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NED!! after 4 rounds of Chemo (MMMT)
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Feb 18, 2013 - 4:52 pm
My mom was diagnosed with MMMT on September 2012. had hysterectomy and the results of biopsy was that the tumor is confined in the uterus 1/3 myometrial invasion (lymphnodes, etc...were clean). After having 4 round of carbo/Endoxan we received last week the results of the MRI and it was NED!!!. Our Dr Gyn/Onc informed us that since its MMMT he thinks she might still need to have radiation but he will discuss the case with the Dr Hematology/Oncology and get back to us. After discussions they agreed that eventhough its MMMT no radiation is needed sicne it was only confined in the uterus. wanted to share with you our experience and wish you all "NED" and good health for the rest of your life
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Joined: Jun 2012
Give your mom a hug of congratulations from me. Pat yourself on the back while you are at it. I know your support was as invaluable to her as my daughter's was to me.
Joined: Oct 2012
Thanks a lot Connie for your support...I am sure that your daughter's support was invaluable because she knows that nothing in this life replace the mother
Joined: Mar 2010
Wonderful news for your dear mom!! I as well was diagnosd with MMMT, stage 3C, as found in 1 pelvic node. Had chemo (carbo/taxol) and sandwiched between was 33 rounds of external radiation. What stage is your mom?
Definitely agree this cancer is very aggressive, as to why we have to hit it hard, especially at the beginning.
Enjoy dancing with NED and hope and pray for many more years in this club~
Jan
Joined: Oct 2012
Thanks Jan...The doctor informed us that its early stages of MMMT (I or II) since it was confined in the uterus (1/3 wall invasion and lymphnodes were clean)
I read your story and its really encouraging to know about your 3.5 years journey and I wish you dance with NED all your life :)
Joined: Oct 2012
Following the operation on Sept 2012 (MMMT stage I) and the NED on February 2012, my mom is feeling pain now for 4 days at the place of liver and she’s not able to sleep well. We went to the doctor and he asked for CT scan which will do it hopefully on Saturday. A lot of things questions going on mind at the moment (did the cancer spread to the liver? Have we done the right treatment 4 rounds of Carbo/Endoxan? Should we have followed a stronger treatment Carbo/Taxol for six rounds + radiation? I am really feeling hollow although I don’t have the results of the CT scan yet and what’s killing me is that she was extremely happy that my wife is pregnant and the delivery date is next August….She told my sister that if the cancer spread to other organs she doesn’t want to have any treatment but I told her its not her choice and I want to fight till the end…she’ s the best thing I had in this life and I don’t want to lose her easily….
Joined: Mar 2010
We all tend to jump to conclusions, especially once have heard the phrase YOU HAVE CANCER!!! EVERY ache and pain brings back the original diagosis, so our minds go off. Try to not get too far ahead of yourself as this might not be cancer....be hopeful if you can.
I've seen cases of people having same type cancer, stage, grade, and treatment protocols and one will find the cancer to return. Remember all of our bodies are different and UNIQUE, as to why it's not the same outcome. Once the CT results are back (generally take a day or so), this will give you the black and white results. From there you can gather your thoughts and see what the doc suggests if cancer has returned, and if not, continue on my friend.
My oncologist told me whenever I have pain and it moves in different places, he's not worried. But...if the pain continues in same location for approx 2 weeks, come see him as he'll do scans.
How old is your mom? Is her health, outside of cancer, pretty good? When you say you mom doesn't want any treatments, but it's not HER CHOICE.....I think it is your mom's choice in the end....as it's her body. What you can do is gently guide her, but elderly people tend to get tired and want to give up. You can gather the facts and if treatment is suggested have the doctor go to bat for you. At times patients listen to guidance from the medical profession vs. family members. Might be helpful to you as well. We always talk about my mother-in-law and how we can suggest this or that for her, but if the trash man tells her to do something, YEP SHE'S RIGHT ON WITH WHAT THE TRASHMEN WOULD SUGGEST AS WE AS FAMILY MEMBERS CARRY NO WEIGHT.
Sending you positive vibes that this is nothing more then a scare and your mom will be just fine!!!
Hugs,
Jan
Joined: Oct 2012
Jan - Thanks a lot for the great support. I feel much better....We will wait for the CT scan results, trust the Dr :) and plan the way forward.
My mom is 73 years old she's overweight, has cholesterol, pressure, and diabetes but she is very active and always working at home..
I will keep you updated about the results.
Thanks
Joined: Oct 2012
Jan - You were right I jumped into false conclusions :) Yesterday we received the CT scan results and it turned out that everything is normal...Its really a great feeling and I thank GOD for this...
keeping yo