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beyond the bleeding edge of medical science - something for Ren, for us all. have Hope

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

think of these little reports, as stories from the front line of experimental medicine.

given the life and death struggle most of us are going through, i figure they are relevant.

why even for me, if the liver mets grow, well i guess you know what i'll be doing.

 

i asked doc Nesslehut about my friend Ren, he could be anyone with a few significant liver mets.

the latest therapy had me gobsmacked.

they hospitalise you, hook you up to a heart lung machine and dialysis machine.

this happens in a few places in europe,

they run the chemo only through your liver, its kills the tumours in your liver and spares your body.

getting the best benefits of chemo without the downside. 

this technique they say can be used on any organ.

you never know what you will find, if you go looking off the beaten track.

maybe this is an option, if you or a friend have really large liver problems.

the beauty of this therapy is that it means you avoid poisoning your bone marrow, which is where key parts of your immune system come from.

 

I also asked him about a friend ana, with bone mets. yes immunotherapy has had very good results in the past and is worth a try.

 

i just heard about this today, so next you know I had targetted chemo embolisation with local avastin. well now they are planning on directly injecting gamma delta cells using catherization into your tumours. basically this is leveraging the best of doctor nesslehut immunotherapy and professor vogel direct injection techniques. again another therapy I would try and use if needed personally. so even though my cea is not zero, so i have some troublesome cells left, i have high hopes and confidence that many amazing therapies exist that could save me if my situation changes.

we need to encourage medical innovation, whats happened in our developed nations to our medical innovators. i think its the legal and government rules. somehow business has stiched these systems together to kill innovation and indirectly kill our friends.

have our doctors lost the will and capacity to innovate ? i think the sad answer is largely yes! why this has happened is another great question and tragedy!

 

and the final piece of absolutely amazing medical science is the genetic test you can do for your immune system that says I am prone to cancer but will rarely get colds. its the balance of the Th1/Th2 immune cells. how fascinating. so your genes, set the stage for potential immune dysfunction that leads to an increased risk of cancer. add to that an unhealthy lifestyle and then i know why i got cancer. 

I am doing genetic tests for the kids, so they will know precisely why and what lifestyle choices they can make backed up by science to avoid cancer and lead healthy, happy and long lives i hope. I plan to be around to watch them.

this is a example of leveraging what we have learnt from our cancer experience, for the benefit of our kids and friends.

hugs,

Pete

 

 

 

annalexandria's picture
annalexandria
Posts: 2169
Joined: Oct 2011

that targeted liver chemotherapy is available here in the States too (I think it's called something like "intra-arterial"?), so hopefully that will be one cutting edge treatment that is a possibility for more of the folks on this board.  It would be nice if one day .  more of these approaches were readily available.  AA

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear Ann,

thats good to know.

none of the german therapies were available at home (australia)

i think the devil is in the detail and clinical expertese, vogel is the world leader i think.

off label use of avastin, getting local radio wave oncothermia straight after the procedure. i doubt this combo of procedures is done anywhere else.

vogels gut feeling was that local hyperthermia directly after chemo embolisation boosts the effectiveness by 5%

on tuesday i had immunotherapy 8am with newcastle virus disease and hyperthermia and 3.30pm vogel chemo embolisation.

and 5pm the next afternoon more local concentrated hyperthermia to my liver and infusions at a clinic an hours drive out of frankfurt.

 

its the synergy of these therapies, something conventional medicine does not get. the fact that german holistic medicine merges so many components and disciplines maybe  a significant factor it its effectiveness.

I don't recall hearing of any successes like mine, or any mention of intra arterial chemo injection on this board that has occured. I am just sharing my knowledge and experience in case others are interested. I know many are not, effectively like ostrich's with heads in the sand.

