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Latest CA 125

kikz's picture
kikz
Posts: 1275
Joined: Jun 2010

I had my blood draw on Wednesday and got an email from my doctor (not a good sign) that my count has more than doubled since last month.  I have been on Femara for that time and it obviously didn't help.  She wants to set up a petscan.  I am so afraid I am getting nearer to chemo. 

I have been in a funk since my numbers began increasing in November.  I am so scared to go through it all again.  I still feel good which is a blessing, I have no symptoms.  I try to be grateful but is gets harder.  After three years it is wearing me down.  This is not something I have to tell any on you.

Well, I will do what I need to do.  My cousin is having heart surgery on Feb 26 and I am driving her to Stanford on Feb 25 to be admitted.  That is what I need to concentrate on at this point.  She was there for me during my treatment and I plan to do the same for her.  We are like sisters.  The same age and grew up together.  

So ladies, the beat goes on and on and on. 

 

Karen

Alexandra's picture
Alexandra
Posts: 1227
Joined: Jul 2012

Very sorry about your test result. This journey has many ups and downs and I am sure your doctor has other drugs up her sleeve to push CA125 down. And even if you have to re-start chemo at some point, you know that with the right attitude and moral support it's doable. Best wishes to your cousin with her surgery. Stay strong and funk-free.

Hugs,

Alexandra

wholfmeister's picture
wholfmeister
Posts: 260
Joined: Dec 2012

...and sometimes it sucks.

I don't know what to say except it sucks, and I am really sad you have to hear this news and bear the worry.  You are such a good person to focus on you cousin.

kikz's picture
kikz
Posts: 1275
Joined: Jun 2010

better already, I just need to digest the latest development. 

I wanted to share some happy news with you as well.  I celebrated my 65th birthday on Tuesday.  I told my friends, "I am officially a senior citizen, at least according to the federal government."  I invited a few friends and family to lunch and served, pesto crostini, wenies wrapped in bacon, rolled in brown sugar and cayenne then baked, pumpkin lasagna, baked ziti, green salad and red velvet cupcakes with cream cheese frosting.  I made all the food except for the appetizers my cousin and friend helped out with.  Are you all drooling yet?

I also purchased online a box of candy that was popular in the 40's.  It had a big variety including candy cigarettes and Smith Bros cough drops.  I filled crepe paper basket nut cups (like my mom use to have at my childhood parties) with candy and played hit songs from 1948 from a CD I purchased online.  My house was decorated for Valentine's Day so I followed that theme with plates and napkins.  

We drank a wine cooler and then opened a bottle of wine my friend brought.  I really hadn't planned on drinking but it was good!  I had a great time and a couple of friends stayed around until evening.  I am blessed by the people in my life.

I hope you all see that I am not entirely a gloomy gus.  Thank you as always for your support.

 

KarenWink

Alexandra's picture
Alexandra
Posts: 1227
Joined: Jul 2012

Yummy! I am SO hungry! Now I can't stop thinking about bacon-wrapped wienies.

lovesanimals's picture
lovesanimals
Posts: 1257
Joined: Sep 2011

I think I'm drooling most over the red velvet cupcakes with cream cheese frosting - yum!  So glad you had a good time with the people who love and care about you.  When you need to, I know you'll put on your big girl panties and do whatever you need to do to kick cancer's butt!  In the meantime, we're always here for you.

Hugs,

Kelly

debrajo's picture
debrajo
Posts: 776
Joined: Sep 2011

THAT is what LIFE is all about!  Loved all the food ideas and thyem for the party!  Have Fun....the Beat Goes On!

123Miley's picture
123Miley
Posts: 94
Joined: Jan 2013

I can totally relate to the "funk" you've been in.  

My initial diagnosis (stage 3C) was in 2007.  Surgery and 11 months of chemo later my CA125 was down to 17 and I was "done".  As time wore on I had started to relax and think "Well maybe..."  I always knew the odds were it was going to come back (and in the back of my mind I kept myself prepared for that) - but there was always that possibility that it wouldn't. Then, like you, my numbers started creeping up and then finally they doubled and I was going back on chemo.  It was like being hit by a cold bucket of water.  When I was first diagnosed I was like "Ok I'm going to beat this!"  Five years later when I realized I hadn't really beaten it - well that was a hard pill to swallow.  But I swallowed and continued the journey -like I had an option? - LOL

There are some things that are just out of our control.  And this is one of them.  But I do believe that spirit and attitude can go a long way to getting us through this!  So keep getting up every day, cook dinner for and spend time with your friends and do nice things for yourself and for others.   I think those are the types of things that can add time to our lives - and for sure make the time we do have a lot more fun and enriching!  

kikz's picture
kikz
Posts: 1275
Joined: Jun 2010

and I totally agree with everything you say.  I was just thinking today...it has been almost a year since my numbers began to increase but with the help of Tamoxifen my current number is not too much higher than before I started taking the drug, even though the Tamoxifen stopped lowering my count in November.  I have had no physical symptoms so my life has not changed.  It is my mental and emotional health that has taken a hit. 

I am still moving forward and living my life each day.  It just takes a little more effort to get going.  I tend to have the "what's the point" thought sometimes.  I quickly remind myself what the point is.  I am here now and feeling good.  

My pet scan is scheduled for next Tuesday and a follow-up with my oncologist on Wednesday.  I will find out the next course of action.  Hopefully I will put on my big girl panties and tough shirt and fight like I have been the last three years.  I can do no less than my teal sisters.

Thank you all for your constant support.  It makes all the difference.

 

Karen 

 

123Miley's picture
123Miley
Posts: 94
Joined: Jan 2013

Oh Karen I too have the "whats the point syndrome"!  It creeps into everything - exercise, deciding how to spend or not spend money and sometimes just getting out of bed - LOL! We are all going to have down days and a pitty party on occasion - which I think is completely ok - just as long as we don't stay there!  

A quick funny (sort of) story - before I went back on chemo for the first time I tried tamoxifen.  After being on it a few weeks I called my doctor and told the nurse "I am having some side effects with the tamoxifen.  I want to kill people."  Which of course was an exageration and sort of a joke - but not totally!  It was like hyperactive, over the top PMS!  I was miserable (and so was my husband - had no idea I had that much estrogen left to supress).  So they put me on effexor to try to help keep me from - well - killing people!  Unfortunatelly I had pretty much every side effect listed for that drug - everything from severe weakness/fatigue right down to chronic yawning of all things!  But turns out the tamoxifen was not having any positive effect on my tumor marker so, I gladly quit taking both!

Good luck with your PEET scan and keep us posted.  

 

leesag's picture
leesag
Posts: 624
Joined: Jan 2010

Karen,

 

If you have to go the chemo route again.. (and that's a big IF) remember that it worked the first time.  It will work again.  

 

Keep the faith honey.

 

Hugs,

 

Leesa

 

 

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Happy birthday Karen.  Sounds like a great time.  I am glad you enjoyed yourself.  A little wine never hurt anyone.  Lol.  

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