Feb 10, 2013 - 6:07 am
First some history.
My name's Gavin and I'm 35 years old.
For about five or six years I've had an area of what I now think is white leukoplakia on the right hand side of my tongue.
Because the outline of the leukoplakia is the same as three very sharp, uneven back teeth myself and my dentist have been putting this down to my tongue rubbing against my teeth.
Recently (can't be sure when, but I would say it would be some time before Christmas, maybe November'ish?) another patch if white leukoplakia appeared again on the right side of my tongue, but away from the first area (which has now become a thickened area) and the right hand sice of my tongue is beginning to feel numb. Other than this, I have never had any pain or irritation from my tongue.
I saw the dentist in January and she noticed the new white area and refered me to a maxilo-facial specialist. I saw him last Monday and tomorrow I'm having a biopsy.
This morning I've discovered a small red spot on my tongue near to the white spots that appeared before Christmas.
In recent weeks I've been feeling increasingly off colour. I am running a low grade temperature. I am suffering alternate bouts of diarrhea and consipation and feel nausous (I put this down to a stomach bug around Christmas) My heart is starting to race quite fast. I don't have any pain or tenderness, though I do notice the occasional feeling of pressure on the the top of my back.
Everything I've seen on the internet suggests that this week I'm going to be dignosed with tongue cancer and given the time delay since the new area of leukoplakia appeared some time last year its very probable that its spread at least to my verterbrae if not to the rest of my body.
I'm scared and frightened and wondering whether there is any way back for me. I'm single and live with my elderly parents (my father had a heat attack last October) I had numerous medical problems when I was young which my parents saw me though but now I think they are too old to cope with yet another medical drama with me. I'm in blackest hole of my life and can't see any way out at the moment.
Is this survivable if its spread? Can I have any quality of life?
Any advice or words of hope would be much appreciated.