To be fair, i had the same approach myself until i went and tried and had my results.

hugs,

Pete

Brenda Bricco's picture
Brenda Bricco
Posts: 549
Joined: Aug 2011

Yep, isn't that HAI (Hepatic Arterial Infusion)?

renw's picture
renw
Posts: 282
Joined: Jan 2013

Thx pete, I 'll be sure to look into this one. To be honest I have not heard of this one even after months of research. Just shows you how much there is out there. My onco mentioned nothing other than palliative chemo, but I realise they do not cure cancer, just dose chemo. What a shame.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its amazing how a terminal prognosis boosts your research skills

hugs,

pete

ps hurry up mate, free pickup offered at frankfurt

janie1
Posts: 753
Joined: Apr 2011

Injecting gamma delta cells. Would like to know more about that.
Pete, not all tumors are easily accessed, are they?.....for these direct injections. How about cancerous lymph nodes? What can be done?

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

the therapy is not needed for me, its suits those with larger tumours.

culturing gamma delta has just happened out of an italian uni, this is so cutting edge its not funny.

i have not even tried google, i doubt much is on google but you never know.

my suggestion, if you want more info is email dr chang in new york, nesslehut partner in crime.

otherwise email the doctor yourself via their website, which is on my blog under the clinics i went to.

getting the gamma delta cells to the target is the skill, not just plocking them in intravenous.. pushing the little devils right onto the tumour.

i reclon vogel could get those cells anywhere in the human body, seriously. i have seen him go the themeral artery near the groin, then hit a tumour in the breast, then do another in the neck, right up through or around the heart. its blooody fantastic. 3 hours later, you are out dancing. ( slowly )

 

do me a favour, share whatever you find here. I am focused on my book and documenting the staying NED protocol, the science is scary. I need tony and tans help for this one.

i actually think their is no other place on the planet doing anything close to what i am doing with immunotherapy and nesslehut.

the first few friends, that come will be interesting. what i do, is on my blog, the rest is up to you all.

have a good day.

hugs,

pete

 

ps a good document on tace /litt that explains some of the issues hitting tumours.

i had tace to peritoneal, liver, lymph nodes mets.

https://docs.google.com/file/d/1RwNF6_dmF1vcHuiYjPZ9ywyG8X-dSfWLW6A9GqjNeOvfK2Kj7a4tsEdV3jy8/edit

annalexandria's picture
annalexandria
Posts: 2169
Joined: Oct 2011

to a description of the targeted chemo to the liver therapy.  I'm not sure where else it's offered here in the States (this is from CTCA).  Just as an FYI if those with liver involvement are interested.  It's still chemo, but apparently with fewer side effects.

http://www.cancercenter.com/liver-cancer/intra-arterial-chemotherapy.cfm

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

HAI pumps are currently in use, and this directly delivers chemo to the liver.  They can also deliver chemo to the liver by intra-arertial infusion.  Both types allow the delivery of much higher doses directly to the liver.  HIPEC is a similar procedure for peritoneal mets.  These therapies are not going to be offered outside of the top cancer specialty clinics (Sloan-Kettering, MD Anderson, etc...), and only to patients to whom they are confident they will help. 

annalexandria's picture
annalexandria
Posts: 2169
Joined: Oct 2011

It sounds the same but you said that it was offered only a few places in Europe, so I'm thinking it must be something different.  AA

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its great cta does the intra arterial, that very similar to what i am having.

dr vogel pioneered these therapies , i believe and its good to some it avaialble in the usa.

in the study i attached above you can see the technical expertese and experience he has. and the results of the study.

THE MASSIVE ADVANTAGE OF TACE OVER SURGERY in my not so humble opinion, is it claims similar results as as liver resection without the surgery.

so less pain, less risk, less expense. 

the absolute deal clincher is if you want a shoot at LIFE is you avoid the suppression of your immune system that occurs with surgery.

Of course our current gold standard of surgery, radio, chemo is the best therapies most of us have access to, but and its a BIG BUTT the future medical treatments using TACE, and immunotherapies ( REMOVAB and DENDRITIC CELL ) have got results for one at least so far. God i pray they continue and i am not a fluke. this will be the very best news.

