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hysteroscopy

hope4thebest's picture
hope4thebest
Posts: 108
Joined: Aug 2012

After many visits to the Dr, PCP, PS, OBGYN, finally someone did the US and found a chestnut sized polyp or fibroid indside my uterus.  That would explain all the bloodloss, and why I am feeling so bad lately.  I have been telling them about this for 3 years now.  Last month, my bleeding was so heavy, I can barely tolerate another period.  It takes so much out of me.  So, Dr will let me know when they schedule yet another surgery for me.  (I just finished my PS recon in Nov)  My hope is that they can go in and take care of the problem in one surgery, and won't have to do a few surgeries to rectify the situation.  I am ready to do what it takes, they can remove whatever they need to, although I would like to keep my ovaries as not to go into early menopause.  

If any of you have advice, that is great.  I am certain that I need to do this, so will keep posting and sharing how this goes.  I am looking forward to the procedure, so I can get the results from the biopsy and be sure that all is fine.  My boss has given me time off, she remains one of my biggest supporters.  Grateful for her and you all.  Thanks for the help and solid advice.

desertgirl947's picture
desertgirl947
Posts: 404
Joined: Oct 2012

So, are the DRs just taking the tumor or more?

When I was 31 I had to have a hysterectomy, as my fibroids were too numerous to deal with any other way (i.e. myomectomy).  Because of my age, the DR did not want to take my ovaries. The surgery revealed no need to.  I had no problems afterwards.  The so-called shock of the surgery to my system did not throw me into early menopause.  That was in 1985.

 

hope4thebest's picture
hope4thebest
Posts: 108
Joined: Aug 2012

When they call me, I will know when the pre-op is and can ask more questions.  They just told me that they want to look and see what is going on in there; they are very hesitant to say anything at this time.

Lynn Smith
Posts: 1265
Joined: Mar 2011

Get those ovaries out.Why? because years ago I ran into a girl who lived near us years before. Her  mom had passed. I knew it was cancer but didn't know where.Her daughter told me female cancer.Oh no your mom had a hysteroctomy years ago.Her reply "YES she did but they left the ovaries" I was 48 when I needed a hysterotomy and remembering that I said take it all.I don't want ovarian cancer which is  the hardest cancer to detect and also by the time its  found it has spread,

For me I feel it's just one less place to get cancer.They also took my cervix and of course the uterus. nothing left and the way I want it. And since I take tamoxifin I don't have the worries or problems taking that.

Lynn Smith

 

TraciInLA's picture
TraciInLA
Posts: 1835
Joined: Jul 2009

Please talk with your doctor about the pros and cons of keeping your ovaries -- unfortunately, it's not a simple issue.

I've had discussions with both my oncologist and gynecologist about possibly having my ovaries removed (what would in my case be a purely preventive procedure).  Both of them have explained that research is showing that a woman's ovaries have a cardio-protective effect, and that women who have them removed may be at higher risk for heart disease.

This is an important issue for me, because I have a family history of heart disease -- each of our situations is different, and it looks like a woman's decision would have to take into account her own personal risk of heart disease as well as risk of various cancers.

I wish it were as simple for me as "get them out," but -- as with so many decisions we have to make -- it's not.  Be sure to talk about all the pros and cons with your doctor.

Traci

 

 

Josie21
Posts: 337
Joined: Nov 2012

Well here's my story Hope4thebest.  I hope it helps you. I had ovarian cysts that would not go away.  They kept sending me for ultrasounds and as soon as the cysts got bigger, I was told to have the hysterectomy.  I had everything, but my cervix removed.  They decided to remove my ovaries because the tamoxifen had basically zapped them.  I was 45 and I was having menopausal symptoms already because of two and a half years on the tamoxifen.  That is why I did it.  In my case, my surgery was done laparoscopically and it was not bad at all.  The recovery was fast.  I hope they can do it that way for you.  After the hysterectomy, I had to switch to aromasin which I hate, but overall I do feel better because I didn't realize how bad those cysts were making me feel.  I hate that this disease makes us have to become fortune tellers looking into our future health issues.  Do I get rid of my ovaries and maybe do damage to my heart later? Do I take the aromasin and hope my bones don't become brittle?  What's a woman to do?  Well, right now at this moment I fear breast cancer the most and because I know estrogen is my enemy removing my ovaries made sense to me and my doctors.  It is a very hard decision that you should ask many, many questions about.  No matter what though, I hope removing that fibroid makes you feel much better.  Good luck with your decision and your future surgery.  You'll do great!!

