Feb 07, 2013 - 3:24 pm
I wanted to post an update. I think that those behind me in the treatments stage might appreciate the information. We all experience this journey differently but here is the latest with me.
I finished my radiaiton and chemo treatments (for tonsil cancer on left side and lymph node on same side) on Dec 19th.
I was approved to have the feeding tube removed today. I used the tube for about a week right at the end of my treatments. Otherwise, I have been getting most of my calories in with smoothies and Boost Plus. I can eat most soft foods now as long as I take in lots of water while I am eating. My taste buds are not normal but most things no longer taste horrible. The biggest issue for me right now is that I have no appetite. I must force myself to get those calories in. I have lost about 40 lbs since this all started in late October. I was overweight so the loss so far has beek ok. I would like to get to the point where I stop losing so much so quickly.
The removal of the tube was not that bad. The doctor pulled it out and it felt like a rubber band snap for a few minutes and that was it. They put a bandage on the area and sent me on my way. I drove myself to and from the appointment.
I am waiting for my 1st PET scan to determin if the treatments were effective. I am on pins and needles about this. I sure hope to report a NED status once the scan is ran. Thanks for listening!
I really appreciate all of the information that I have read from your postings!!