Anyone here going any top centers in the USA should ask about TACE and see if they no about off label use of avastin. they probably don't and i think its a factor in my success. if you guys ask then at least we can start putting these ideas into the leading centers in america. then you all can benefit. 

after all they can listen, they can say these are lousy ideas. THEN again maybe they want. Would nt it be nice if the really simple change in standard therapies privided us with a massive benefit. 

Some of my friends here said i was dreaming about the best and bewest therapies occuring in good ol usa in our life lifetimes.

can some at least ask ASK and DEMAND these therapies if so are interested. some of the big name centres have an EGO to maintain, maybe they can learn from an amazing german doctor.

maybe 1000s of patients can benefit and a few more lives can be saved. READ the STUDY on my blog, take it to your surgeon, oncologist and ASK.

the quality of your health, your health system is fair and squarely in your hands, not your doctors.

Its our jobs to be innovators and dreams and drag our doctors along. after all , its our life, its our responsibility to save it, not our doctors. of course they can assist where needed.

I have high hopes for me for us all. If i am wrong, i will likely stop posting soon, if i am right i will keep on posting about the best therapies to save me and hopefully a;; my friends. hopefully you will be here to reply, but that is up to your treatment decisions and attitude , attitude , attitude ( as our dear Kerry always said )

hugs,

Pete

ps TACE is the simple 4hours day procedure, its not the massive heart, lung, liver dialysis chemo based procedure to kill the tumours in your liver. ren is doing some research on this at my suggestion, i am sure he will provide any details here ad on his super blog.

pps the future is gamma delta via tace delivery techniques. i will ask doctor vogel by email if i can have these, to be the first on the planet for another excellent therapy is a pleasure. your not so humble almost healthy colorectal stage 4 guinea pig.

 

 

Lovekitties's picture
Lovekitties
Posts: 2878
Joined: Jan 2010

I can understand you being a fan of the off label threapies you are receiving in Germany given your apparent improvement.  That's great.

However, I have noticed that since you have been on these you have been making some rather unflattering general remarks about the medical community elsewhere (can some at least ask ASK and DEMAND these therapies if so are interested. some of the big name centres have an EGO to maintain, maybe they can learn from an amazing german doctor)

Are there unethical persons in the medical profession...probably so and probably can be found around the world.

Are there medical professionals who are less than "up" on the lastest possibilities...probably so and probably can be found around the world.

However I think you are taking pot shots at the medical profession in the USA in sweeping statements.  Many here are alive many years after diagnosis because of the care and treatment they have received in the USA.  If the Germans were the "end all - be all" of cancer treatment then none of us receiving treatments in other parts of the world would be here.

Continue to share your successes but please stop beating up on the rest of the medical world unless you have a specific situation to cite. 

Marie who loves kitties

PS...in the US, doing drugs off label means the insurance company probably won't cover the cost.  And yes, it is very unfortunate that we are constrained in our treatments by finances.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear marie,

a sincere thanks for the challenging questions, i hope if have addressed your points.

these are only my opinions, your comments and others helps put them in context. thanks again.

i am only citing my specific situation.

whats apparent success mean. please read the medical reports, the scans reports.

i have uploaded it all, any doctor in the world can download and confirm my therapy success.

if anyone still doubts me results, contact my hipec surgeon dr morris or my oncologist dr bell both in sydney. the world has my permission to contact my conventional doctor and ask about my therapy. is that transparent enough. of course they may not like it, but thats their problem. of course you can also ask my german doctors vogel, copic, nesslehut. my survival team. they will confirm as well. my oncologist dr bell is now starting to import removab into australia. i can see fellow australians having access to immunotherapies. it will be the greatest accomplishment of my life. what happens in the usa is up to each of you personally. 

don't shoot the messenger, thank him.

