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Pet Scan Results

Brenda Bricco's picture
Brenda Bricco
Posts: 550
Joined: Aug 2011

 Dennis got PET this morning and results in the afternoon with PA. The report wasn't in but the images were... she told us that there was a 4.6 tumor on the right side of the liver (side that was resected 65%). We left to only get a call from her a few minutes later to tell us that the report says that is two lesions near each other one is 5cm and the other is 1.5cm (do I have this right, do they measure in cm?). She said that the radiologists felt that there were several options i.e, chemo beads, chemo, HAI (I think I like what I have heard about HAI) or another resection. I find it interesting that the mets came back on the side that was resected and didn't the side that was RFA'd. hmm

I guess with the rising CEA and the results of the CT I knew it was there some where (most likely liver mets but was praying that it wasn't any where else). The PA walked in the room and said it's not good news ( I almost passed out), she proceeded to show us the liver tumors as I waited to hear that it was in other organs (it's not). How sad when you learn to celebrate that your loved one has cancer in "just one organ". I am so sad that my husband has to continue on in this night mare but so thankful that we have options.

The plan is to consult with liver surgeon in Madison on Tuesday the 5th but if anyone has any experience with a second resection or any other of the treatments for a reoccurance I really need to hear your thoughts/experiences.

I see there was some good news on the board today which is awesome (Congrats Phil) and that really helped. I didn't realize how happy I could be to see good news for others on a day that we got bad news but it really does feel good to see that one of us has good going on for them. I know we are all on a heck of a ride here but I wish miracles for us all...

GOD's blessings.

Brenda

 

 

 

 

 

 

 

Trubrit's picture
Trubrit
Posts: 1430
Joined: Jan 2013

Hope you look back in soon so we can get an update on your beloved. 

Brenda Bricco's picture
Brenda Bricco
Posts: 550
Joined: Aug 2011

Something is horse #hit... not sure what happened to the body of my previous post. Tongue Out 

sdp's picture
sdp
Posts: 146
Joined: Jan 2012

Hi Brenda,

When did he have his resection done ? What was the scan report immediately after resection ?
Was he on any chemo or maintenance chemo after the resection?

From the scan or the report can you tell if mets are in the areas which was cut out ? Is there a chance that the margins left by the surgeon during resection inadequate ? What is the trend of his cancer markers CEA And CA 19-9? Have you asked the doc if RFA is feasible in his case ? That would be less invasive then a resection.

I had my resection of liver in august 2012. Rfa of two tumors in sept 2012. The Pet scan after resection in November 2012 showed 3 minor spots light up at the area where it was resected. However, no other area and even not where RFA was done.

Was on maintenance chemo of erbitux till now. Will have the scan done in a week and then decide further treatment plan.
In the meantime if you can have some replies to my above queries it would be most helpful.

Brenda Bricco's picture
Brenda Bricco
Posts: 550
Joined: Aug 2011

When did he have his resection done ? Feb 22, 2012 

What was the scan report immediately after resection ? Clear
Was he on any chemo or maintenance chemo after the resection? Xeloda for 6 months

From the scan or the report can you tell if mets are in the areas which was cut out ? Not sure, will have to ask

Is there a chance that the margins left by the surgeon during resection inadequate ? Probable, they took as much as they could (65%)

What is the trend of his cancer markers CEA And CA 19-9? Dropped immediatly after resection as low as 9 and then started heading up Dec 2012

Oh, and he is Kras Mutant

Have you asked the doc if RFA is feasible in his case ? That would be less invasive then a resection.

 

KayeKay's picture
KayeKay
Posts: 122
Joined: Jan 2013

im having my 2nd liver resection on the 12th. Mine came back just in my liver too. This is actually a good thing when resection is an option. again. i hope all goes well and if u ever have any ?s or just wanna talk im here:)

Brenda Bricco's picture
Brenda Bricco
Posts: 550
Joined: Aug 2011

Same here KayeKay but I am a night owl...I can't lull my mind to sleep most nights. But if you find yourself pecking around late at night, look for me. :)

 

wolfen's picture
wolfen
Posts: 1194
Joined: Apr 2009

Just hate that you guys are on the front line again. So hard to outrun this krap.

JBG had a resection and a few months later she had a microwave ablation, which may be the same as RFA, just different terminology. It was a walk in the park compared to the resection.

Sounds like your Madison team is right there waiting to fight for you.

Best of luck with your options. I know you are a person of strong faith. As Bruce says "Never Ever Give Up."

