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Food for Folfox

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

I'm starting my chemo this week and lots of people are planning on bringing food for myself and family. From your experience on Folfox, are there any do's and don't foods?  I'm assuming nothing greasy, spicy or smelly foods but just wanted some food ideas. Thanks!

 

Cyn

dmj101's picture
dmj101
Posts: 526
Joined: Nov 2011

I had no problems with food during FolFox.. infact I found I likes spicey food.. but not greasy food.

I craved fish and steaks... and breads.... 

No Ice pops

watch the heat temp of the foods you eat and drink .. not too hot and not too cold.

It was all about experimenting for me.. but I really didn't find anything I couldn't eat.

Good luck.. let us know how it goes...

Donna

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Thanks Donna!

Trubrit's picture
Trubrit
Posts: 1396
Joined: Jan 2013

As you may remember I'm only on session 2, go in for my third on Wednesday, so I have limited experience. 

For me, fried foods equals horrendous heartburn. My lovely lads brought me French fries the other day, I felt I had to eat them, but oh, didn't I pay for it. 

Chocolate helps with metal tongue. Well, chocolate helps with everything really Wink.

On my good days, the spicier the better. Its great to taste something in your mouth other than metal. 

So far, I lose about four pounds on my bad days, and easily gain it back on my good days. 

It really depends on how your own body responds. 

The ladies from church bring meals in on the Thursday and Saturday after my treatments, I figure if I can't handle it I'll get something easy out of the cupboard, and let them bring in what they fancy. 

I am so happy to hear you have that kind of support. 

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

I belong to a Keno group and there are about 15 of us in the group.  We've been playing Keno together once a month for 13 years and these girls are like my sisters!  They have a schedule ready to start bringing me food this week and will do it as long as my chemo lasts (6 months).  I'm so fortunate to have such a great support system of friends.  My parents live about 5 hours away and my mom was here for 3 weeks after I had my tumor removed.  She'll be back next month to help during the chemo treatments and will stay about another month.  Thank God for mom's!

Trubrit's picture
Trubrit
Posts: 1396
Joined: Jan 2013

The support of friends and family have meant the world to me. And now the support of strangers here on the forum, how blessed we are. 

I find that the food people bring in are always such gerenrous proportions, and I get lots of left overs, even with three grown men in the house. 

I'm going to have to try the mouse thing. It will probably come as the chemo accumulates and I feel a little worse. Right now, I'm going to enjoy all I can get down.

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

of whatever sounded good to me, helped reduce the nausea.  When the nausea got bad, I pretty much lived on saltines.  I was told by my infusion nurse to act like a mouse, and just keep "nibbling" all day long, so that's what I did.  For some reason, I didn't lose any weight, even though I could have benefited from losing a few pounds.  Staying fat through chemo is a special skill!  AA

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Thanks Ann.  I heard about the small meals really helps with the nausea too.  I guess whatever you can hold down, eat it!

maglets's picture
maglets
Posts: 2402
Joined: Jun 2006

staying fat throughout chemo was a special skill I too achieved AALaughingin fact I have tried it three different times and managed to keep my weight up the whole time.

Cyn think of good protein for you....protein provides the building blocks you need to rebuild your healing body....fried food was not good for me either....anything that was comfy suited me....like mac and cheese.  I too think the nibble nibble all day long helps///little tiny meals ....if you ask at chemo I found there were always hand-outs on guidelines for eating on chemo...whatever works for you girl!!!!

mags

abrub's picture
abrub
Posts: 1531
Joined: Mar 2010

I found I was ultra-sensitive to spices (and I normally like spicy food.)  In particular, pepper (standard black table pepper) got to me, and the food tasted overly spicy.  Others couldn't fathom what I was tasting!

Everyone reacts differently, so just try little bits.

Also, be aware that some of us get "first bite syndrome."  It's not common, but if you do get a shooting pain in your jaw on the first bite of food, know that it will subside, and won't recur until you start eating after another break (15+minutes.)  Once first bite has passed, you should be good for the remainder of the meal.  Most people don't have this, but those of us who do or did remember it well!

Good luck, and may your chemo be successful and go easily.

Alice

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Thank you Alice.  I'm learning so much on this website.  I'll remember the "first bite syndrome". 

Trubrit's picture
Trubrit
Posts: 1396
Joined: Jan 2013

For me its like when you bite into aluminium foil and it hits a filling. Shocking Yell !

