Mar 03, 2013 - 1:35 am
I am Wolfen and originally from the Colon Board. I joined in 2009 to support my daughter, Johnnybegood, also a member. What a journey she has been on. Lots of surgeries, colon and liver, rads, and too much chemo to count. She recently underwent a Spleenectomy in the hopes to raise her platelets so she could resume Avastin. It appears to have been successful so now she can attack those little buggers again. She apparently has 38 tumors in her lungs now of the colon cancer mets and is inoperable.
I am rather a lost soul, I guess, as I post on the Colon Board, H&N Board, and Lung Board. In Oct. 2012, my hubby of 40+ years was diagnosed with Stage 4 BOT, nasopharyngeal and lymph node involvement of the squamous cell type. Following a lung biopsy for the spot discovered during a PET, he also has Stage 1 lung cancer of the adenocarcinoma type. He also appears to be inoperable for the lung cancer as it is very near his pacemaker/defibrillator. However, the lung cancer is more aggressive at this point so will be treated first. He'll be starting 10 treatments of rads on Mar. 4. They cannot do chemo and rads concurrently due to his heart condition, diabetes, and compromised kidneys. Some dingbat gave him contrast dye in the PET/CT which put him in CHF and acute renal failure in Dec. 2012. In the ER, another 3 idiots tried to force a foley into him as he vehemently told them it would be impossible due to scar tissue. They succeeded in damaging his prostate and almost closing off his bladder. This put him back in the hospital in Jan. 2013 with CHF again. There has been such a delay in finally being able to start cancer treatments that his original 4 rads for the lung cancer have now become 10, and his H&N treatment has been pushed further back. I am way beyond frustrated. I am ANGRY, ANGRY, ANGRY. They have, in effect, killed my hubby right along with cancer.
A week ago Fri., he had prostate/bladder surgery and this past Tues., he had 13 teeth extracted, chemo port, and feeding tube put in. He's so weak he can't stand up alone. So please wish us luck as he embarks on the most hazardous journey of his life.