.
Sandy :)

ketziah35
Posts: 1154
Joined: Jun 2010

I guess you want to honor the fight. Btw I am downtown by Dome. Stay warm up there.

lilacbrroller's picture
lilacbrroller
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Joined: Jun 2012

I wondered about that, too.  I googled him and some articiles hinted that it might be CRC, and others claimed it might be sarcoma.  Anyway, seems they couldn't cure him in Cuba.  

I did think it was CRC, and was sort of rooting for him, even though he was a dictator and likely did a lot of bad things.

In our (American) culture, we need to know how a person died. Iti's one of the first questions we ask. If it isn't printed directly in an obituary or death notice, sometimes it's handled obliquely by noting that "donations can be given to the colorectal cancer society" or something like that.

So as an American, I don't understand why it can't be stated publicly how he died. Okay, syphyllis might be embarrassing but CRC is not. (personally I don't think prostate cancer is embarassing either )

At least they did say it was cancer; still, I am always a bit sad when I hear of anyone succumbing to it. 

Karin

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PhillieG
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Joined: May 2005

I always heard he had colon cancer until today. Now it's pelvic region cancer. Maybe colon cancer isn't "manly" enough? I also hear that the US gave it to him so there goes any news feeds!

I know it's a roller coaster but if you're feeling well, enjoy it. Any one of us could very easily get in our cars this morning and NOT make it home tonight. Just a perspective check.

"— July 9, 2012: Chavez says at a news conference that tests show he is “totally free” of cancer"

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
Joined: May 2012

Yeah that's funny cured in July 2012 so he can be re elected just to get chemo and surgery within 2 months. Sounds like he was never in remission. Maybe Cuba was not a good place for treatment???
Sandy:)

PhillieG's picture
PhillieG
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Joined: May 2005

But you can't beat their cigars!

What I've noticed in my many years on this site and in the trenches is that you really just don't know what lies ahead. Two people with (nearly) identical backgrounds, diets, and disease can have two totally different outcomes. Even is they see the same oncologist. What that shows ME is just how complex cancer is and how finding "The Cure" will likely be impossible. The best we can hope for (again, my opinion) is that we can improve early detection since that seems to be key in probably all cancers. Colon Cancer has a very high rate of being cured IF it's caught early. Too often it's not. I was without syptoms and was stage IV. There's no formula for curing it, there's no rhymn or reason why it comes back in some and not in others. 

That's why I try to just live each day the best I can. What's the point of worrying what may or may not happen? Who's to say I will die from cancer? Why not by getting hit by a meteorite? They certainly are flying all around!

The Cloisters, NYC

The Cloisters, NYC

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
Joined: May 2012

Love your pictures! I totally agree with you, no one is the same even though we appear the same. My onc told me he could line up 10 of me with same rectal cancer with liver mets and he would have 10 different responses to the identical treatment. That is what is so scary.
Sandy:)

jen2012
Posts: 1252
Joined: Aug 2012

I was wondering the same thing when I read the headlines.  Who knows.

Sandy- just wanted to say I so understand what you are saying about the roller coaster ride...not a fun one either.   I have changed so much since my husband's diagnosis over the summer...and not for the better.   I hate it - I feel like I'm always either sad, on-edge or just angry.  I went from being that really laid back mom who rarely got riled to standing in the kitchen the other day having a screaming match with the 15 yr old....in front of the baby....the whole time thinking - what the hell is wrong with me.   I just don't know how to get to that positive, relaxed place that it seems many people here are.   I wish I could - I hate being like this and I worry I am ruining my own health.  My biggest fear since this started is what if something happens to both of us.  Who will be here for the kids - especially the baby.  It's crazy but I find myself just wanting to be here long enough for the 15 yr old to be able to care for the baby....and I don't even have cancer.  

My husband had his scan on Friday - I emailed the doc Sunday night to find out how/when we'd get results.  No answer - I emailed again last night about something and she apologized for not answering my other email....but still didn't bring up the scan.  I start thinking the worst with stuff like that...so I emailed back "no problem...but what about that scan?"  She hasn't looked at it yet.  ugh!  She emailed a few mins later to say she took a peek and all looks ok...nothing new...things continue to look improved.  That's good, but I still have a hard time being happy.  So frustrated with myself.

