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TheresaM1's picture
TheresaM1
Posts: 9
Joined: Oct 2011

Smile

Hello, my name is Theresa.  I am 44 aDiana's diagnosed with PPC in October of 2010. I look forward to meeting others like me... In the PPC boat.  

Theresa

PatsieD
Posts: 100
Joined: Jun 2012

Welcome Theresa... x

JulieL's picture
JulieL
Posts: 141
Joined: Jan 2012

Welcome to this exclusive group!  I, too, have PPC - diagnosed December 2011.  I have had carbo/taxol, debulking surgery, doxil (but this was not good for me) and now on Gemzar which is helping me and easier to tolerate.   Whilst I have not had much of a remission (just  couple of months following carbo/taxol) I am currently feeling really good and very positive.   I am about to start going back to the gym (gently!) with my Oncologist's blessing.  Anything we can do to make life as "normal" as possible is a great help.   I wish you well.   Are you currently in remission or still undergoing treatment?

Julie

Kostas Konstant...
Posts: 6
Joined: Mar 2013

Hi to all

 

My mother 72 yr has been diagnosed with PPC and ovarian cancer (5 cm) 2 weeks ago. We all reside to Greece (Greeks but I have been educated in US)  as y may understand from my written english language. We are at a state of despair. Today we will hear about the results of biospies. Any hope and ways to handle this issue? 

 

Many thanx

 

Kostas Konstantopoulos

lulu1010's picture
lulu1010
Posts: 367
Joined: Feb 2011

I was diagnosed with PPC in August of 2010. I had chemo, surgery and more chemol. I then was in a vaccine clinical trial but my cancer returned after 9 months and then I tried Doxil which did not work and then I did 6 doses of Carbo. My ca125 is about 14 right now and I feel tired but well. We did not do a CT scan this time because it usually doesnt show what is going on. May have to get one soon. Not planning on seeing the Dr till May. I am glad you found this site. I might add that I am BRCA 2 positive. I am glad you found this site. We all benefit from each others support.

Linda

Nflinchum
Posts: 74
Joined: Jun 2012

Hi Theresa I was dignosed with Plc in December of 2011 stage 4. I had a 5 1/2 hour surgery and 9 treatments of chemo. As of feb 2013 I am in remission but my CAs are still a little high. Cancer and chemo robbed me of so many things but I am thankful to be alive.

dorothymarion's picture
dorothymarion
Posts: 28
Joined: Apr 2012

I was diagnosed with PPC in February, 2011.  After seven rounds of carbo and taxotere, I had surgery in August of that year to remove my ovaries and the omentum.  Since then I've been on several different chemotherapies, each with their own side effects.  My hair fell out, then grew back, then fell out again but I consider that low down the list of priorities.  Right now I'm on Taxol, three weeks on and one week off.  After just two treatments my CA125 level went from over 11,000 down to just over 6,000 which, for me, is a wonderful drop!  Hopefully, as I continue on with this treatment, those numbers will continue to come down. 

Theresa and Kostas, I found this forum to be so very helpful.  When first diagnosed back in 2011, I went online and read so much doom and gloom about this particular form of cancer, and yet, coming here and reading the posts of other PPC patients, I learned that there is always hope.  I've always believed in staying positive, and tell myself often that I have cancer, but it doesn't have me!

Dorothy

Kostas Konstant...
Posts: 6
Joined: Mar 2013

Thank you so much for the encouraging words!!! My mom just started chemo (2 days ago) and she feels a lot of pain in her whole body. The doctor said that this is a usual side effect and asked for taking 2X500 mg paracetamol (Panadol). If you have experienced the same side effects please let me know what kind of solution you found.

 

Thank you so much for your answer. I really appreciate your courage (all of you) and I will be here to share with all of you anything that may be useful to this small community

 

Kostas

Kostas Konstant...
Posts: 6
Joined: Mar 2013

Thank you so much for the encouraging words!!! My mom just started chemo (2 days ago) and she feels a lot of pain in her whole body. The doctor said that this is a usual side effect and asked for taking 2X500 mg paracetamol (Panadol). If you have experienced the same side effects please let me know what kind of solution you found.

 

Thank you so much for your answer. I really appreciate your courage (all of you) and I will be here to share with all of you anything that may be useful to this small community

 

Kostas

Kostas Konstant...
Posts: 6
Joined: Mar 2013

Thank you so much for the encouraging words!!! My mom just started chemo (2 days ago) and she feels a lot of pain in her whole body. The doctor said that this is a usual side effect and asked for taking 2X500 mg paracetamol (Panadol). If you have experienced the same side effects please let me know what kind of solution you found.

 

Thank you so much for your answer. I really appreciate your courage (all of you) and I will be here to share with all of you anything that may be useful to this small community

 

Kostas

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

Hi Theresa and Kostas:  We're here for you.  I was diagnosed with gallbladder cancer in October 2009 - the cancer had already spread to the liver and the peritoneum.  I was given 2-3 months then but I'm still here.  I have had various chemo treatments - gemcitibine and cisplatin followed by folfirinox (oxaliplatin + irenotecan + 5FU).  My last chemo was May 2012 when I ended up in hospital for 5 months with a perforated bowel.  I was in ICU on life support for 1 month but made it through that.  I cannot have the peritoneum HIPEC surgery (turned down) so not sure what treatment they'll try next.  But the peritoneum nodules have not grown much since 2010.  I had high dose radiation on my liver tumour and that seems to have worked well.

 

Well, good luck to you and again welcome.  This is not a common disease!

 

Cheryl

JoannZ's picture
JoannZ
Posts: 5
Joined: Apr 2013

Hi everyone! My name is Joann. I am 61 and was diagnosed with PPC in April of 2012. I am so happy to have found all you lovely ladies. 

It is so great to be able to share our feeling with others, who know what it's like to fight this monster.

Joann

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