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CT Scan today - other information

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

I had my CT scan today and I'm happy to report I'm still NED!  The oncologist was very encouraged and what a relief!  I had scanxiety bad this time.  I took Ativan the last two nights so I could sleep.  While there I asked him some other questions:

 

SHINGLES VACCINE:

Generally he does NOT recommend because:

1. It was not tested on cancer patients or patients with immune system issues (HIV, immuno-suppressed, etc.)
2. If patient is immuno compromised/suppressed, can cause chicken pox and all kinds of problems.   He also stated that it's rare for someone to have shingles more than one time (but it is possible).

FAST TEST RESULTS:

I asked how I get results so quickly there where others here on the site have to wait, etc.  He stated that they have labs and personnel there on the campus and it's all digital.  They don't have to send anything off for results, etc.  He said it's very helpful to the physicians and patients so they can test and consult in the same visit and not have patients who live far away to make additonal visits.  Also, it helps them to respond/react quicker to patient conditions.  Where I go is part of a medical school and is a teaching hospital - which means I often have to tolerate students and interns visiting me (especially during treatment in the hospital) but it's generally not been a problem. 

I am very grateful for all of you on this site and for those weathering gloomy clouds right now, I truly hope the sun comes out soon :).

Biggest hugs,

Jim

animated sun photo: Sunny Day animated sun sun.gif

 

 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Jim,

  That is great to hear. It usually takes me 2 days to get my results. Thats when my anxiety starts. Again, that is the BEST news I heard all day. Now, put that target back on your back. LOL John

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

LOL, John.  Thank you, sir.

 

 

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Jim

So very happy to read your post. You are amazing and it shows. Continued good health and tons of happiness.

Huge hugs my friend,

Lisha

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thanks Lisha.  Now if I can win the lottery and take us to France ;).  Wait, I have won the lottery - I hope I learn how to spend it wisely :).  Think of you often.

illead's picture
illead
Posts: 524
Joined: Aug 2012

That is absolutely wonderful news.  Some of it must be your positive attitude and sense of humor.  I think I can speak for all of us and send you a ginormous HUG!!!!

Stay well, our friend, Bill And Becky

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Gracias mis amigos.  Glad you hit the jackpot with the whales - that had to be humbling and awesome!

illead's picture
illead
Posts: 524
Joined: Aug 2012

Margaritas tonite for everyone......our treat.  Yes the whales were awesome, brings tears to your eyes.  Congrats again, B&B

onlytoday's picture
onlytoday
Posts: 586
Joined: Jun 2010

Jim,

 

You made my day dear friend!!!  So very happy for you!! 

 

You are always so uplifting to all and just an extremely kind presence. 

 

So you best be out celebrating tonight!!

 

Love ya,

Donna

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thanks Donna and for the comments.  I have to tell you, if they ever recorded me early in the morning before I've had my coffee to greet the world (SLOWLY) or my occasional impatience behind the wheel (of a car), "kindness" probably wouldn't be the caption ;).

Hugs

anliperez915's picture
anliperez915
Posts: 751
Joined: Sep 2011

Awesome news Jim!!!! I'm so happy for you, you deserve the best in life!!! ((((HUGE HUGS)))) 

Sincerely,

Liz

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thank you Liz! Everyone has been so kind and I sincerely appreciate it.  

Texas size hugs to you. - Jim

ThisisLife's picture
ThisisLife
Posts: 98
Joined: Jul 2012

That's awesome news Jim!!! So happy for you!!!

I'm up in Canada and in the area where I live, it is all digital too. For some things they can have the results the same day.  It sure beats having to wait for days.

Sharlene

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Jim,

 

So happy to hear about your results.  I agree that your positive attitude and sense of humor (which cracks me up by the way) has alot to do with your recovery.  You truly are amazing.  Go out and celebrate!  You deserve it.  Keep playing lotto.  You never know.  We could all be on a plane before you know it.

My mom is also at a teaching hospital.  Stony Brook University Hospital.  Which my son attends.  He is in his last semester (Neuro Biology Major).  Today, my sister called me after her oncologists came in.  Looks like they are going to send her home this week.  All cultures are negative.  They want to wait an extra week or 2 before another chemo treatment so she can gain some strength.  They also said her cancer is in gross remission.  have you ever heard this term? 

Again, Hugs!!!! Love, Emily

 

 

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Hi Emily and thank you.  I haven't heard the term "gross remission" but I think this is probably good news.  I looked up "gross" in terms of medical use and probably what most applies is "visible to the naked eye"  I would contact her oncologist to get clarification on that but I suspect it is really good news (fingers cossed). I saw somewhere else where it meant "no symptoms at all" but that was in a blog/chat post.