feel free to download my pet scans and look for yourself the way doctors do. 

i have not beaten up or criticised any of medical systems directly.

i have the greatest respect for all our medical systems, of course they are not perfect and have room to improve.

our doctors do the best they can do within the system they are in. 

we do the best we can do as patients within that system.

i would not be alive without my australian conventional medical system, i had a very big t4 tumour, that set the stage for recurrence post low anterior resection surgery.

i have benefited with off label drugs, now its a shame they are not covered by insurance, thats a reality i cannot change. 

it shows the truth that our wealth determines our access to health, its not fair, but its a clear reality. from usa, to the poor indian in delhi starving outside the hospital, to the uk to my dearest vitamin c friends in sydney who are selling houses, doing whatever it takes to have a shot at cure. i make no apology for my success and my duty to publicly proclaim i believe their is a better way that works if you can afford it.

effectively those stage 4 with financial resources to try my path, and its simply their personal choice. they will make my path a track if it works. 

if noone follows, if my path does not help, it will over grow and die. we will be left with our current health systems.

if others on my path have success, then the track may become a road, one day a highway.

why cannot a group of terminally ill cancer patients change the world ? answer that marie and everyone ? seriously have a crack!

tell me why ? are we so caught up in our own death that we cannot think of others! i jumped on the plane to germany on the 6th october, it was not just for me.

the few wealthy people here with stage 4, have not even heard of these therapies. i am at least giving them an option to consider. i

whats wrong with ASKING, whats wrong with DEMANDING. after all we always say here lets get a second and a third opinion. that proof of our will to live, to

think beyond a palliative offering.

what i think is challenging alot of my friends here is my perspection of the truth that your medical system is clearly inferior to germany's holistic and experimental system.

i believe that. you can believe whatever you want, and i respect you and everyones right to their opinion. i express my opinion in my posts, that all. i don't go pushing in other posts.

if its any consolation the us system is as far behind as australia, uk, canada. its not really bashing up this system or that system. 

to me its really simple, someone has to win a race. the german holistic system won.

will our conventional systems EGO permit them to learn from my success and so many others. no.

they will bury ME and my SUCCESS and the status quo will continue. nothing will change. YOU KNOW WHAT THAT MEANS.

basically subscribe to mercola, the natural health, holistic approaches with targetted therapies i believe is the best way forward. its worked for me, it may work for others i sincerely pray.

if we don't change our health systems, they won't change. the "not in our lifetimes" will be true.

only god knows whats impossible, not our doctors or governements.

i believe in miracles, i am sorry my success is a clear example of the transference of responsibility from the doctor to the patient.

as i said earlier, my convnetional system is in the process of delivering removab. which is a step in the right direction. 

but its one step forward, two steps back. 

my dear oncologist dr bell, still has a drug based focus. i doubt he will reproduce my result on other colorectals in sydney.

he does not push natural health, life style. he does not have access to TACE and avastin, he does not have access to dendtritic cell vaccine.

he has not even asked me about the details of the therapies, i doubt he has read the comprehensive german medical report.

do you see, his approach is a recipe for failure. the same with any us doctors cherry picking components of these therapies.

hallwang had been doing removab 10 years, vogel with tace 15 years, nesslehut vaccines 15 years. i have got my result by access world leader with a combined 40 years experience, of seeing terminal cancer patients everyday and trying to improve each day individually.

what i firmly believe i represent is the holistic glue that ties the best of these therapies together.

the holistic health revolution has been happening for a long time, all thats happened now is a clear example of one mans success.

yes it clearly allows us to question the therapy millions are recieving each day for cancer. i cannot help that. in fact i welcome it. 

this is not a new argument or issue. my story represents hope marie, hope for millions. 

whats wrong with ASKING, everyday cancer patients ask about supplements, now they can ASK about something else.

doctor bell my oncologist, who i owe my life too, looked at me and smiled, i think you need to goto germany, you will never be happy unless you try it.

he did not talk me out of it. within a few days i was on the plane. with very very very high hopes, for me personally and for us all.

hugs,

pete

ps marie years ago here, i did a post about climbing mount everest, i don't think it got one reply, like lots of my posts. i have reached the summit, marie and its a wonderful glorious view. i am happy to share it. 

pps my heart breaks for my friends here, i am asking my doctors about any of my friends who contact me. that the best i can do.

life is to short not to have fun, especially if you got a stage 4 diagnosis. why not rock the boat? if we don't noone else will.

