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Unsure and very worried!

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Hi there first time poster, nice to meet you all, about 4-5 weeks ago i noticed 2 glands ( one either side ) in my neck had swollen up but no pain came from this so  i went to doctor and he told me that unless they had been up for 8 weeks or more he didn't care ( the actual words he used ) so i trusted him and kept on going but now i have 4 glands swollen in my groin area 3 on the left one on the right, the ones on the left are very tender and cause  me pain and discomfort also more glands in my neck have popped up again with no pain.... i feel fine in myself but am in hospital now overnight for observation.

 

I am freaking out! I am 22 years old and lost my father to cancer in October 2012 and i don't know what to do with myself.

going for chest Xray tomorrow and an ultrasound on my lower abdimon so far my only symptons are

 

- Very occasional night sweats ( but i always put this down to some sort of dream i was having )

- Swollen Lymph nodes in throat and groin

- Painfull lymph nodes in groin ( left side )

- No nausea at the moment except the sick with worry feeling 

 

Any questions please feel free to ask and any advice is welcome 

I Admire everyone on this site for how supportive they are being for eachother, it really does bring a tear to my eyes and i think you are all wonderful people! God bless 

 

Phill

 

 

NANCYL1
Posts: 225
Joined: Jun 2012

Hello Phil:

I was diagnosed with lymphoma early in 2012.  Had regular checkup and regular blood test.  My internist found that my white cells were high.  She sent me right away to an Oncologist/Hematologist at a cancer center nearby  Am having Rituxan infusions every six months.  Finish this at the end of this year.  Am doing well with the Rituxan.

I hope you are seeing a cancer specialist, an Oncologist.

I am sure others will get back to you soon on the board.  Maybe with more information. 

You are going through a terrible time having lost your father recently on top of this worry.  The people here are very empathetic and helpful.

I hope your X-ray and Ultrasound tomorrow are good.

Let us know.

Nancy

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

I am glad your treatment is going well and I hope you are not in too much pain / Discomfort.

 I still don't know what  is wrong with me the doctors think that because my groin glands are tender and hurt that I shouldn't be worried too much about cancer. My blood tests all seem to be normal still waiting on a few more to come back though.

 

Will keep you guys informed please any info / advice you guys could give me would be very much appreciated right now.

lianadw's picture
lianadw
Posts: 72
Joined: Jan 2013

Hi Phil,

So sorry about the loss of your dad last year and now this health scare. I think the advice to see an oncolgist is really important. An oncologist will do all the tests that will rule out or confirm cancer. If it is cancer, it is very treatable. I know how scary this can be, but do your best to keep a sense of calm, knowing that no matter what your diagnosis, you can get treated and get well.

I'm being treated for mediastinal diffuse large b cell lymphoma. It's not easy, but the treatment has been manageable. There's a good community here to help us through.

Wishing you all the best,

Liana

illead's picture
illead
Posts: 485
Joined: Aug 2012

Yes Phil, hang in there.  We agree with everyone else, make sure to see an oncologist and try not to worry.  In losing your father to cancer you have already learned "the language" so that probably makes your anxiety worse but like what was said, lymphoma is very treatable and usually reacts very well and fast to treatment.  Please know we care and our condolences to you in the loss of your father, know that is very hard.  Bill and Becky

NANCYL1
Posts: 225
Joined: Jun 2012

Hi:

Just thought I would list the tests I had at the Cancer Center after seeing the Oncologist:

Blood tests, CT-SCAN, PT-SCAN, and a Bone Marrow Biopsy.

Again, I hope things go well for you tomorrow.

