Hi, I am a 12yr Nasioparengeal Stage 3 Survivour, I have the normal side effects, teeth are almost all gone I have like 10 real and 1 bridge, jaw scarred down to with teeth 2 inch opening, taste buds are back and fine, salavia is thicker and does nothing to break down food or wash teeth or relieve my throat. I am writing because this past Christmas I was hospitalized for 8 days with aspiriation phenumonia due to dyspagia, after many test they found that with swallow test.
I had cancer so long ago, and I was so young they really gave it to me: 3 sessions of 3hr. Cisplatin drip, 7 1/2 weeks of radition, and the partial neck dissection where I think they tool everything, and the 1 week a month for 3 months straight 24hr a day Cisplatin for a total of 15days(my safety net my Doctor said, considering everything in me was in operable, but gone at end of rad sessions and all lymph nodes removed clean). So back to why writing, I have been given a peg tube and had no food or fluid orally for about 60 days, speech therapist was positive about responses for at home exercises, and will begin outpatient speech therapy in March, I am very hopeful, but would love to hear other experiences. Please share good or bad. Sorry so long, just wanted you to have back ground...thanks Rachel