Feb 12, 2013 - 3:15 pm
I still "lurk" but I kinda stayed off of this site while I've been going through this process. I was diagnosed December 14th and will finally be starting treatment Monday February 25. (I think). I started out with a colonoscopy and then the numerous scans and tests. It wasn't until the PET Scan that anything showed up. I was just getting ready to start treatment when the results from the PET scan came back with all sorts of surprises. I had surgery Friday, February 1st. I had robotic/laparoscopy surgery. A tumor the size of an egg was removed from my lymph area along with several nodes around for good measure (this was not groin lymph area. much higher toward abdomen) I also had a biopsy in the right vaginal wall. Because of the location of the tumor in the lymph nodes they thought I could have perhaps had a second kind of cancer but the pathology came back that it is all the same squamous anal cancer. I'm doing really well from the surgery with the exception of some nerve issues in my left thigh. I was told 4 weeks to recover but I went back to work yesterday after one week. I have a follow up with the GYN ONC Surgeon next Wednesday, but today I had another consultation with my RAD ONC. I had not seen him since my original consult prior to the results of the PET Scan. I really like him. He is so thorough and aggressive in his actions. He actually made the appt for today. His office called me before I had surgery to tell me that he was slipping in his appt even before my surgeon follow up. He is ready to go with the treatment. I had a somewhat painful pelvic exam and yet ANOTHER rectal exam. He is really concentrating on that right vaginal area. What I found out today is that the tumor that was biopsied there is sitting in the vaginal wall pushing through to the anal canal or vice versa. I realize I'm not using medical terminology here but you get the picture. Soooooo, while he is doing his pelvic exam and I'm up in the stirrups he says "how long has this little thing been here". I'm like "what little thing?" So he puts my hand to this little bump. Really little like a pimple. smaller than a pea. It was hard like a pebble. Told him I never really noticed it. It's in the leg crease, my underwear actually covers it. It does not hurt at all. In fact I had to lay there while he called a pathology team to come and needle biopsy it. I did not have any pain whatsoever with the biopsy. The RAD ONC said he is not overlooking anything because it all matters when he is mapping out his radiation plan. Before I left he did tell me that I will pretty much be having full pelvic radiation as well as some higher where that large tumor was and where there is some small light ups on scan. He went over all the side effects and instead of being shocked and dismayed I just kept nodding my head. I finally chimed in and said I was on this site and had obtained ALOT of information. Has anyone had this cancer so "splattered" around? I can't believe all these little areas it keeps popping up. I really dread the start of treatment and welcome it at the same time. I'm ready to get going and try to knock it out!!!!!! Thanks for any input.