 

Lovekitties's picture
Lovekitties
Posts: 2878
Joined: Jan 2010

I am not quesitoning your apparent success.  I am not downing your methods of getting there.  I am not putting down the German clinics and their different approach to find help a way to keep cancer patients alive.

What I do ask is that you share all this with us without the jabs at the medical profession in the rest of the world.  It is not EGO which keeps other medical providers from trying things that the Germans might.  In many cases it is the laws and regulatory boards.  Here in the USA one cannot get a reputable doctor to inject you with whatever you request just because you think it might help.

There is lots wrong with the world's approach to medical care and the costs of getting care which may save our lives, no doubt about it, but we do have to work within the laws that we currently have.  They were put in place to protect us from charlatins who tout "cures" when what they give has no hope of benifit. 

Germany may very well be on the leading edge of helping cancer patients.  What needs to happen is for them to do medically documented cases of their success and provide it to the rest of the world.  While your own case may be giving fantastic results, it does not constitute enough to change the world.  It may be the beginning, but it cannot change what we have by itself.  Medically reputable doctors who are able to try experimental approaches with humans hold the keys to change in how cancer patients are treated.  Here in the USA that means clinical trials.

The biggest issues no one has been able to address is that no two patients will necessarily have the same response to the same treatment.  Cancer and the human form are unique due to genetics, environment, and life experiences.

All I am asking of you is to temper your dislike of the treatments available to the rest of us, and concentrate on the approach you are using.  Yes, we do encourage others to seek multiple opinions to determine what is best for them.  If they can afford your treatment, fine, but most of us are limited to what is deemed medically acceptable in our home country.

The best you can do for the cancer world at large is to push your medical teams there in Germany to continue to document and  share their successes.

Marie who loves kitties

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear marie,

excellent points and well said. the reality true and heart  breaking.

this exchange summarises in a short way the tragedy of our health system. from my hotel room, i see the faailings of all our health systems. i want for my friends here, what i have got. read ann post about why not jump on a plane. read your own wonderful reply about why not in usa.

my conclusion is very few of you guys can come here and there is noway soon to get these therapies into mainstream usa or other developed and the status quo continues.

the pace of medical innovation heart breakingly slow, all my passion is motivated by survivor guilt. why me, what can i do.

first i will do my best to stay alive and prove these therapies.

second i will help anyone who comes to germany, i have three already. i can help so much, you could not believe. all my suggestions to the doctors, well they don't stop nodding and say yesy, yes, yes.   i firmly believe and hope that my approach can make the difference in beating stage4 colorectal using these therapies. all my help is for free. its going to be a lovelly rewarding way to live, i hope my family here soon to live, but that up to them. i am getting the clinics and medicine close to me, its a strange dependency i have on them. the immune profiles, none of these tests and medical opinions available elsewhere but here.

i will temper my comments, here. you and everyone has been so kind and patient and supportive of me, often when i had noone else. like when doing removab.

but i am deeply torn again, i have said clearly my views and opinions about chemo and immunotherapy. i will try and be as eloquent as john23 about tcm.

the doctors here cannot afford to run trials, they are too expensive, only big pharma runs the trials. also see ren blog about trials.

today doc n said while giving me my 2nd vaccine, his incredible success is rejected, because he treats all his patients individually. i don't mean to be argumentitive but i conclude that trial based medicine the way we have it is simply killing us quickly. its just my opinion, i will keep it just in this reply and on my immunothermapie channel. i will ask all those who i help, if they mind having their story, the good, the bad broadcast on my channel. patients telling other patients real stories about as good as it gets.