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
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Relaxed is not something I ever get to either. I know what you mean about the kids. My twins are 15 and I think thank God they are boys so they will have their father and not girls that would need me more. My daughter is 29 and trying to have a baby and I want to be there for that too. It's never ending, but before all this crap I didn't even think about dying. I have a scan on march 18th and stressing about that. And just when I just stop thinking about cancer for 1 second, I move a certain way and my port hurts and says here I am don't forget you have cancer. And what are these medical professionals thinking, we have cancer and need to know results NOW. Not 2 or 3 days after a scan, NOW! It's not like were just getting our sodium or calcium checked, it's our life checked.
Sandy :)

jen2012
Posts: 1252
Joined: Aug 2012

Sandy - I hope you have a good scan!    The doctors just don't think.  I even said to my husband's dr "you know I think the worst when we don't hear"  She gave a huge apology last month when I emailed about the bone biopsy results and got an email from the nurse saying that the dr wanted to see us the next day, I replied in a "I guess it's not good news" way and got a response in minutes - don't worry, it's fine.   My husband seems to worry less about this stuff and is never in a rush for his results!  Says the results won't really change anything and he leaves it to the doctors to figure things out.

Trubrit's picture
Trubrit
Posts: 1699
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OK, I'm re-doing this post, as obviously my chemo brain read your inital post wrong.

I am so sorry for you stress and fears.

After my resection a man came into my hospital room, announced himself as my Oncologist and told me I had stage 3 A colorectal cancer; it felt like I'd been hit by a truck. I've always been scared of dying of cancer, and now I was sure it was going to come true. 

I can only pray for you, as I know telling you to try you to not stress so much is just small talk. I konw you and your family would be better off if you weren't so stressed, but easy said than done. 

I was wondering that you may also be going though or apporaching menopause. You may have gone in and out, but I know peri menopause can cause you to have swinging moods. 

jen2012
Posts: 1252
Joined: Aug 2012

Menopause - ha...I just had a baby last year!   Ok I was 43 when I had him....hmmmm!  I do take  responsibility and thinks hormones and emotions play a part - but have you dealt with a 15 yr old girl?  She was pushing my buttons  - I just should have handled it better.  I am overdue for a visit to the doctor, so we'll see.

Thank you for your thoughts and prayers - they are appreciated.   Things just seem so overwhelming at times, but hopefully I'll get to that relaxed, happy place.  

 

Trubrit's picture
Trubrit
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Oh Jen! I remember being the 15 year old teenager, I must have driven my mother absolutely crazy. And you have a new baby added to the mix along with cancer, no wonder you are so stressed.

God bless you!  

I really hope I didn't come across in my last post as being judgmental in any way. I just know that hormones alone can drive you crazy. A bit like those teenager hormones. 

jen2012
Posts: 1252
Joined: Aug 2012

No, I didn't find your response judgmental at all.   I always appreciate words of wisdom and advice....and the prayers!   

Glammom's picture
Glammom
Posts: 21
Joined: Feb 2013

Wow! I have been feeling all of these feelings since diagnosed in dec and cannot explain it to anyone because they just don't understand.   I am sad/mad that I'm deali g with this physically but the emotional part of the future is worse.  I worry all the time about my kids (20, 17, 15). Is this our last birthday  together is this our last holidAy will I be here when they graduate. I cannot stop thinking this way and this is the worsE part. The unknown.  ill deal with the nausea fatigue and bathroom issues.  I can't handle the what ifs!  I have to find a way to not let these feelings to control my thoughts.  I'm glad I went back to work.   Ok thanks for letting me vent .

