Mar 04, 2013 - 10:51 am
I am 33 years old and was diagnosed with Grade II Oligodendroglioma in October of 2012. I had surgery the next day to remove the tumor and the surgery was very successful. They told us after the surgery that they think that they go all of the tumor, but there were some gray areas in the spot still. When we asked about these they told us it was either pieces of the Tumor still there, an infection, or scar tissue. In case it is tumor they have recommended Temodar 300 MG once a day, one week per month for six months. I am starting this today and am very nervous to take a chemo drug. What have your experiences been with this drug? Is it normal for me to be this scared to take a this drug? I am sorry to post this here but I feel that no one else around me really understands what I am going through and how hard all these decisions are for a person to make. I thought I could get some insight from people here who have had first hand experience with the disease and Temodar. I should note that they recommened radiation, but I at this time will not allow that to be done to me as I feel it is dangerous.