your usa doctors ( and all others ) don't accept the existing papers published that provide ample proof for me now. alot are docuemtned on my medical records on the blog.

the best i can do, is document and share and care and live well. maybe mercola will broadcast my story. the more documetned colorectal successes the better, again my patient based clinical study the only way to go.

thanks for being so kind to me, and everyone else for that matter, i am settling down. i know i have tested your patience. how we can help save our own lives, i don't know.

hugs,

pete

 

annalexandria's picture
annalexandria
Posts: 2169
Joined: Oct 2011

wow.  Pete, that is so not ok.  Here are some reasons why us stage 4ers might not "jump on the plane" and follow what you are doing...

1. Money.  You're spending a fortune, and most of us don't have access to that kind of wealth.  

2.  Time.  Many stage 4 folks only live a couple of years after dx.  Doesn't allow a lot of time for traveling the world in search of a cure.

3.  Physical health.  Many with stage 4 cancer are very sick.  Not from treatment, but from the cancer itself.

4.  Concerns about efficacy of these treatments.  A 1 in 10 shot at life is better than nothing, for sure, but I would personally want some studies showing that it's really even that.  And is this for cure or for remission?  And if remission, for how long?  This is only the beginning of your journey, Pete...you really need to be a year or two down the road to be sure you have achieved some kind of cure.

5.  Success with conventional treatments here at home, whether via surgery, chemo, or TCM.  There are options here.

Anyway, I wish you the best in your quest for health, Pete, I really do.  But I prefered reading your posts back when you were eating sea cucumbers and doing coffee enemas...for some reason, in the last few months, you have become kind of hostile in tone to anyone who questions your statements in any way.  And suggesting that the rest of us with stage 4 disease are somehow selfish for not doing what you are doing is pretty unkind.  AA

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear annalexandria,

all great points and thanks, i spending my life insurance to save my life yes, its ironic. i am blessed. 

the reasons to not jump on the plane becoming clearer to me thanks for helping open my eyes. i never seek to coerce anyone to try try these therapies. 

i just share the good, the bad the ugly. self directed change is the only path we should change. 

if someone meets me in germany great, if not great. life is what it is. we each got our path.

i love your points, all valid. i don't mean to be hostile, but i guess in am passionate about my experience and my story and my life.

honestly my current emotional intensity has taken me by surprise. that said its the reflection of coming so close to death and now maybe being spared.

you know i am videoing every procedure and consult since arriving germany a week ago, also documenting the supplements, the hotels, the clinics. i am going to create the immunotherapie channel. i bought the hd video camera enroute in taipi. the french journalist could not make it, and i figured i might as well do this myself. looking over the videos has been amazing for me. i still cannot workout how to upload them.

the real life doctors consults are so educational. extremely motivating.

hostile, is the last thing i intend, i am sorry its come across that way. peace and love are the cornerstones of my survival.

if i come across hostlie, let me know, i will always back off. i do prefer to just live within my posts about my subject areas of interest.

i feel odd supporting those suffering chemo side effects. mind you i still got slightly odd feet.

with my success so far my reticence for chemo personally has grown, but i still know its the only option for most.

thanks annalexandria, i appreciate your comments.

hugs,

pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its great cta does the intra arterial, that very similar to what i am having.

dr vogel pioneered these therapies , i believe and its good to some it avaialble in the usa.

in the study i attached above you can see the technical expertese and experience he has. and the results of the study.

THE MASSIVE ADVANTAGE OF TACE OVER SURGERY in my not so humble opinion, is it claims similar results as as liver resection without the surgery.

so less pain, less risk, less expense. 

the absolute deal clincher is if you want a shoot at LIFE is you avoid the suppression of your immune system that occurs with surgery.

