Mar 05, 2013 - 2:50 am
I have been ill for several months, but at least for the past 1 month or so I have been having terrible symptoms and I feel like I'm dying....
I had a TVU done on 11-13-12 and they found a 2.3 cm cyst on my left ovary. It's now March and I have seen 4 different doctors bouncing me around (1 Emergency room doctor stating that I had Anaplylactic Shock and a thyroid issue- both of which turned out to be untrue), my Primary Dr who gave me Prednisone & Epi-Pen, 1 Allergy Specialist who tested me for every allergy under the sun and found I am not allergic to ANYTHING! And 1 Rheumatologist who finally gave me a diagnosis of my SYMPTOMS. They have no idea what's going on with me!)
One of my symptoms was FINALLY diagnosed by the last Dr I saw, I was diagnosed as having Venous Stasis, because SOMETHING is blocking my veins. So, all of the blood that's supposed to circulate in my body is pooling in my legs- what's blocking this- no one knows! He asked me about my history with pregnancies and I told him the truth, been pregnant 1 time & had a miscarriage between 4-6 weeks. He said he asked because "a big fat uterus" could be blocking my veins. I have been single for a long while and have not engaged in sexual intercourse in over 1.5 year, so I KNOW I'm not currently pregnant.
What I have had happen over the past 10-12 months or so is: 40 lbs of unintentional/unexplained weight gain (I have Celiac Disease, so I already do not eat Fast "Food." I also, have NEVER gained this much weight ever- especially without trying and without explaination). Most recently since the Venous Stasis, I gained 8 lbs in 13 days! So, I have been having tightening and tightening of my clothing. I look like I am 6 months pregnant! So, abdominal swelling. Abdominal & Pelvic pain (I do have Endometriosis, but this is different pain). Cannot eat much without feeling full/loss of appetite- yesterday I ate 3 apples, today I ate 2.5 apples- that's it. I am having bowel changes, constipation, that's not related to anything else. I am extremely and severely fatigued ALL of the time. I now have full body swelling, mainly in my abdomen and below. My legs and feet are so swollen. I have sudden urges to urinate and then I urinate for a LONG time. If I do try to eat more, like an actual healthful diet- I vomit. Also, all of last year- despite the weight gain- I didn't have a period every month. I had about 3 periods last year. I have been feeling absolutely miserable for such a long time.
The Radiology Dept called me yesterday, Sunday at 10:21 am, I was at church. They never bothered to call again! Instead I got an email from my Doctor (I have an HMO) and he gives me the number said they were calling & couldn't get a hold of me- I didn't get that message till this evening. So, today was wasted because I didn't know which department was callling to set up my scan- a scan with Radioloy of my abdomen and pelvis. I also messaged my OB/GYN and told her what was going on. I asked her details about the cyst that was found in November and how she knows it's gone. She doesn't. She stated that if I still have pelvic pain, which I do- than she would make me another appointment for a TVU. So, I emailed her back and asked her if she would please schedule one.
What were your Ovarian Cancer symptoms? Did you ever have Venous Stasis for any cancer? What is the likelihood that a cyst can turn maligant when I do have a family history of GYN cancers and colon cancers?
I believe that they won't take me seriously because I am 33 years old. How old were you when you were diagnosed? Were your symptoms anything like what I'm describing I'm going through?
Thank you & blessings,