Feb 10, 2013 - 9:40 pm
Mhusband is 3 years out and still cannot swallow. He has had tests done and has had Pheumonia for a month now and it is due to As[irating everything he swallows. The Dr said Feeding Tube, Husband say's NO...I told him he NOT to try and drink, or blend soup or anything when I am at work. The Dr said it is from Radiation the gift that keeps giving...:( He lost his swallow early in treatment and when he had his Port and Feeding Tube put in he ended up in ICU for 4 day's that was Oct 2009..supposed to be same day Surgery. His throat was so swollen they should not have intibabted him to begin with...that's another story...has this happened to anyone else?? He has no teeth still, he continues to have Bone grow out of his Gum's and back and forth to the Dentist. He has also been diagnosed with COPD and Ashma he seemed to be doing ok for a while trying to work p/t but he has not been able to work for a while now...he was at work and called and could not breathe called me and scarred me half to death...his phone went dead and I could not get hold of anyone at his job because it was so early in the morning. They let him drive home when he should have been riding in an Ambulance. Wondering of anyone has had this happen and if so what did you do?? The Feeding Tube he did have in the beggining was very costly for the rx food they prescribed and we have been appealing this 13 thousand dollar bill for almost 3 years now...how can BCBS of TX deny something so nessasary to sustain LIFE? I don't know what to do or who to turn to for help with this. His Esopogus, Tonsils, Tongue, everything has been litterally destroyed by the Rads. Have Appt for the 17th of this month but worry abput waiting so long...any suggestions would be much appreciated.