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My doctor seems crazy =/

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Had a follow up today for my Fav Doctor and he examined my glands on neck and groin his words were ( the glands are too small to be lymphoma )

he gave me some sheet of paper and said he thinks i have Bornholm Disease, due to blood work chest xray and utrasound all coming back fine =/

 

im more confused then ever he said that the lumps in my groin are typical for someone who is skinny like me....... this has just made me more worried as i can find no mention of swollen glands being connected to Bornholm Disease =/ very confused and still worried!!! =[

 

No Biopsy for the time being i hope everything starts to settle down soon! =[

more blood tests!!

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Not to be short or anything, but you need to seek a second opinion right away. You sound as if you have a God wanna be Dr. You rely on them because you know something is not right and they want to come across as they know your body better than you do. If they are wrong in their diagnosis all they say is, Oh well, win some lose some. In the meantime you may be wasting precious time. There is definitely something that is not right. Seek that 2nd or even 3rd opinion till you get your answers.  John

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

I have decided to wait for the blood results to come back to see what they say my neck glands seem to be going up and down in size everyday =/ and the groin glands feel slightly smaller and more " rubbery " then hard...... i don't know anymore =/ 

 

all these different diagnosis e.t.c none of my doctors i have talked to seem to worried about Lymphoma 

x3 Doctors at the doctors office

x3 Surgeons at A&E

x3 Medical doctors at A&E

 

out of all them doctors one of them should of been worried about lymphoma if it was right? =/ so many different doctors...

 

has anyone heard of stress causing swollen glands? =/

 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Ask one of the Drs. to refer you to an Oncologist to rule out Lymphoma for sure.  John

NANCYL1
Posts: 225
Joined: Jun 2012

Have you seen yet an Oncologist/Hematologist??

I had a number of tests, the final one was a Bone Marrow Biopsy.

I would  get another opinion from an Oncologist.

 

Nancy

 

jimwins's picture
jimwins
Posts: 1984
Joined: Aug 2011

What are the symptoms?

The main symptom of Bornholm disease is severe stabbing chest pain, which is often made worse by deep breathing, coughing, or sudden movements. The pain tends to come and go, with episodes lasting 15-30 minutes.

Bornholm disease sometimes also causes tummy pain, fever, headache, sore throat, and muscle pain.

These symptoms usually start suddenly and persist for several days before going away, without the need for treatment. However, they may return.

====

Quick response - I'm at cancer center getting my scans today.  There is no mention of swollen glands with that disease though I suppose it's possible.  

Scanxiously, Wink

Jim

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Also keep getting a naggy pain / Discomfort under my right rib cage =/ 

allmost60's picture
allmost60
Posts: 3155
Joined: Jul 2010

Hi,

Your stress level is so high right now that I think you might be overthinking everything. I'm in favor of a second opinion at a clinic that is NOT afilliated with the multiple doctors you have already seen. Are you on medication for anxiety? If not, you might want to ask about getting on a low dose to give your brain a little rest. Hang in there.

Best wishes...Sue  (FNHL-2-3A-6/10-age62)

jimwins's picture
jimwins
Posts: 1984
Joined: Aug 2011

I agree with Sue, Tank.  I'll be here at the cancer center for probably another 2-3 hours.

Hang in there! - Jim

allmost60's picture
allmost60
Posts: 3155
Joined: Jul 2010

Hi Jim,

 Good luck today with your scan! I hope you find out your results in a timely fashion. I still haven't received a call yet to schedule mine, so my anxiety level is low right now. Let us know what you find out.  Sue (FNHL-2-3A-6/10-age62)

jimwins's picture
jimwins
Posts: 1984
Joined: Aug 2011

Thanks, Sue!  Just had my "margaritas" about 20 minutes ago.  Should do the CT scan in about another 20-30 minutes.

Hugs

 

allmost60's picture
allmost60
Posts: 3155
Joined: Jul 2010

Hey Jim...

 Every time I get my CT scan I always forget about that crazy "warm" sensation that goes through my body from the contrast. First time I had it done I yelled out.."Uh oh, I'm going to pee my pants" Surprised...the radiologist calmly said.."no..it just feels like your going to". ha! Smile Just thought I'd remind you...Sue

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

good luck Jim!!! heres hoping all clear!!!  

i can't go anywhere else nhs is very limited to loctions usually only doctors office or accident and emergency :/

allmost60's picture
allmost60
Posts: 3155
Joined: Jul 2010

If thats the case, then I would be persistant as hell and not let long lengths of time lapse between voicing your concerns to every doctor working on your case. You have to be your own advocate, so let your voice be heard until you get some answers. The squeeky wheel gets fixed first. In the meantime you need to get a grip on your emotions to bring your stress level down. Meds, counseling, clergy, local support group...whatever it takes... but do something to lessen the stress. Sorry buddy...I just don't know what else to offer in the form of advice. Keeping you in my prayers and good thoughts. Best wishes....Sue  (FNHL-2-3A-6/10-age62)

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Agreed and i can't thank you all enough for your advice it reallly does make me feel better knowing people care =[

 

P.s Urine is now cloudy? any thoughts? =/

GKH
Posts: 288
Joined: Jul 2012

Have you traveled to the tropics recently? Have you been around sheep, deer or goats?

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

nope no contct with any farm animals going back to doctors in morning original neck glands feel smaller but new one popped up just to left under chin :/ going to ask for referal to ent its small and i can move it but is kind of rubbery feeling 

NANCYL1
Posts: 225
Joined: Jun 2012

Sue:

When I had a Scan last year the technician actually handed me a note giving me information about the scan.  The note added that the warm sensation might cause you to think that you might "pee in your pants."  It went on to tell you not to worry; that would not happen!

Nancy

 

NANCYL1
Posts: 225
Joined: Jun 2012

Sue:

When I had a Scan last year the technician actually handed me a note giving me information about the scan.  The note added that the warm sensation might cause you to think that you might "pee in your pants."  It went on to tell you not to worry; that would not happen!

Nancy

 

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Jim,

 

Good Luck with your scan.  Please let us know as soon as you hear something.  I'm sure all is good!!  Go and drink real Margaritas when you get home..LOL  Love, Emily

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