Fucc
Posts: 84
Joined: Sep 2012

I found that there were some days I was really hungry and others when food was a turn off. When I felt the worst I craved things like mashed potatoes or plain pasta. I also craved fruit. This may be partly the need for water and perhaps my body needed the vitamins and natural antioxidants. For me, I have gained 15 pounds on folfox. I could have used a bit of weight loss, but it didn't happen. My oncologist said not to worry and that it is partly because of the hormone he gave me to deal with the nausea. He said that we can talk about diet when im done chemo Hopefully the 15 pounds plus some will fall off she. I'm done in a few weeks. Honestly, eat what sounds good to you. There was one week when I went through three jars of pickles. Lol. Some weeks I crave salty, others sweet. Last round I couldn't stomach anything sweet. Chemo really is a strange thing.

Also, you may need to curb your diet to deal with your side effects. For example, I suffered from the absolute worst and unimaginable constipation I have ever had in my life. Where others suffer from diarreah.

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Thank you for the advice.  OMG....I hope I don't suffer from constipation like that!  Did your doc give you anything?  I don't know what's worse....that or diaherria.  My oncologist also said chemo is not a diet plan so I'm hoping not to gain weight either. 

abrub's picture
abrub
Posts: 1531
Joined: Mar 2010

I took colace and senna, starting the day or so before chemo, and then through the treatment, until I knew everything was moving right.  You really don't want to have to strain.  Your skin becomes tender, and if you suffer from an anal fissure (as I did) it will not heal until you are done with chemo.  Anal fissures are extremely painful (and mine was one of the reasons I stopped chemo.  Even so, it was several weeks until I healed.)

I gained lots of weight on chemo - it seemed to mess with my digestive tract in such a way that starting at about the 7th round (after which I quit) I gained 4 pounds a week for the next 12 weeks.  I was eating healthier and less than I had been eating prior to cancer, so it was a metabolic change, not a change in diet.

Coppercent
Posts: 142
Joined: Jan 2012

I am not sure if it was from the steriods or what but I could eat anything and everything whild doing Folfox.   Seriously, I ate more while in treatment than I ever have in my life.  I also thought maybe it was because through my LAR I couldn't eat at all and my body was finally saying I had to eat to stay alive. I usally wouldn't eat spicy things but through treatment I craced spicy food.  Just wait and see and keep everyone updated!.  My co-workers were great!  They had a schedule and someone always brought me in lunch at work and they would also send me home with my dinner.  Good luck with your treatments!

 

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear cyn,

basically its the perfect time to adopt an healthy holistic diet, the goal is to reduce the load on your liver and improve your biology.

so some juicing, some organic raw foods, ensuring adequate protein.

however all the dietary best intentions fail because your gut is trashed, so rebuilding the gut is paramount. else most of the goodness does not get absorbed.

i am not preaching just sharing what i did and why. i was stronger and fitter at the end of my 6 months folfox then i was at the start.

severe dehydration from folfox almost killed me twice, doing some research and talking to good cancer naturopaths, set the stage for my improving health during this illness.

this is just my experience, above all have healthy foods you enjoy. but a enjoy the foods because i know are good for me, not good tasting. but good tasting healthy food is possible.

of course ask your doctor, i did, she disagree and said mcdonalds, i followed my gut.

hugs,

pete

renw's picture
renw
Posts: 282
Joined: Jan 2013

All hospital dieticiians I spoke with recommnded that I simply eat more during chemo. More icecream, more sugary foods high in carbs, and to sip supplement drinks loaded with corn syru and canola oil etc.

Sometimes I feel like the hospitals want to kill u off sooner to save money. The favorite argument is that there is no scientific evidence that prooves that any sort if diets have an impact on cancer. By that they mean there are no phase 3 clinical trials I assume as even a quick look on the net will reveal many scientific papers linking cancer growth rates and diet.

Fucc
Posts: 84
Joined: Sep 2012

I agree some of what they may tellmyou seems wrong. However, when I met with the hospital dietitian those types of recommendations seeTed to be m,ore for people suffering from severe weight loss.  At that point it's. Ore of a desperate attempt to get some weight on to maintain the body through chemo. My dietitian went through my diet, stressed staying away from oricessed foods, eating,ots of fruits and vegetables, whole grain and somedairy, especially things like yogurt to support the gut. All makes sense and generally should be followed anyways. But to be honest, whe your on chemo sometimes your body doesn't want a spinach salad witsaid salmon, but it wants a chocolate milkshake.  So have the milkshake.  It's all about moderation in my opinion. 

renw's picture
renw
Posts: 282
Joined: Jan 2013

I was in the same boat. rapid weight loss 1kg every 2-3 days. within a month I lost 16kg or 20% of my body weight, I had maybe 5 kilos left before I would not be able to function. I researched cachexia and hit the gym 5x a week with what strength I had left. The weight loss stopped, and in the past 2 months I recovered most of the muscle tissue i had lost and regained 6kg. all without the extra sugar and carbs.