Nancy

DadysGirl
Posts: 305
Joined: Aug 2011

I'm very  sorry about what you're going through and especially loosing your Dad. I lost my wonderful Dad in Aug 2012 and there are no words to describe the pain of loosing loved ones... One misses them terribly and life will never be the same without them...  What type of cancer did he have? Similar symptoms? Diagnosis.. My Dad had DLBCL a type of lymphoma but he could not feel see them... You see many people living with cancer for 20, 30, 40 ... Yrs..   Definitely get it checked out  and make sure you don't stop until you get a definite reason for the swollen glands...hopefully it is nothing just some sort of virus infection causing it... Take care and pls keep us up to date... Try to stay calm, try not to worry unless there is a reason to worry... Easier said than done I know.. But try your best not to worry... Even if it is something else, there are so many treatments out there that will cure or put it in remission so keep strong to fightwhatever it may be.. Hopefully it is nothing.. That will clear by itself in time...

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

I'm so sorry to hear about your father - you haven't had time to really heal from that and now you have the scare of cancer on top of that. You haven't been diagnosed yet and let's pray and be optimistic it is not cancer.  I agree with the others - you should see an oncologist.

Please keep us updated and know you got friends here - okay?  You are welcome here anytime.

Hugs buddy - Jim

 

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Thank you Jim and thank you everyone it was incredibly hard losing my father 68 is too young for the age we live in and he is missed everyday by a lot of people friends and family alike 

I am still worried and i will ask to see the oncologist but do you think what the doctors keep telling me is true? My blood work all comes back normal and the docs keep telling me that since my groin glands are tender and causing me pain that i should not be worried about lymphoma..... I really don't know what to think =[ sat in my hospital bed just trying to keep my mind busy by reading and drawing a little. Very odd / scary time right now and i so thankful to have all the support from good people like you lot =]

If you guys do some sort of get together thing i would love to know so i could have the chance to shake all your hands personally =]

 

P.S i do apologies for any grammar spelling and punctuation mistakes that i may type ( Slightly dyslexic and i hate the person who made that word so hard to spell! lol )

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Phil,

 First of all "Welcome". I'm so sorry about the passing of your father, as it's always heart breaking when we lose loved ones. My prayers are with you. May I suggest that you ask your doctor to refer you to an Oncologist/Hemotologist and perhaps ask to have one of the larger swollen nodes surgically removed for biopsy. A CT/PET scan would also be good to have done. I had no symptoms other than a large swollen node in my groin and a smaller one on my neck. No pain or tenderness with either node and my blood work was fine. Only after removal and pathology done on the large groin node was I diagnosed with Follicular NHL-stage3(no bone involvement)grade2-typeA. My CTscan showed other tumors in my abdomen and under my clacical bone. One does not have to have symptoms, pain, or bad blood work to have Lymphoma. If you have insurance to cover the testing, I think it would be wise to follow through with continued testing to get a complete picture of what is going on. If need be, ask for a second opinion from another doctor not afilliated with the doctor you have now. It's better to be safe than sorry, and early detection is always better than waiting...in my opinion. Try to stay calm, but be persistant. Let us know what you find out. Best wishes, Sue(age 62)

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

thank you for the kind words about my father and i really hope your treatment is going well! I will deffo ask to see the oncologist tomorrow after my chest xray / ultrasound i have tried asking the doctors several times if if could be cancer but they just keep saying it's most likley a virus of some kind and my body is having a tough time fighting it... 

 

insurance is not needed as i live in the uk and have the NHS but i will deffo start the nagging process tomorrow! just hard to get all these bad thoughts out of my head =[

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

Don't worry about MISSTAKES, grammar or typos Laughing and LYSDEXIA SKCUS.

Did your father have lymphoma, Phil?

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Not at first it was first in his bowel and then after chemo / surgeory and a year of the all clear it was found in his bowel, liver, stomach and lymph gland behinde the stomach which was in operable =[ 

 

 

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Being discharged! still going for ultrasound but the very angry sounding woman said there is no need for me to be in hospital for swollen glands! she didn't examin me she didn't ask me anything just looked at my blood works and said i should be sent home! i feel.... i don't know how i feel =/

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

Glad you got to go home at least :).  I'm sorry the woman was rude to you.  I assume she was a doctor.  Please let us know how today goes.  As others have stated, try to stay calm.  Do things to distract yourself, take slow deep breaths and exercise some if you feel up to it or take a nice walk.  If you have a pet like a dog or cat, spend some time with them - animals can help calm the nerves I think sometimes.  If your pet is a gold fish, don't take him out of his tank/bowl and hold him - not usually good for fish! Wink  Watch something funny that you enjoy on the "tele" - laughter has a way of breaking tension and giving us a break from worry and stress.

