Mar 01, 2013 - 2:50 pm
As of yesterday (appt w/onco), I am starting the new chemo drug just released for her2 +, CADCYLA. Even with all of the black box warnings, we have decided to try it. The upped dose of Fentanyl has not had much effect with the pain in my back, ribs, legs etc. as it continues to increase. WE are hoping that this will tartget all of the tumors and help with the pain.
The hardest part of all of this is the risk of my compromised immune system tolerating it without developing a super infection or major allergic reaction. I am scared, but hopeful! Scared because being told with the last 2 that my body could no longer tolerate any chemo, but hopeful that after 3 + months off that my immune system has healed enough that this will not be an issue.
This is a sucky disease which has caused me to walk crooked! With this I have laughed when I walk past a long mirror and then realize it is me that is looking back! This warped sense of humor has gotten me through this far and hoping it stays with me to the end!
This new drug is done as an IV push over an hour and a half hour for the loading dose, preceded by herceptin, then decadron, so it will be 3 plus hours with the first one, then about 2+, but hoping the benefits outweigh the negatives!