Feb 22, 2013 - 9:46 am
My primary doc has referred me to the lymphedema clinic. I requested the referral. About a month or so ago I did finally noticed my effected arm was much larger than the other. It's been 18 1/2 years since the 1st lymph node dissection on level 1 nodes and 14 years since the 2nd lymph node dissection, removing all of level 2 and some of level 3 nodes. In spite of having 4 bouts of cellulitis, a full thickness tear of the supraspinatus tendon in the rotator cuff and chronic bursitis, I had considered myself very lucky to not have developed the condition. I never wore a sleeve when I've flown over the years and some were very long flights. Time has ran out.
The physical therapist told me this morning that they don't work on arms when there is active cancer. I was explaining that it would be hard for me to go daily at the moment but perhaps when the retirement issue is straighten out. That is when I heard her say that working on an arm could spread the cancer. In all these years, I never heard this bit of information. Have any of you?
With all that happened Monday, I can't remember if I told my oncologist that I was seeking treatment for my arm or not.
Sleeves are issued after they work on decreasing the fluid in the arm. Made a lot sense to me. If they can't work on it for a while and I have no end date for the upcoming chemo treatment, should I start by keeping my arm elevated for several hours every night? After leaving the hospital with an infection, I had to elevate the arm for about 5 days. I used a clothed tree and scarves to tie my arm up.
I should have paid closer attention, I was so vigilant in the early years and after the 2nd lymph node dissection. When nothing happen, I just forgot about it. The arm does hurt some but it's not excrutiating pain and more than likely my patch might be camouflaging the pain.
If you have the conditon or know something about this, I would like to hear from you?
Count down for the port-a-cath being put in today. How I wish it was all over and done.
Best to you all,