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
Joined: May 2012

I was diagnosed April 11, 2012 and haven't been back to work since. I worked at a hospital as a nurse and was busy, busy, busy. Twin 15 year old boys and husband at home and 2 other children married. Now I have so much time on my hands to think about this. I thought about going back to work after finishing chemo in December but now I have the feet and finger neuropathy. I feel like you wondering if this will be my last Christmas or last birthday or last winter. Will I see my boys graduate from high school? How do you stop those feeling??? Then I read on here about TaraHK, after 10 years fighting you should get a free pass to live 20 more years!!!
Sandy

Trubrit's picture
Trubrit
Posts: 1699
Joined: Jan 2013

My boss quit in October so I became unemployed, I was diagnosed with stage 3A in November and one of my biggest problems is being at home all day. I mean there is only so much housework to do, and only so much energy, so the rest of the time I spend on the couch.

I do not find the couch helpful, I either sit and think I'm feeling worse, or I sit and think how much time I have with my kids, my husband my wondreful friends. Its not healthy.

Now that the weather is supposed to be getting a ittle warmer (its snowing today), I need to get out. The cold gives me the tingles all over, so I don't get out during these winter months. 

I have just purchased a couple of Yoga DVDs, which I am looking forward to starting. But I think I need to be more active and I swear I'll start feeling a little better. 

Glammom's picture
Glammom
Posts: 21
Joined: Feb 2013

Yes I think going back to work has helped me not think about all these things every minute of the day.  It helps me to know that others feel the same way.  I guess we need to take it a day at a time and enjoy the moments. Don't think of the what ifs and what will be.   I know easier said than done. But thanks for listening and I'm always here if someone else needs to talk.  

renw's picture
renw
Posts: 282
Joined: Jan 2013

Just read that apparently Chavez died from a secondary infection. If that's the case, he died as result of his treatment more so than the cancer itself.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

his passing illustrates the power of this illness to control our lives and steal what joy we should be entitled too.

its really good to vent our fears, we have all had them, why I am what I am because of those fears.

i hope this helps.

the silver lining in the uncertainty is cystal clear to my friends.

we might live, our treatments might work. nothing is cast in stone.

not for me, not for you. But I am an optimstic. You are free to be a pessimistic, its your right.

optimism is fun, even if you spend your time clutching at straws and chasing windmills. 

one day you might do a pet, your doctor will frown and sincerely apologise.

"mr trayhurn, I am sorry but we have misplaced all your tumours" I demanded a refund and stormed out of the doctors office. Only joking, but I never dreamed my pet would be clear. I have no guarantees, none of us does here. thats the reality of crc for us all.

so accepting that trueth and extrating the best I can out of life, all we can do. I am feeling my mortality, our mortality a little more today after reading about tara, buzz and craigs news. but we all can just live as well as we can each day. 

sorry for the optimistic dribble, but it helps me to stay positive, to stay focused. I have to believe I can beat this illness.

smile sandy, if you focus on all the good in your life, if you focus on the love with grattitude you may find some respite from the uncertainty our illness challenges us with.

I works for me. Feel free to try it.

hugs,

pete

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
Joined: May 2012

Thanks for the encouragement of living optimistic. I agree we can all go anytime. I always asked people in the past would you want to know when you are going to die if you had the chance to know,or how you were going to die. Something to think about and I feel no. I always felt if I knew when I was going to die I would spend all my time trying to change it. Having cancer tells me most likely how I will die. Just a roller coaster ride of ups and downs.
Congrats on your treatment, sounds like things are going well with you.
Sandy :)

Trubrit's picture
Trubrit
Posts: 1699
Joined: Jan 2013

I was so saddeded when I saw the new about Valerie Harper, an actress I'm not familiar with, but that doesn't stop me feeling compasiion and sorrow for her diagnosis. 

What If I were told I had three months to live?  I can imagine, and it aint pretty. 

God bless all of us who are working through this journey. May we have great sucess. 

jen2012
Posts: 1252
Joined: Aug 2012

I agree...it is horrible to hear those words. I feel weird even complaining since im the caregiver and not the patient. I know its worse for him than me since he has the physical difficulties to go along with the emotional.

Saw valerie harper interviewed...classy lady. Said she looks for something positive in each day.

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