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Balancing Act

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

I'm performing a balancing act. With the "right amount" of pain medication and the "right amount" of anti-nausea medication, life can be pleasant. Too much medication wipes me out. Some medication seems to wipe me out a little anyway.

I am also having a little trouble with the eyes (focusing). I have recurrent iritis (a painful swelling within the eyes). I've had this condition on and off for 50 years. The upshot is that reading is very fatiguing, and I can only work on the computer for short intervals.

I started the process of having the voice prosthesis removed. I don't use it; I use esophageal speech instead. The process is to place smaller diameter devices in the TEP (Treacheal - Esophageal Puncture) and let the hole between the food tube and the air tube close down.

Fatigue is big time. I rest (and often snooze) after even the shortest tasks. But I will attempt to keep you informed. Rick.

D Lewis's picture
D Lewis
Posts: 1533
Joined: Jan 2010

Thanks for keeping us all informed. Hang in there.

Deb

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

Hang in there Rick..., hoping you find the right mix... We'll be here for you, get rest and rebuilt as needed.

Best ~ John

ditto1
Posts: 634
Joined: Mar 2012

TAKE CARE OF YOU FIRST AND UPDATE US SECOND.   WE WILL BE PRAYING FOR YOU

NJShore's picture
NJShore
Posts: 411
Joined: Nov 2012

Rick,

glad you are able to balance things out and find some pleasant times, and glad to here from you.

i'll say my prayers for you, and you take care of yourself!

Kari

cureitall66's picture
cureitall66
Posts: 867
Joined: Aug 2012

 

I know the fatigue is tough. The meds are certainly a difficult task. Still not sure how anyone can get them where they should be at all times. But, it sounds like your doing your best to keep up with it. When our body needs rest, it certainly knows how to tell us. We don't have a choice but to react to it. I hope you can get it figured out and get some relaxation soon from all of this.

Hang tight,

~Cureitall 

 

Noellesmom
Posts: 1306
Joined: Aug 2010

Add that to the medications and I'm sure it more than wearing.

Good to see your posts, though.

josh r.
Posts: 198
Joined: Oct 2010

Rick,

You have been strong and seem to be very strong still under very difficult conditions. Keep it up, you have a lot support out here. josh r.

luv4lacrosse's picture
luv4lacrosse
Posts: 1399
Joined: Jul 2010

I truly admire your strength and intestinal fortitude. Sounds like you are balancing your quality of life.

prayers and positive thoughts headed your way.

Best, Mike

CivilMatt's picture
CivilMatt
Posts: 3014
Joined: May 2012

Rick,

 

Hang in there and good luck with the meds and treatments.

 

Matt

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