I hope she gets to come home soon - I'm sure it would lift her spirits greatly.  I think all in all, you have received good news and I'm glad!  Please update us and let us know what you find out about the term "gross remission".

Again, thank you for  your words.  I haven't bought a lottery ticket in ages and ages - maybe I will this week for fun - who knows - right?

Hugs back,

Jim

lianadw's picture
lianadw
Posts: 72
Joined: Jan 2013

Hi Emily,

Glad to hear that your mom will be going home soon and that her cancer is in remission.

Cheers,

Liana

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thank you Sharlene.  Yes, I think I have been spoiled.  It would be difficult to wait for results now.

Hugs - Jim

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hey Jim,

  YIPPEE! I am so thrilled for you! I woke up this morning with a sore throat, headache and ear ache...went to the doc and now on strong antibiotics..UGH! Please enjoy this wonderful news and treat yourself to something something special! Much love...Sue

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

You been kissing those fish at the river again haven't you? LOL  Sorry you're under the weather - there have been so many things going around this year.  My niece's kids have had several things this winter and I've had my share of sinus and crud issues.  I plan to do something to celebrate later this week or next week with family.

I hope you feel better soon and thanks so much.  Oh, when is your scan coming up?

Jim

cathyp's picture
cathyp
Posts: 366
Joined: Dec 2009

Wonderful Jim!!!!  

(Ask your doc if he wants to meet me, having had shingles for 15+ times now and most of them in the same place!)

Take Care and Enjoy!

Cathy

 

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thanks Cathy.  That sucks about the shingles.  I had them once and that was enough and it was a relatively mild case I think.

Hugs

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi Jim,

 I still haven't got a call yet for a date....guess they have to clear it with my insurance first. I'll let you know when I find out. By the way...I talked to my doctor today about the shingles vaccine and he has now decided he does NOT want me to get the shot. I told him what Cathy had said and what your doctor said, so maybe thats why he changed his mind. I'm thinkin HE should have known more about this before telling me I could get the shot in the first place. Makes me wonder how competent he is...ya know? Oh well...at least now we know NOT to get the shingles vaccine. Sue  (FNHL-2-3a-6/10)

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Sue,  So sorry you are not feeling well.  I'm sure the antibiotics will kick in soon and you will be back to normal.  Get some rest.  Love Emily

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi Emily,

 I've had 3 doses of antibiotic now and I am feeling better this afternoon. Pressure in my ears is gone and the headache is much better. Throat is still a little raw, but by tomorrow I'm sure most of the icky stuff will be gone. Thanks for caring...sooo much crud floating around, I hate to even leave the house..Tongue Out! Take care sweetie, hope you are resting too and your mom is getting better...Love...Sue  (FNHL-2-3A-6/10)

lianadw's picture
lianadw
Posts: 72
Joined: Jan 2013

Hi Sue,

Glad to hear the antibiotics are working their magic and that your feeling better!

Cheers,

Liana

carolp99
Posts: 70
Joined: Aug 2012

So happy for you Jim.  Like everyone else on this board I have to agree that you always offer such wonderul insight and positive thoughts.  Very happy for you.

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thank you, Carol.  I have been very fortunate and blessed and am grateful. 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1081
Joined: May 2012

You the Mann !

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thank you, Max :).

lianadw's picture
lianadw
Posts: 72
Joined: Jan 2013

Cheers to you continued good health!

big hugs!

Liana

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thanks Liana!  

Been thinking of you as you get ready for the STC.  I hope all is well and you know we're beside you, "soldier" ;).

Bigger hugs back ;)

Jim

anliperez915's picture
anliperez915
Posts: 751
Joined: Sep 2011

Hi Liana,

Just wanted to chime in and to let you know that I'm also thinking of you! Hope you're doing well and that everything is running smooth with your SCT, please keep us updated when you feel up to it! (((HUGE HUGS)))

Sincerely,

Liz

40yearsandcounting
Posts: 14
Joined: Dec 2012

Jim- 

Haven't been on for a while so I just saw this. WONDERFUL news! I'm so happy for you. Thanks so much for everything you do for all of us. Your thoughtfulness and wisdom have helped many a survivor. We need you!! Take care- Erin

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thanks Erin.  How are you doing?  Hope all is good with you and yours.

Jim

Aaron's picture
Aaron
Posts: 238
Joined: Jun 2012

Hey Jim, that is wonderful news. It always makes me smile to see good things happen to good ( or great! ) people. Sorry it took so long to post, I thought chemo was tough until I started driving a bus full of middle schoolers around ;) be well my friend.

jimwins's picture
jimwins
Posts: 2021
Joined: Aug 2011

Thanks Aaron.  LOL - I don't know if I could handle kids well at that age without medication Surprised.

Hope you and yours are doing well.

Jim

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