Of course our current gold standard of surgery, radio, chemo is the best therapies most of us have access to, but and its a BIG BUTT the future medical treatments using TACE, and immunotherapies ( REMOVAB and DENDRITIC CELL ) have got results for one at least so far. God i pray they continue and i am not a fluke. this will be the very best news.

Anyone here going any top centers in the USA should ask about TACE and see if they no about off label use of avastin. they probably don't and i think its a factor in my success. if you guys ask then at least we can start putting these ideas into the leading centers in america. then you all can benefit. 

after all they can listen, they can say these are lousy ideas. THEN again maybe they want. Would nt it be nice if the really simple change in standard therapies privided us with a massive benefit. 

Some of my friends here said i was dreaming about the best and bewest therapies occuring in good ol usa in our life lifetimes.

can some at least ask ASK and DEMAND these therapies if so are interested. some of the big name centres have an EGO to maintain, maybe they can learn from an amazing german doctor.

maybe 1000s of patients can benefit and a few more lives can be saved. READ the STUDY on my blog, take it to your surgeon, oncologist and ASK.

the quality of your health, your health system is fair and squarely in your hands, not your doctors.

Its our jobs to be innovators and dreams and drag our doctors along. after all , its our life, its our responsibility to save it, not our doctors. of course they can assist where needed.

I have high hopes for me for us all. If i am wrong, i will likely stop posting soon, if i am right i will keep on posting about the best therapies to save me and hopefully a;; my friends. hopefully you will be here to reply, but that is up to your treatment decisions and attitude , attitude , attitude ( as our dear Kerry always said )

hugs,

Pete

ps TACE is the simple 4hours day procedure, its not the massive heart, lung, liver dialysis chemo based procedure to kill the tumours in your liver. ren is doing some research on this at my suggestion, i am sure he will provide any details here ad on his super blog.

pps the future is gamma delta via tace delivery techniques. i will ask doctor vogel by email if i can have these, to be the first on the planet for another excellent therapy is a pleasure. your not so humble almost healthy colorectal stage 4 guinea pig.

PPS i got nothing much to losse, i would much rather die, trying. trying anything beyond a slow ugly death from chemo.

 PPPS the patient innovators, the ones who try these therapies and prove or disprove them, and they blog along the way. will provide the personalised evidence base of theraputic success. If these therapies save a handful of us over the next few years, i have the utmost faith, that everyone saved will have the same passion and debt to our fellow colorectal friends to hassle and ENcoURAGEME our DOCTORs and the medical system to try these therapies.

ITS UP TO US PERSONALLY

Please let me know if you ask your doctors about these therapies. what they said and how you feel. i am interested if i am as naive and gullibile as my friend suggested , or maybe i am the smartest colorectal survivor on the planet. you guys can decide over time. as craig says, and its so so true. 

TIME WILL TELL     , if i fail , i have got a few thinking outside the box, that way some may stay outside the BOX , which is not so bad, life is bloooody fantastic. hugs!

and finally please discuss all these points with your doctor if your interested, print the study, the post. it might make his day more interesting or give them a headache! i need this line to comply with our csn guidelines.

annalexandria's picture
annalexandria
Posts: 2169
Joined: Oct 2011

After all you've done, you certainly deserve to be a success.  AA

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear AA,

if you have a moment, read the the race post,

you will be the only one, alas! last time i checked.

i will never fail, I promise, not while i have breathe.

i may not prevail, but i will never fail.

we all deserve success, some of us just find interesting ways to achieve it, i hope yours is fun also.

success for me is trying, weather i live a day or another year is immaterial.

to live with hope and passion, thats what i have, thats all i want. If i am blessed to help a few friends find their misplaced hope, that  would be nice.

hugs,

Pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear ted,

tace with avastin as the occulising agent locks the chemo in the tumour micro environment.

the hai sounds like still delivering higher doses of chemo to the liver, but its still going to do systemic damage after the liver. that no good for those seeking an immune system response. which basically means anyone seeking cure.