Hugs,

Ginny

cathyp's picture
cathyp
Posts: 366
Joined: Dec 2009

I just want to echo what Traci has said regarding the pros and cons of keeping/removing your ovaries.  They are a natural protection for your heart.  Heart disease is the number one cause of death for women.  Ovarian cancer risk is much smaller risk (if you do not have a brca mutation).  This is not an easy decision.  It must be thorougly discussed with your doctor based on your individual circumstances.

Best of luck with your decision,

Cathy

Pink Rose
Posts: 495
Joined: Nov 2012

I'm also echoing what Traci and Cathy have written.  Your ovaries do a lot for your body.

 

Good luck, Rose

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

I am so happy to read you've found the cause of the bleeding.  I know you've been extremely tired because of it.  I had a complete hysterectomy at 46 y/o and regretted my ovaries being removed.  Had they stayed, I never would have had to use the estrogen patch and may have avoided my bc. Definitely do research and speak to the DRS. I know you to be a very smart girl and will make the right decision for yourself.  Take care of you.  Hugs, Linda

hope4thebest's picture
hope4thebest
Posts: 108
Joined: Aug 2012

It is so nice to have all of your opinions on this.  Especially since I haven't really discussed my options with the Dr in detail, yet.  I have pre-op appt next week and the hysteroscopy is scheduled on 3/5.  I found out that the fybroid, or polyp, is imbedded in the muscle of my uterus.  They will just go in to biopsy it on 3/5, cannot remove.  Am I micromanaging by thinking the Dr should do more instead of just looking and biopsy? I am not going to have children so they can remove my uterus if that would stop the bleeding.  I am grateful for healthcare but recently have been through too much of it.  It doesn't seem like these departments overlap much.  I also will see the oncologist Fri, so I am hoping he can pull this together and help me understand.

At least I am much calmer this week, used to the idea that it is there and most likely it is not any more cancer.  So I am not so nervous, which is great.

 

Thank you,

Annie

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

We'll get the pink bus out for ou Annie on March 5th!  I am glad your doctor is doing the biopsy.  Ask your doctor all of your questions and let us know what he says. 

Hang in there!

Hugs, Debby

hope4thebest's picture
hope4thebest
Posts: 108
Joined: Aug 2012

Well, It has been a long month, but Mrch 5 is right around the corner and I am ready!  I met my new Dr, and he will try to remove the fibroid.  The first Dr was not sure about this option.  I will let you ladies know how it goes.

Thank you pink bus,

Annie

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

Thinking of you Annie and hoping your surgery went well and that you are feeling alright.  Post any update when you are feeling like it.

Hugs, Debby

hope4thebest's picture
hope4thebest
Posts: 108
Joined: Aug 2012

Hi, Thanks for your support!  This board has helped me so much!  I am feeling huge relief!!  So, my new DR, the OBGYN went in and did a hysteroscopy last Tues.  They found a big fibroid and got it out surgically.  It came back from the lab, it is non-cancerous.  Yipee!  

Still dealing with low iron.  Had residual bleeding and then got my period this week, so it was another big strain on the body.  I fainted this morning, shocking.  So, had to go get the CBC bloodcount and am reminded that recovery does not happen overnight.  The clinic is monitoring me closely, and I hear that it will take a couple of months to get my levels back up.  So, I welcome any advice, otherwise I will continue taking iron supplements and lots of beans, lentils, etc. 

I feel good that I took charge of my health.  Thank you for preparing me for whatever may come my way. 

Annie

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

Love your picture!  Good for you, taking charge the way you did.  May it be smooth sailing now.  Linda

Pink Rose
Posts: 495
Joined: Nov 2012

Congrats on the fibroid not being cancer!  Yippee is right!

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