 

YoVita's picture
YoVita
Posts: 541
Joined: Mar 2010

It does depend on the person though.  One thing I had difficulty with was dairy - yogurt was okay.  I am lactose intolerant so that probably played a role.  Eat what you can tolerate.  

Best, Vita

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Thank you all for the comments/suggestions.  I start my chemo tomorrow so time will tell.  Kiss

Dyanclark's picture
Dyanclark
Posts: 253
Joined: Apr 2012

I know you will have some loss of appetite for a day or so, however, just eat whatever you are hungry for.   I never let up on my husband to eat.   Stock up on ensure just in case.   I try & get my husband to get most of his nutrition thru food.   Yougurt is really good to have also Dr. says eat it 3 x a day it has natural probiotics which are so helpful for digestion.

coloCan
Posts: 1845
Joined: Oct 2009

Ensure or CVS brand, the "Plus" version with the 100 or so more calories per container and whatever i was able to eat, if i was able to eat...Went from 178 to 125 pounds during Tx;never so weak in my life......When i got that weird feeling at the back of my jaw upon first bite when on oxi i learned to wait a second and then start chewing again...Be carefulabout cold stuff

Nana b's picture
Nana b
Posts: 2834
Joined: May 2009

I could only eat bland food.  Potato burros.  quesilldas.  Everything starts tasting awful, I didn't want to eat.  I lost 30 lbs.  (but gained them back Embarassed!

I could drink room temp lemonade.  NOTHING COLD, NOTHING!!!!  NO HANDS IN THE FRIDGE WITHOUT GLOVES! 

 

STAY positive!

 

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

I really liked eating watermelon, although I couldn't eat it cold, it tasted good and was great for hydration!

as for food I ate whatever I craved, never lost a pound (although it wouldn't have hurt me to have done so!) the small meals are a great suggestion.

here's to few side effects for you.

Winter Marie

swordranch's picture
swordranch
Posts: 35
Joined: Feb 2013

I found that I have gotten less sensitive as my treatments have progressed.  At the beginning my motto was never let my stomach get empty but never let it get too full either.  I have never been nauseated but did get up in the night for Tums a couple of times.  At the beginning bacon worked best for protein and I would cook a whole side and then freeze it so that I could just grab a couple of pieces out and pop them in a microwave for a few seconds and good to go.  Good old Kraft mac and cheese worked well too.  The main thing I needed was protein and to stay hydrated.  Almost done now and eat pretty much whatever I want just suffer with some pain if it is wrong.  I, too, had the jaw pain at the first bite.  Found if I help the first bite as close as possible to the middle of my tongue it helped.  Also had the throat/mouth cold sensitivity which has all stopped after they stopped giving me the oxcillie.

Good luck,

Laura

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Thank you all for the comments.  The first few days after the pack was gone, I just ate applesauce and soups, nothing sounded or tasted good.  Third day I was back to normal eating which is great.  I hate that first bite feeling with the jaw and dread the anticipation of it but at least it's just temporary.  I found out after I got the pack off on Friday, I slept for almost 17 hours straight and then next day another 16 hours straight!  Guess I was exhausted.  So far so good.  I just hope all the treatments are like this.  Hasn't been bad yet.

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

It sounds like you did great for your first treatment.   I slept a lot too.  Make sure to get that protein in... I relied on ensure for the first day or so after disconnect.   I drank it warm because I could not tolerate the cold after oxaliplatin.... It still tasted the same.   One thing to keep in mind is that your sideffects and food cravings will probably change from treatment to treatment....mine did.   By the time I got to the 12th treatment chocolate, ensure, and spicy foods were all that I wanted.  I gained and lost the same 5 pounds over and over again throughout my treatment.   Now that I am don (had last Folfox in January) ... I am starting to gain a little .... Which I don't need.   I completely eliminated beef, pork, and chicken from my diet while on Folfox...the texture and taste were horrible.   I ate a lot of fish and shrimp.

 

Alex

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