Above all know that you are human and what you are experiencing is very normal, Phil.  It sucks horribly but it's a process you have to work through.  You are dealing with grief and the scare of cancer at the same time and I'm sure a crazy host of emotions that come along with that.   You are young and strong and apparently a very nice, and sensitive person.  As much as it pains me to see one so young having to deal wtih this, I know you will get through this.  If it turns out you become a warrior against cancer (and I'm truly hoping not), you will have us here battling it with you.  If it turns out it's not cancer, we'll sing and dance with you!  You are not alone in this.  I hope you got a little sleep and rest last night and feel a little better today.

Hugs and positive thoughts from across the pond,

Jim

 

 

DadysGirl
Posts: 305
Joined: Aug 2011

Jim is a very nice person... One of a kind!!!

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Not just Jim daddysgirl everyone i can't get over how nice everyone is on this site and i will deffo let you know what happens as it developes =] thank you everyone and god bless you all! =]

 

going for Ultrasound in about 20 mins so fingers crossed!!! =] wish me luck everyone! :) x 

DadysGirl
Posts: 305
Joined: Aug 2011

True everyoneI here is great just couldn't help myself to make the comment after reading his message to you :) 

Good luck and hopefully you'll be giving us great clean news...

anliperez915's picture
anliperez915
Posts: 742
Joined: Sep 2011

Hi Phill,

Welcome to the group, I hope your ultrasound went fine. Do you get the results right away or are you going to have to wait for them (hate the waiting)? I really hope it's not cancer and just a stubborn virus. Please let us know what the doc says. Take care and stay strong.

Sincerely,

Liz

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Just got back from my ultrasound and the lady who did it said she couldn't see anything out of the ordinary and everything looked fine ( still need to wait for the docs to look at it properly though )

 

The waiting game begins again..... Will keep you guys updated! thank you again for the best wishes! all my fingers and toes are crossed and staying that way! 

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Phil,

 Sounds like the Ultra Sound didn't show anything alarming, so thats a "good" thing.Smile Take things one step at a time and be as calm as possible. Keep us informed.

Best wishes...Sue  (FNHL-2-3A-6/10)

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Phil, I hope that your sonogram went well.  I'm keep my fingers crossed that you do not have cancer.  I'm am very sorry to hear about your dad.  It must be such a difficult time in your life.  I am praying for you.  My mom is sick in the hospital as we speak with Lymphoma.  She is 82 years old. She is having a tough time with the chemo.  She keeps getting infections.

However, you are young.  If by some chance it is cancer, there is no doubt in my mind that you won't fight it.  Stay stong and do as Jim says, keep busy.  Everyone here is very supportive.  It truly is the best place to be.

 

Hugs, Emily

 

P.S.  Jim you always make everyone smile.  You really are awsome!!!!

 

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Yes Jim after reading all the other posts / thread it is very obvious you are a very kind caring man and personally i think you deserve a medal! your dedication to the people on this site is beyond words and im thankful people like you are around for support =]

 

Latest: Still in hospital not been discharged as of yet i am keeping busy with my drawing and general internew browsing " www.reddit.com " is BRILLIANT for a free smile and distraction from the real world, Still not had my results as of yet but still got all my fingers and toes crossed and i hope anyone else who is reading this thread and going through the same worry as me are getting all the support and comfort that i am getting =] [ OF COURSE THEY ARE WITH PEOPLE LIKE YOU HERE :) ]

 

Doctor should hopefully return soon and then we will see what happens :) Peace and love!

