Feb 09, 2013 - 3:45 pm
Just found this site and list. I was diagnosed with RCC on 12/24/2012 though I felt I knew what all the tests were for a couple week before that. I had NO symptoms except for being cronicly dead tired. My pulmonologist asked for a chest XRay along with other work on my sleep apnea when they spotted a something on my left kidney. Two CT Scans, one with contrast, and a PET Scan later they confirmed Stage 3 kidney cancer. The surgeon was originally going to only remove have the kidney since it appeared on the scans to be limited to the bottom half but once he got into it he had to remove the whole thing because the cancer and spread more than expected. They also found another type of cancer in the fatty tissue under the kidney and removed that and three lymph nodes for testing.
I spent 5 days in the hospital and have been home ever since. It has just been 4 weeks since surgery and even though they feel they got it all I have a long road ahead. One thing I do know is that I feel better that the surgery was open, a 8 - 10 inch cut across my abdomen. I feel that taking the kidney out in one piece rather than little slices with vacuum has a much better chance of not spreading the bad cells around to other parts of my body. The one very minor negative I have experienced is constant nausea. Nothing bad, no vomiting, just a constant upset stomach. I'm eating well and the surgeon gave me some med for post surgery nausea that I'm not sure are helping much.
I am scheduled for my first CT scan after surgery next Friday and then they will figure out what the radiation treatments will be.
I have learned more in the past few weeks about a subject that I never expected to know anything about but I guess that is a good thing also.