Feb 16, 2013 - 9:56 pm
I want to bounce this off the group.
Last weeks surgery makes it two tonsillectomies I've had in 3 months. The first (Dec. 21st) they removed the palatine tonsils. The standard get your tonsils out tonsils. Along with that they did biopsies of the BOT and nasopharygnx and a laryngoscopy. That, for lack of a better word, sucked! The pain was excruciating at times. Eating and drinking was extremely unpleasent. It was a good two weeks before I had any sense of things returning to normal.
Just when it did, I have the neck dissection, a bi-lateral lingual tonsillectomy, more BOT biopsies and another laryngoscopy (Feb. 7th). I came out hurting pretty bad but just like the first time, it wasn't until day 4 that the discomfort really kicked in. Now, add to everything, traumatized nerves, numbness and a tongue I knew and saw worked but couldn't feel. Last weekend I was able to take my meds by mouth. I sort of gauged how far back I was pushing the pill, took a sip of water and threw it back down my throat. Prior to day 4, I was able to eat, not without discomfort, but soups with soft veggies and such went down Ok.
By Monday, the pain had increased substantionally. I couldn't get the pills to go down. I spoke with my surgeon Monday evening and he suggested smashing them and mixing with apple sauce, pudding or my all time favorite, Cream of Wheat, That went Ok until Wednesday night. By Thursday, the pain associated with the apple sauce and pudding was unbearable. Perhaps it was the sweetness, who knows. Anyway, Cream of Wheat was the only way I could get anything in me. Drinking has become increasingly difficult and an unpleasent chore. It's not just the pain, it's a feeling like I swallow and there's a bit left over pooling in the back of my throat. It happens when I take the liquid pain meds too. It's kind of like a short choking sensation.
Bottom line, it's so uncomfortable that I know I'm not getting enough fluids or nutrients into my body. Finally, late this afternoon, I made a smoothie (protein powder, milk, banana etc.), about 20 or so ounces. I mixed my meds into that and was able to choke that down. It took a while but I did it. I feel much better getting something nutritious into me.
So, those of you that had similar surgeries, did you experience what I'm describing? How long did it take until you turned the corner on that? I'll be seeing the Dr. on Monday and I'll run this by him but it seems it's progressively gotten worse, not better. Mind you, I'm 9 days out.
Also, I've read dozens of posts concerning the sore throat pain of rads. Those that have had the tonsillectomies and then rads, what's the pain comparison? Is my throat going to be hurting this bad when I get into the meat of the treatment and afterwards? Because I'll tell you, if that's the case, I will seriously consider getting the PEG put in prior to starting treatment. Eating and drinking has been so unpleasent that I can see why swallowing becomes an issue. My main concern at this point is some nerve damage was done when they did the tonsillectomy. Everything I've read an everything the doctors are telling me says that it will get better but my Oxy clouded brain won't let that go and I'm reminded with every sip of water I take.
Your wisdom, knowledge and experience welcome ;)