Feb 04, 2013 - 10:10 pm
The first week of January, I had blood in my urine. I went to a local urologist hoping that it was just kidney stones...but since I'm here...well you know what they found. 7.5cm x 7.5cm mass in my left kidney on the lower side.
The urologist wanted to do a non robotic laproscopic full nephrectomy the following week. When he told me, it floored me - as it does all of us. I had forgotten to mention frequent headaches I've been having for the last several months (3-5 times per week).
So with this additional information, I wanted to get a second opinion, but from a Urologic Oncologist (plus my original dr was out of town when I remembered). The second doctor ordered cat scans w/contrast of my abdomen and head along with a bone scan. They came back as neg for metastatic and he said it was still contained.
So today he calls and says it's likely RCC and he wants to do a partial, open, but can't do it until 3 weeks. Ugghhh!!! I was hoping to have it done sooner and now I'm freaking out thinking that I'm on the verge of metastasizing and of course waiting for 3 weeks is going be when that happens.
So I have several questions:
1. Urologist vs a Urologic Oncologist? My urologist is a board certified surgon, but my orologic oncologist seems to have better credentials and is associated with a teaching hospital. Should I go with someone that is a little more specialized? Would a urologist be skilled enough for this scenario?
3. Open vs Laproscopic. Is it worth an open to get a partial vs a laproscopic to get a full? Are open partial nephrectomoy surgeries still common?