Mar 01, 2013 - 1:08 pm
We were told that dad had response to chemo/radiation. All the biopsies came back negative and the Pet Scan showed that the lymphnodes responded. However, when I read the pet scan results he has a lot of uptake with SUV numbers. When I asked the doctor she said that it's from inflammation. His last radiation tx was 1-10-13, and pet scan was done 2/22 so she said that it was actually early to be doing pet scan but they were impressed he responded. I want to celebrate the response but I'm having a hard time doing so because I'm doubting the response now since the pet scan was done early. I am grateful that he did show a response because it got us some "bonus time". I did speak with her at length about dad having the surgery and she said that right now he isn't well enough. She wants us to try and get him eating 2,000 calories daily for the next 2 weeks and then return to her to re-visit the surgery idea. I told her I was already getting my second opinions about it and she said that she is also going to call a close friend of hers that is thoriacic surgeon for second opinion.
Surgery is completely up to dad, but they were saying that if it comes back in a different area its automatic stage 4 or if same region it's a re-occurence and treatment options are limited. Then theres a chance even with surgery it could come back. This IS HORRIBLE. Right now my father is scared to do the surgery and told me last night he's not ready to die either. I don't know what to do. The outcomes they gave us yesterday isn't good.