Feb 05, 2013 - 7:46 pm
I want to take a minute and say "Thank You"! You have all been there for us down this road, and I am sure will be there as we continue down the road. You held my hand, you listened, you gave advice, you shared your personal experience, all while you were undergoing your own personal experiences. At first I think Dan thought it was nice I had someplace to talk with out scaring our friends and family with simple truths, and then he started asking if I had read the answer to his questions, and I gave him the answers that I knew from keeping up with others going through the stages, and searching, or I asked his questions. So to each of you we both say thank you.. and you are always in our hearts. (Sorry to say you are stuck with us now! We are family. ;)
Today we start week 4 post treatment... and I thought those who just finished might like to see our experience too.
Updates/week 3 experience:
Blood work shows, Dan is anemic and dehydrated and should still avoid crowds. (New blood work again tomorrow)
His neck looks great today! Considering it was very very very red and open two weeks ago.. can't say enough about calendula cream and aloe. If you didn't know and just met him, you would probably not notice.
His mouth and throat.. less pleghm than before, but still very tender, and painful to swallow still. He says his throat feels like it is swollen all the time and the roof of his mouth is still driving him nuts. It impedes food greatly.
His ability to eat, very slow progress. Fish filets in herb'd butter and cereal seem to be the best right now. He's been on the TPN for a week now and not only is he holding his 142lbs for an entire week.. he gained 1 lb.. 143!
His nausea meds.. he skipped a dose on Saturday thinking he didn't need it, it only took til Sunday at noon for the meds to catch up again.
His pain meds.. he doesn't think the patches are doing a thing. He hasn't taken any break through meds in a week. I guess we will talk to the doctor about decreasing them next week? I see a learning curve coming up I am afraid.
His attitude, he is cranky and grumpy and complains about the competency of just about anyone who prepares food.... which is great! Last week he didn't care, he was complacent about everything.. he must be feeling better.
Today we finally got out of the house for a car ride. It took me 4 days of convincing, before I said, you have no choice, you are coming with me.. he didn't have to get out.. but it did him good. His outlook is a little brighter tonight. Tomorrow, we are going to take a short walk.. no options.
We meet with 3 of the doctors next Monday.. ENT Surgeon, Oncologist and Radiologist Oncologist. And we only have 2 months and 1 week til his PET scan.. but who's counting? :)
If anyone has advice to our update.. you know I'd love to hear it!
Thanks again.. Kari & Dan