Feb 10, 2013 - 2:51 pm
I have been a vistor to this site for a few months now but just today became a member. My husband was diagnosed 9/28/12 T2N0M0. He went through 5 weeks of radiation and chemo therapy with Carboplatin and Paclitaxel. He waited 6 weeks and then had surgery 1/8/13 for complete esophaectomy minimally invasive. He has exceeded the surgeon's expectations in his recovery. He is still using J-tube but only about 2 cans a day. Goal is to wean him off and have J-tube removed on 2/27/13. His biggest difficulty is just learning and remembering to eat again since he was on total tube feeding for about 6 weeks before surgery. He has had no reflux but he sleeps on a wedge and doesn't eat after 8:00 pm.
The surgeon and oncologist were surprised by the patholgy report post-surgery. The tumor was re-staged at T3N0M0 because it was larger than they anticipated from the endoscopies at diagnosis. They were also surprised that the pre-surgery radiation and chemo seemed to have little or no affect on the tumor. The oncologist requested testing for HER2 and my husband is positive. Since the Carboplatin/Paclitaxel didn't work pre-surgery, they are starting a chemo on 2/11/13 of Oxaliplatin and Fluorouracil (5-FU) every 2 weeks and Herceptin weekly. His tumor was so unusual that the surgeon submitted it to the Tumor Board for discussion. I feel good that we have a team approach happening to come up with the best approach to fight recurrence but I am wondering if anyone else has experienced anything similar to my husband.