 

Phill x x x x x x x x * Hugs to everyone * 

DadysGirl
Posts: 305
Joined: Aug 2011

Wishing your next post will have good news for all of us...

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

Thank you Phil end everyone for the sweet comments.  Everyone here deserves a medal.  Sometimes I wish I could do more and I do get something out of this too.  I've met wonderful people, had my faith restored in humanity to some extent and I've learned alot through this experience.  Like most of us, I'm still healing, have my fears, tears, doubts and pain.  I definitely don't have it all figured out but dang it - I'm trying!  I'm very thankful to be so fortunate and I am very grateful for everyone here.

... And when the chemo brain ends and I find that winning lottery ticket I misplaced, we're all going to France for chocolate crepes!

Postive thoughts - Jim

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Hi Jim,

I pray you find that lottery ticket.  I'm need a vacation.  We are back to tough times again.  My mom is back in ICU.  I spent the entire weekend in the Hospital.  I slept on a cold floor Saturday night while they set her up in ICU. I noticed her breathing was not right and before you know it her blood pressure dropped.  Her age is making it very difficult for her to fight infection while on chemo.  Hope all is well with you.  You seem to be doing great. 

Hugs, Emily

 

 

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

I'm sorry your mom is in ICU. I hope they get it resolved soon.  Please keep us updated.  You guys are in my thoughts and prayers.

Hugs back - Jim

anliperez915's picture
anliperez915
Posts: 742
Joined: Sep 2011

Hi Emily,

Just wanted to let you know that I'm praying for your mom! I'm so sorry for everything that she and your whole family has gone through, this cancer is really hard on some people. Please stay positive that everything will turn out fine! Take care sweetie and sending you lots of positive energy! (((Hugs)))

Sincerely,

Liz

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Emily,

 I'm so sorry your mom is having such a rough time. I'll keep you both in my prayers. I think the older we get the harder it is to bounce back from treatments. You are such a good caring daughter. Take care, and rest when you can. Much love to you and your mom...Sue (FNHL-2-3A-6/10-age62)

lianadw's picture
lianadw
Posts: 72
Joined: Jan 2013

Hi Emily,

so sorry your mom is having such a difficult time! She's really lucky to have you there looking out for her. 

Warmly,

Liana

illead's picture
illead
Posts: 485
Joined: Aug 2012

You know I'm thinking of you and your mom.  I'm so sorry the pressure has never been off for you.  Hang in there.  Much Love, Becky

 Phil, hope things are going to get better for you.  Stress can cause a lot of symptoms, so let's hope that is what is happening with your latest problem.

Our thoughts, Bill and Becky

epicc's picture
epicc
Posts: 136
Joined: Nov 2012

Jim, Beck, Sue and Liz,

Thank you so much for your kind words.  Your thoughts and prayers are much appreciated.  My mom should be going back to a regular room tonight.  I hope she can come home soon.  She does so much better at home.  Love you all. 

Emily

 

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

Hi Emily and thanks for the update.  Sounds like she's improving and I hope she can come home soon also :).

Hang in there!

Susy28
Posts: 18
Joined: Mar 2010

Hi Phill,

I will be praying that everything turns out okay with you. I have a friend who is in a similar situation as you and I advised her to bug her doctor to do more testing. She has 3 swollen lymph nodes on the side of her neck below her ear. So far the doctor has given her an antibiotic (hasn't helped) and ordered some blood tests. He called her and said the blood work was normal. She's scared and concerned just like you, so she made another appointment for this afternoon. I will be sharing this discussion with her because all of the advise on here is good. I hope and pray that everything turns out okay for both of you. Keep us updated.