the example cited above, with the heart , lung and dialysis approach is to kill the tumour in the liver with chemo and spare the bone marrow.

hai fails in comparision, but its still an improvement on systemic chemo.

look at my case, i needed to treat the liver mets two big suckers and a couple of questionable cycsts. but i needed the lung and peritoneam fixed as well. i needed chemo therapies that are compatible with an immunotherapy regime.

thats what i got. ted i have discovered a series of therapies that have worked for one, and i am elucidating the reasons and my beliefs.

even the german doctors are amazed, that proof enough of my combined approach let alone my clear scans and falling markers.

yes the hai pump and hipec are big procedures that need careful consideration.

the therapies i had , well i got off the plane and went straight to nesslehut, then drove to vogel, then drove to herzog, then drove back to nesslehut.

i am fluey from ndv today, its eating my colorectal tumour cells, its one injection and an hours hyperthermia.

it sets the stage for vaccine success.

my combined interventions i suggest could easily be the first set of therapies, then of course you can try stage 1 chemo, stage 2 chemo etc etc .

i no full well the realities of hipec, i have a dear friend steve who was opened/closed and sent home to die. i met him at hallwang. we have the same surgeon in common.

i am still on the hipec waiting list of my german dream fails.

but the gamma delta and the isolating the liver with the heart/lung/dialysis well i know what i will be trying to avoid dieing.

hugs,

pete

ps you seemed unimpressed with nesslehut 1 in 10, so skip it and these therapies. i came over here , sacrificing my precious time with my family and friends with no proven examples what so ever. i find peoples hesitation in the context of my success unbelievable. of course i respect your views and everyones and your right to your feelings.

i just cannot understand them, but am trying too. this shows the clear difference in attitude that i believe essential for having any chance to beat stage 4 with these therapies. look at the lion here (craig, he is my inspiration, he is unstoppable ) that fierce determination is essential.

its a mute point, but i hoped for success, and everyday i told any doctor do your best. they said this costs this or that. i said ok to it all. i never looked or worried about the cost. i did not stress about anything treatment wise. i had no expectation of success, i put no pressure on the doctors. the only pressure i had, was what i placed on myself, do do qigong, yoga, exercise and meditation and journaling and research. it was so intense, no time for family or a girlfriend even. but some company outside the clinic was really welcome to keep me sane. though many would say i failed on that count. haha!

one in ten odds versus death sound fantastic when your classed as incurable. i would have jumped. then i jumped when we did not even have odds. that is also a critical success factor. i am not trying to convince anyone to come here. no hard sell whatsoever. if you don't seeks these cures, or whatever cure you are after with all your heart and soul then maybe you will get your result. you have to want it so hard, that jumping on the plane is so easy. all i needed was the money, as soon as i got it, i was up up and away and the rest is history.

 

 

renw's picture
renw
Posts: 282
Joined: Jan 2013

I have asked 8 oncologist the same question. "Have you ever cured anyone with stage 4 mcrc?" The answer has always been NO. Sure they have patients alive after 5 years or more, but no cures. Compared to this 1 in 10 or even 1 in 40 is a spectacular result. With traditional treatments, for stage 4 the odds are about 1 in 60000.

manwithnoname
Posts: 390
Joined: Jun 2012

Our onc. said 'cure' but what she meant was 5 year without recurrence,  there is a woman on the brain cancer board who's son recurred 25 years ater they 'cured' him, the recurence killed him.

Only in animal studies with immunotherapy will you find a true 'cure' this is when the tumor has been eradicated and they then 'rechallenge' the poor creature with another tumor and the tumor is eradicated again. Never seen this 'cure' happen with chemo or radiation BTW, if anyone has seen this I would love to see a link.

Obviously we can't do this to humans to see if they are really 'cured', so I believe they call it 'long term remission', just to be on the safe side....

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