Luv,

Wolfen

 

AveriRN's picture
AveriRN
Posts: 61
Joined: Aug 2004

Hi and so sorry to hear your news. Dx'd at 32, stg iv with liver mets 9+ yrs ago. After initial colon resection, had 2 tumors 1 on each side of liver resulting in 50% of liver removed. NED for 13 mos and 2 tumors back in liver, 1 each side, so 50% resected again. They attempted to place HAI pump but were unsuccessful leading me back to chemo regimine. That was Feb '06 and I have not had any issues with liver since that time so know that this hurdle can be overcome. Sending well wishes for hubby and u tht this next step will absolutely take care of it. 

Sincerely,

Averi

janderson1964's picture
janderson1964
Posts: 1577
Joined: Oct 2011

First of all I am glad that you have faith. I have had 3 liver resections. The first 2 were wedge sections on the right lobe. They took 75% of my liver the third time. All of the right lobe and part of the left. I have been NED for 14 months since the last surgery.

PatchAdams
Posts: 272
Joined: Nov 2011

I'm so sorry to hear your news.  The 5cm is quite large.  1.5 cm is slightly smaller than a dime. 

It seems odd that there would be such a large tumor so quickly after resection, and especially since his PET was clean in November.  I would assume, like others have mentioned, that this tumor is from the area where they had to stretch (near the portal vein) to be able to cut as much as they did.  Sounds like they didn't get clear margins.

Another resection with an HAI pump sounds like a good option in my limited knowlege.  Here's a link on 2nd resections.  Smaller than 3 cm, longer time to recurrence, colon vs rectal all have better outcomes than their alternatives but this will bring you hope!

Two-Stage Resection and Improved Chemotherapy Regimens Lengthen Survival for Patients with Liver Metastases from Colorectal Cancer 

 

I know you're a woman of Faith but I also know the whispers of the enemy.  Listen to your heart. Turn to scripture for comfort.  It's in HIS hands! He's got this! 

jen2012
Posts: 1196
Joined: Aug 2012

Im sorry you didnt get the good scan we all wanted for you guys...i will keep you in my prayers and thoughts.

annalexandria's picture
annalexandria
Posts: 2213
Joined: Oct 2011

but thank goodness he still has options.  I have seen other people with liver involvement who had to go through several procedures to get to NED long-term.  I personally have had to go through five surgeries, with recurrences each time,  to get to stay in NED-land for a while, so hopefully this will just mean another challenge that he can meet and overcome.  Hugs to you both~AA

PS  I woud consider adding in cimetidine if he does any more surgery, if you haven't already done so.  One of those "can't hurt, might help" things.

janie1
Posts: 753
Joined: Apr 2011

Brenda, as you can see, many people have more than one liver surgery, so it's not uncommon and hopefully Dennis will get to NED.

I am curious if you had a sly doctor like my surgeon, who did not get clear margins, and did not tell me. What he did say (to talk around it) was that he got "everything he could SEE". Oh, and I fell for it.

If you want to, check out the pathology report from his surgery.

I assume all places do this....but I'm not positive. If they get "clear margins", it will be written in the pathology report......if not.....then nothing is said. It won't say "unclear" or "not clear" margins......it just won't say anything about margins.

Also, it sounds like the lowest cea Dennis had since surgery was 9......so that may mean that they did not get clear margins. They just didn't tell you.
Just doesn't sound like he was ever really NED. It just was too small to show up on scan right after surgery. That's why now I would ask about clear margins and then I would feel better knowing that the chances are better with that, then waiting until something shows up on a scan.

I hope the surgeon/onc was honest with you, but mine wasn't and that really breaks the trust. And I went to the #1 hospital.....HA....the joke was on me.
I will never get over that.

I just want you to know this in case he does have another surgery. You will want to ask these questions.

Annabelle41415's picture
Annabelle41415
Posts: 4243
Joined: Feb 2009

Sorry your hubby and you didn't get better news on the scan.  Hoping that your new plan will reduce them.  I've been away from the boards, but have been thinking about you both.

Kim

alexinlv's picture
alexinlv
Posts: 192
Joined: Jul 2010

i think our husbands are facing the same battle again at the same time as before. tony has a 4.6 cm recurrance in the liver.  has also has a spot in his lung.  Oh boy, what a ride  we went to radiologist early his week who said resection is the best bet and he wouldn't do RFA based on the location of the liver tumor.  Il will be keeping you both in my prayers.  

tina dasilva's picture
tina dasilva
Posts: 632
Joined: Sep 2010

Brenda im so sorry to hear about your news about your husband hugs Tina

tina dasilva's picture
tina dasilva
Posts: 632
Joined: Sep 2010

Brenda im so sorry to hear about your news about your husband hugs Tina

sdp's picture
sdp
Posts: 146
Joined: Jan 2012

Brenda,

i am facing a similar situation it seems. Cancer markers show elevated levels And I will soon be doing a pet-ct. look at my recent post under " rfa to Tumor ...." 

That explains the situation I am in. Will have a better ideas a few days after I get the scans done. 

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