Susy

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Send my love and prays to your friend i feel her pain at this scary time =[

my doctor just told me that he's so sure it isn't cancer that he would bet his car on it ( but that was just his opinion not based on anything )

Still awaiting Ultrasound results and new pain develoled at the side of my tummy =/ feels like a trapped gas pain and im hoping that's just a side effect from the codien they are giving me ( makes me incredibly constipated )

 

it is currently 21:20 and i think after my girlfriend goes home will just try my best to sleep! =]

NANCYL1
Posts: 225
Joined: Jun 2012

Hello again:

Just remembered one other test I had last year after meeting the Oncologist:  An Endoscopy, which turned out OK.   Think I am getting forgetful/jittery because I have an appointment with that doctor Tuesday, tomorrow.  Just thought I would post the tests I had in case you might be interested.

Hang in there and I hope you will have a good "snooze."

 

Nancy

 

 

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Ultrasound results came back with nothing out of the ordinary no sign of tumors or lymph nodes other then my neck and groin they are sending me home today and if my glands are still up in 3-4 weeks then i need to go back and see my GP and start the whole investigating thing all over again....... kind of mixed emotions about this as they still haven't given me valid reason to why they are up in the first place but they seem fairly confident it's nothing to worry about.

 

I will keep you guys updated on whatever happens and i thank you all for your time, kind words and support.

 

Your an inspiration to all whos lives have been shaken by this terrible illness and thank god you are all here for eachother

 

Many regards, Phill

DadysGirl
Posts: 305
Joined: Aug 2011

Extremely happy for you and your loved ones... Take care and please keep us posted... Also please let us know when the glands resolve on its own... Wishing you and loved ones a healthy life without the C in it...

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Thank you daddysgirl! i still don't know if they are right or not but i'm happy to wait a week or 3 and see what happens i just read my discharge forms 

 

Diagnosis on Discharge: Lymphadenopathy  then a long space then ?Viral 

 

Follow up arrrangments@ GP to F/U Toxoplasmosis & CMV blood cx 

 

Hoping this is all good not really sure what it means but the very very very nice american Surgeon that was on my ward said that he was so sure it wasn't cancer then he would bet his car... so thats something! 

 

Still waiting for Glands to go down but they haven't got any bigger so hopefully thats a good sign ( they are still hard though )

 

Mixed emotions to say the least....

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Phil,

 Well....I'm glad you are going home, even though the problem hasn't gone away, but just try to take it a day at a time and keep a close watch on the swollen glands. Hopefully this will turn out to be nothing serious and shortly the glands will go down. Keep in touch and let us know how things go with you. Best wishes to you...Sue (FNHL-2-3a-6/10-age62)

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Something isn't right =/ i woke up this morning with horrible chest pains that don't seem to be shifting ( on right side ) and i went to sleep last night with some sort of horrible pressure headache =/ any ideas what could be wrong?

 

Glands in neck and groin still swollen and hard 

 

i feel like i should just keep going back to A&E untill they do some sort of CT scan or PEP scan i don't feel right...... also got back pain but that could just be due to bas posture

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Phil,

 It kind of sounds like a viral bronchial infection, but I'm no doctor, so if I was you I'd be calling the doc back or heading in to the ER. Six years ago I had a terrible bronchial infection which required a 5 day stay at the hospital being pumped full of antibiotics, prednisone and oxygen. I had terrible chest pain,cough, headaches,and swollen neck glands. Sounds totally like a viral infection to me. Let us know what you do. Hang in there...Sue

(FNHL-2-3A-6/10) 

Tanker2360's picture
Tanker2360
Posts: 20
Joined: Feb 2013

Having a bad time =[

 

Glands in my neck an groin are still up!!! the ones in my neck seem to go up and down in size SCARED isn't the word =[ sick of this wait and see bullshit =[

 

if i have it? do i have it for life? and if i do have it for life will it be a short life? all these things keep going round and around in my head =[

 

starting to get very depressed now :(

GKH
Posts: 288
Joined: Jul 2012

Hi Phil

I have lived in UK .

I had a hard time getting diagnosed. The ONLY way to definitely find out if you have lymphoma is via biopsy. The NHS may balk at that but ask them anyway. If they say no then get your physician to be your advocate and push them. Squeaking wheels get the oil.

Best of luck

 

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